I need some advice! My mom has lived with my husband and myself for the last 2 1/2 years. We both agreed to have her come live with us since she was so unhappy in the nursing home. How to I tell her I don't want her to live with us anymore? It would mean a nursing home for her and that would probably just about kill her. She DID NOT adjust well the last time she was in a nursing home. Any suggestions would be appreciated.
So glad to hear that you have turned the corner in your life and that of your mom's life. It is such a hard decision and it is so good to see it work out for you. Hope we all have your success. God Bless
Linda
But Jane DID tell me and my MIL didin't just "say something" she ranted for 30 minutes about me and my grandbaby!!
Should I confront her? if anyone reads this, please let me know if I should just forget it. I have even thought of putting a recording devise on my phone so my husband will see for himself how different she is with me then with him... or maybe play it for her doctor???
Dear Elaine, I am so happy to hear your story. It turned out just like my dad's, with a happy ending so far. But there are many more chapters to come. You take care, and enjoy being the daughter again. I am too.
You all take care, and bless you all.
SusieQ made some good points. So what to do? Get medical support, and protect yourself and little one, as a loving mother would, perhaps limiting your contact, unless absolutely necessary. It's a rough road, but not impossible. We can be loving and firm, without being destroyed in the process. We don't have to succumb to their level. Why allow a vindictive person sway with our precious and vulnerable emotions? Practice makes perfect. Prayer helps. Take care :)
Linda
SecretSister, she had an accident about 13 years ago that left her with an undiagnosed closed head injury. Long story short, she's been dizzy ever since. Some days worse than others. That is a reality. However, she she has always lived in a selfish all about me world and now dad cannot balance her like he once did (due to Alzheimer's) she's just outlandish with her behavior and hypochondriac ways. All I do is make sure everything is provided for and financially cared for and she can live in her own perfect misery while physically healthy. Although her new "hypochondriac" behavior is that she believes the dizziness is due to a brain tumor... oh I'm just so not going there!! :X
Elaine62, that is exactly why there are now assisted living facilities and other options for seniors that never used to be there. I am so glad to hear things are working out and you can take care of you now and enjoy her even more. What a blessing that is!
Thank God for this site, and those of you who taught me not to let Mom move in with me (though knew better). You let me know I'm not a "bad" person for placing Mom elsewhere, and that I don't have to feel "guilty" about it. Glad to know I'm not alone. Thanks Naus, Mitzi, Linda, and all the rest of you wonderful Caregivers.
I was thinking, I don't understand when people tell me my mother is "lovely." Are they being kind, blind, or lying? It's a puzzle.
Also don't let her fool you because she also used to walk and do all sorts of things even with the dizziness for approximately 8 years or so with the dizziness. She only declined after dad had his stroke and that's when the behavior accelerated worse because dad could no longer defend himself.
When mom was admitted to the hospital upon her admittance to the assisted living that's when they discovered and diagnosed her with Severe Major Depression (where she was suicidal and starving herself literally). She was at that time paranoid and delusional and when I saw her in the hospital it was awful to see her mentally unstable at that point. She even grabbed my arm and said, "Come on I'm going home with you." My FIRST response was, "Oh no you're not.... the hospital needs to take care of you first."
My response is still, "Oh no you're not!!!" I can't even stand to be with her for 10 minutes. Literally I go to see them once a week and drop stuff off, and her "good" days are over for now in the cycle and she's starting with the dizziness is caused by a brain tumor crap... before it was throat cancer (tested relentlessly ... NOTHING!) When I drop off, I'm there for maybe 15 minutes. Dad can't hold a conversation and walks off, mom is miserable and figuring out ways she can get my phone number... no way, want no part of it. I can guarantee I do whatever it takes to keep her well taken care of.
Oh yeah, forgot to mention she doesn't have my phone number and the AL has orders not to give it to her because when she was home she called me 15 times a day screaming at me, insulting me, begging me to quit my job, etc and there was nothing wrong. I even told her Friday, "Absolutely not! You are not calling me crying wolf. I'm done. If there's an emergency the staff here is well trained to provide and take care of you immediate and call me if necessary. You are not getting my phone number." All I can say... whoa was she ticked! Too bad.
Oh and when people tell you she's "lovely", that's part of the facade she's made for herself. Trust me my mom has a face for every environment. There are people who have come to me and apologized for believing what they have all these years. They had no idea... LOL (yeah) LOL
Well, thank God there's no brain tumor or throat cancer. Sounds like they have enough to deal with; and you, too. So, (correction): dizziness for 13 years?! That seems outrageous. Doesn't sound like much of a life for your Mom or Dad. What do they think of the ALF? How does your Dad do there with his Alzheimer's? Is he still navigating his way? Does your Mom help him with ADLs? Or does the facility provide assistance? Who does their meds? Is your Mom better to him than to you? Don't know why I'm curious. It's such a sad way to grow old...all miserable and feeble. So sad :( and there's so many like that...
Tell me about how you're getting along with the grieving part of the Alzheimer's and mental decline. I can really understand the avoidance necessary to maintain personal sanity. On the flip side, I have a longing for relationship with my parents. (I mean a healthy one.) It's a natural desire, I believe. And one that cannot be fulfilled. So I quote, "When my father and my mother forsake me, then the LORD will take me up." Psalm 27:10
I relate this to my Mom at times: "Deliver me not over unto the will of mine enemies: for false witnesses are risen up against me, and such as breathe out cruelty." Psalm 27:12 This is not a pretty thought when it comes to a mother. I try to overlook her sharp tongue and haughty look, but I struggle with it daily. (Not in unforgiveness, but due to the relentless battle that rages in her soul against others.) It repulses me and makes me want to flee. So I understand limiting time with an offender. I'm sure they long for us as well, but it's hard to bridge the gap when there is so much angst and animosity present. "The spirit of a man will sustain his infirmity; but a wounded spirit, who can bear?" Proverbs 18:14 Sometimes it makes me cry.
Sorry to end like such a downer, but this isn't the "Count Your Blessings" site. No matter my age, or responsibility, I cannot deny my longing for a loving mother. (And it's painful to admit I lack any good thing.) Thanks for reading such woeful prose.
Sharing DNA does not imply committment, especially when the relative is manipulative. There are also "personality" conflicts that may never be resolved. Some people are just like oil and water.
We should not feel guilty about it.
I did not have a "loving" mother either. In fact, our relationship was pretty warped. I had to learn to "get over that" and realize that the myth of the close mother-daughter relationship is not supported by reality, especially when one of them employs manipulative behavior to get what she wants out of the relationship. It's not a healthy situation for anyone.
You mother is clearly being manipulative - don't fall for it!
Thanks for listening
Dear hapsadgla, sounds like you need to do an accounting spread sheet, and have Mom contribute to your budget, and factor in the cost of the services you provide. Send them all a copy. Are they expecting an inheritance for themselves at your expense? Don't let them bully you. Or, do the handoff, and see if they come up with a better plan. Often they are blowing smoke while waiting for the goodies. Those who do the least complain the most! Take care of you and your family, and find what works best for you, in spite of unreasonable people. You are a Caregiving angel! Take care.
Good points, vividnew and Austin! (Loved the "10 can't care for Mom" observation!) LOL
Dad is adapting just fine. He loves to help people. Its in his nature. Administration just loves him. They said he's so happy and makes them smile and laugh. Dad needed the socialization. Mom kept him soooooo isolated. Dad needs help and guidance in doing tasks, but overall pretty independent. He can't hold a "real" conversation with you, but he's happy. That's all that matters. The ALF takes care of dispursing their meds. They order them and distribute. Makes it nice. Mom is relentless with dad. The medtech asked me the other day, "Does your mom always tell him what he's going to eat?" (sigh) Yep, its gotten worse since dad's stroke. So after some lengthy conversation, they decided to just nod and agree with mom and bring dad a full meal with extras. My dad is 6' 5" and only 168 lbs (high metabolism). When he walks, he can MOVE. He does laps around the facility and the girls can't keep up with him. He needs energy so they are going to make sure he gets it. But to get around mom getting upset they have to say the doctor ordered the extra calories or "Oops, the kitchen must have made a mistake." Its ridiculous to be honest.
Grieving.... hhhmmm.... in the past 5 years my dad had a stroke that lead to Alzheimer's/Dementia (however you want to define it), my mother went into decline and hospitalization into geriatric psych units (twice), I've been thrown into the fire learning about taxes, income, financial planning, taking care of a second house, paying an extra set of bills, legal matters, struggles within my marriage, losing my aunt suddenly earlier this year, and three months ago my MIL... now cleaning out things, receiving things from my aunt's estate, cleaning out things of my parents to some degree, organizing, trying to clean out my own house, my husband taking things in from his mother's estate, and then trying to organize it all.... yeah... I can't say I even feel grief yet.
I haven't had time to just grieve. I cry when I can, and I just do. God has to carry me because if it was me... I'm done. That is why boundaries and being guilt free has become so important to me. I've learned/learning that there are more important things in life. I can get buried underneath this all very easily. If people do not like things I do, too bad. I say it to them with grace and "politeness" but in the end, they don't live my life, I don't care typically. I pick my battles when I need to have the energy, but for the most part I just coast one whatever's left and let God carry me the rest of the way.
Of course I long for a relationship with my parent's but its a reality I realize is not going to happen. So I move on. But lately it feels as though I'm losing everyone and everything I'm comfortable with. Literally in every direction and when I think about it I just cry. Whatever period this is in my life, I have no clue, but by the grace of God I'm hanging in and just doing as I can. Eventually a person comes out on the other side.
Thanks again,
Happy,sad,glad
Chin up and God bless!
Is assisted living an option for your Mom, or, in-home home health care, maybe?
May be good to start looking into those options now while you still have some time. In the interim, it helps to take lots of breaks and slow down. In what ways is your Mom "stronger" when you are not looking?
Sometimes gently saying, "I can only do one thing at a time, and I am a little bit slower," works magic for you as the caregiver, and is something your loved one needs to hear as well. I am never ashamed to admit to feeling that way when I am unable to keep pace as well as I would like to do as a full-time caregiver.
It doesn't get any easier, that's for sure. God bless you in your tireless support of your Mom. Share your feelings anytime. This is a great place to share and to realize that you are not alone in your feelings.
I am probably one of few male contributors to this forum (though I note that many have their partners/wives to pen their thoughts as both are collectively looking after their aged parents/parents in law etc.
I have 3 other brothers (one of them stay with us with his wife and kid) and a sister who lives with her own family but contribute to looking after her mother in law who is 83 and had recently suffered a fall and has multiple illnesses too.
While I am single, I can truly empathize the many stories of the sandwiched generation. While in Asia, there is much emphasis on filial duties etc, we are also seeing many instances of family issues regarding care of their elderly parents.
One thing I did recently when my parents were in a strange way, taking turns to be in hospital, I took to writing down my thoughts and recollections of being brought up by them. I know there are many who have had very bad childhood and growing up years with their elderly - I also had my fair share too but overall, I am grateful for many things too - :
(a) they both, only until recently have had good health - and gave us many decades of independence and freedom to pursue our dreams and careers.
(b) they taught us well - especially of how to look out for each other as siblings (we are quite close knit - and in recent years have been in much more communication about our aging parents)
(c) they both love each other much and also traveled to many places in their younger days
(d) they showed us that even with the most serious arguments or fights, they also make up - they kept the family together in its ups and downs.
I tell my sister that I am grateful for the opportunities to do things for them now - having left my corporate job for a lower paying teaching one - after more than 22 years. I cook for them once a week - and I drive them around whenever they need to for doctors' appointments or our Buddhist meetings or gatherings.
I also dread the eventual end - I pray every day that they will be free of unnecessary pain from any illnesses or falls or accidents at home. They had resisted the suggestion of a domestic helper until recently - as I explained that I would not be always available. If and when I do have activities to attend, such as dinners or dates or the gym, I will inform my siblings so that some kind of arrangements can be made to ensure that someone is at home, until our domestic help comes in.
Just some thoughts to share - we are different yet we are the same - in dealing with the cycle of life. Take care !
We welcome the men to this sight. It gives us hope and another perspective. You are very fortunate to have siblings who help and care for your parents. Most of us have experienced the opposite. Keep writing as this site has been a blessing to all of us.
Linda