Hello, all!
Lealonnie and her husband are traveling to AZ today, to begin their journey at Mayo.
Her husband will be receiving a liver transplant.
She has given me permission to begin a thread here.
Please pray for their safe travel, and for all to go well.
She’ll pop in as she’s able, and give us updates.
Admins, would you please move this to discussions? I can’t seem to figure out how to do that.
If they are there on vacation they should be gone after a week. If not perhaps they have a medical or personal crisis going on.
You can ask to be moved to another room in the development, but my friend in hospitality tells me there are only so many rooms for people with pets.
I've asked you to stop commenting on this thread, and you're still here commenting. So I'll ask you once again to please STOP commenting on this thread. Thank you.
The same goes for this Marriott. If you went to management and they said they’d talk to them, well they may or may do that in the time frame you wish. But fact is that your dog is just someone else’s dog to almost everyone too. That’s why I pointed out that they put the pet people together.
I am advocating in this situation that you be compassionate about it.
It is irresponsible and cruel to put these dogs through the trauma they are feeling to behave as they are. There is no excuse and I am happy to hear that the hotel is dealing with it.
I am so sorry that you guys have been subjected to this during a time when you really need peace, quiet and calm.
I pray that The Lord touches Chucks body and heals him from everything that is going on.
PeggySue, I am ASKING you to stop commenting on my discussion thread which has to do with my caregiving journey with my DH and his liver transplant. Obviously I can't 'make' you stop leaving argumentative comments that stress me out further, which is why I'm ASKING you to stop. If you insist on leaving more comments, I'll just ignore them and you from here on out. What I need is support and decency right now, nothing else, period.
Every single person here, Lea, is dealing with some loved one in a stage of medical and emotional crisis that affects the whole family. The fact that it’s you makes your situation like everyone else’s in that way, and most everyone else is not demanding that they hear only what they want.
You keep using the term animal cruelty. As someone who worked in an agency directly enforcing animal cruelty statutes for a decade, persistent barking in and of itself is not anywhere NEAR animal cruelty. It is a nuisance matter. You went to your Marriott to request that the nuisance be removed.
Thats fine. It’s also fine if you really don’t care that this other family may have an excuse for it, such as having to keep a deathwatch vigil on hospice. Or being the family of a potential donor on life support. Whatever the reasons they may have, it’s a valid argument that it’s not your business.
Its not your biz either to pontificate that the dogs MUST be neglected or abused because their behavior annoys you. Fact is you don’t care what the family circumstances are, but you’re purely speculating that they must be bad dog parents publicly regardless..
Own it.
I so hope you get home soon. There's no place like home.
Thank you, God, for giving our friends a must needed rest for a few days! 🙏💜
I have a suggestion for your husband's meds that has worked for me. I made a chart with ten meds listed alphabetically per page, with columns labeled Morning, Midday, Evening, Bedtime and in those columns the number of pills he gets per med. I size this chart to take up the full page. I have the pages printed out. When I fill his pillboxes, I go down the list, one prescription bottle at a time, moving them from the left side of the table to the right side as I fill each slot. Then, each time I give him his meds that week, I empty the slot and place each pill on the chart. If I have missed a pill, the number in that column will be uncovered, so I know I need to get that pill. Or if I've got a pill I shouldn't have for that time period, I'll see there is no number on the chart and I can put it back. Since I have four different pill boxes (instead of one of those nice big all week boxes), I also color coded my chart to match the color of the pill boxes.
I think my system is easier to do than to describe! However, if something happened to me, someone else would be able to do his meds for him easily enough I think.
Caring Bridge Journal Entry
1:00 pm
Chuck had 3 appointments today; labs, an RN visit & a doctor visit with Dr Mayo. His numbers are looking great to the point where his Friday RN & doctor appointments have been canceled! He has a lab visit only on that day to make sure his bloodwork is still on track, and that's it. Dr Mayo told us to enjoy the rest of that day OFF, which we're totally on board with.
If the EMG nerve test doesn't show anything horrible going on, Chuck can get physical therapy back home for his drop-foot issue which seems to be improving with the use of the boot and walking. His last scheduled appointment here in Arizona is on June 3, and barring nothing going wrong in the interim, we will be discharged from the Mayo Clinic and given over to Kaiser care back in Denver meaning we can GO HOME! We would be very happy to do so, although the prospect of leaving the cocoon of safety & efficiency here at the Mayo is a bit scary. We'll take things one day at a time in the meanwhile, however, and enjoy our remaining time here. It's comfortable and we're in good hands here, which is all that truly counts.
The weight loss has stopped for now and Chuck is back on the upswing!
I posted a photo of him at our kitchen counter eating and looking pretty darn good! He's also back to using his outside voice which is very loud and booming and surprised our support group when he hollered for Honey! 🤣
Update:
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4:30 pm
Things have taken a turn for the worse today; Chuck is having some swelling above the staple line on his incision and a few other issues like pain in his kidney/lower back area that is sending us back to the ER right now, per Dr. Aqel, the director of the transplant department here at Mayo. This is the last place he was expecting to go today..........😟
I will keep you updated as we find out what's going on. Please send prayers that this is just a minor hiccup in his recovery.
Delia had been warned ahead of time that she was looking at a year of recovery, and of ups and downs, and that's about what it took, but she did it, and that in her mid 70s. So much admiration for the woman.
Sorry for another bump in the road. Relieved it happened before discharge and long trip home. Thinking of you and waiting your updates, and thanking you so much for keeping us informed!)
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9:00 am
DH was admitted to the hospital this morning at 1:00 am. A CT scan with contrast revealed bilateral pulmonary emboli (2 small blood clots in his lungs) and he's also constipated. I knew something was wrong, just not WHAT was wrong, exactly. An ultrasound was done on his legs at 3 am to see if DVTs (deep vein thrombosis) were going on in his calves, and there are NONE, thank God.
The doctors are not sure if the recent Predaxa blood thinner is to blame (given to him for the huge surface blood clot in his forearm) in that it's not working properly, or what. So they're holding off on giving it to him for now while they come up with another treatment plan for him.
He's aggravated to be back in the hospital with another setback, and being on prednisone is not helping his mood, to be honest. Steroids are never helpful to anyone with mood swings and temperament, only with helping keep the inflammation down and keeping the new liver from rejecting. Taking so many drugs is a difficult thing for DH, who's never taken medication in his life aside from a statin and a small dose of a heart med after his triple bypass in 2020.
I'm on my way to the hospital now with his CPAP machine and his tablet and some encouraging words to get him over this hump.
I'll update when I have news to share, hopefully all good.