Everything I am and everything I have is disappearing into that black hole. My happy life with my family: my husband and my three children; all my hopes and dreams; and everything that I was: empathetic, compassionate, and patient, is being sucked in, never to be seen again. I tried so hard to do the right thing by her... and all I feel now is resentment welling up inside me like bile coming up the back of my throat.
I don't want to put her in a home. I know that that will be the end of her. But if I keep her here with me it will be the end of me. I can't pretend to be the strong resilient one anymore. It's starting to take a toll on my relationship with my husband and my children and, I never thought that that would be me. It's only been a year since she moved in and I'm at the end of my rope already.
I'm posting this because I just want people to know that if you feel this way too you're not alone.
thing going on and you can be more free!
If you know what I mean, we don't "owe" anything to that parent. Most of us already spent a lifetime catering to that parent at great cost to our own lives so any "debt" some people think everyone (wrong, not everyone) has to their parents is more than cleared.
We need all our energy now to heal ourselves so we can finally have an ounce of mental peace before we die. (and as some of us know, that fight to make ourselves feel worthy is a 24/7 nightmare)
I don’t have any idea if this sucking the room behavior is who your mom has always been or a new thing either in her aging process or perhaps since moving in with you and it could be a combination but if it’s partly who she’s always been she’s going to be just as happy anywhere she has people to take care of her and professionals who don’t have the emotional baggage are going to be much better at it anyway. Is what situation is doing to you, your family and her what mom would have chosen 10 years ago, crystal ball type vision?
Maybe whatever the angle your mom (not just you) would be better off with non related professional caregivers and access to her peers around. Maybe it isn’t ideal and maybe it will shorten her life but maybe that isn’t as bad a thing as it feels to us their children. Especially if it increases their quality of life and I consider repairing relationships an important part of that, we often seek to repair strained relationships at end of life. I know I would much prefer to pass happier than older and my families happiness contributes to mine. While your sanity and happiness is certainly intertwined, stop thinking about it solely that way. Maybe a change in the current situation would be better for mom too, enabling you to go back to enjoying your time with her, your kids to Create happier memories and mom as well in return. Again I don’t know all the details and I absolutely understand the gut that says you need to keep her home to live out her life but your home isn’t really her home, I mean the one she had her independence in and in some ways not living with family May give them back that independence of their own home space but even if it doesn’t I don’t think it’s always the case that a parent moving into their child’s family’s home ever really considers it “their home” and if they are moved to a facility when they ask to go home it isn’t their child’s home they are thinking about, it may be their childhood home, the home they raised their children in or the last one they lived in with a spouse or by themselves, we just assume they mean the “home” they last lived.
Just food for thought, there are many other factors I know to deciding where a parent needs to or can live, I just don’t want you transferring her needs into guilt about your unhappiness. Hang in there.
As a caregiver one of the things you need to do is take care of yourself first. I include personal safety, emotional safety / mental safety in that.
As an adult you also have to take care of your family.
Yes your mom is family but you left your parent's household and started your own. (cue Circle of Life music) This is the family you have to care for first.
Place your mom in Memory Care.
She will get the care she needs.
She will be safe.
You can become a daughter first and an Advocate second and lastly a caregiver.
By the way I bet there are a lot of caregivers that feel this way but not a lot either admit it or are able to put it into words as descriptively as you did.
You don't know that that would be the end of her. In fact I very much doubt it. Many seniors survive quite well in "homes".
Anything, and I mean anything, that will be the end of you has to be changed.
Anything - even looking after your mother in your own home.
Anything - especially something that is destroying you and your marriage and your family, who deserve to be your first consideration.
Please get some help for yourself regarding your pain and your priorities. ((((((hugs)))))
My mom was going to a day program at a large assisted living facility until the Covid-19 shutdown. If you can find a day program, it will give you a little bit of a break. Plus, you will only need to feed her dinner and deal with the complaints about food only once a day.
You are not alone.
My mother does not have dementia or Alzheimer’s, she is very much in control of her mental faculties, which are selective and able to instantly be adjusted as per specific situations and those who are present; the only thing that is consistent is the unfavorable results her actions have on me. She knows exactly what she does, she is a professional victim and master manipulator. That makes it worse and has prolonged me from getting away from her because I just cannot believe why and what she does , I am her daughter! And that does not matter a damn to her, and she will continue to destroy me if I continue to let her. It is and has been a losing battle for years, one I will never understand other than understanding that I have a choice to let it continue by staying, or choosing what is best and getting away from the situation. We can only control and change ourselves , please do not waste all the time I did feeling guilty or making excuses, see things for what they are listen to your mind and body. And to the wonderful wise amazing family embracing you here on this forum and go forth my friend.
susan xoxoxo
She is narcissistic, negative, judgemental and mean, yet she sees herself as a wonderful person.
I've pretty much "toughened up" around her ... Definitely lost any compassion towards her. No JADE has become my mantra (justification anger defensiveness explanation) I take care of her needs but try to distance myself from her emotionally.
Good luck to you and although I don't usually post, thanks to everyone on here, you help me know I'm not alone!
I hope you know that it's not you, that it's the situation and that virtually everyone would respond similarly.
I got really sick in February and thought I had COVID and could die and all I could think was that I was so angry at myself for wasting the last twenty years of my life caring for someone who is literally impossible to please. That was a wake-up call.
You deserve a life.
But, listen, you've identified what your caregiving is doing to your life, your dreams, your relationships. We all reach our limits of caregiving. Accepting that responsibility does not mean sacrificing your life and your family's. If you continue, who's going to be your caregiver? Your devotion is exemplary, but your first commitment is to your family, or more specifically, to you!
None of us have taken any courses on caregiving for someone with AD. It's thrust upon us and we deal with it. No manual, it's all OJT.
Yes, your mom will eventually pass while in a care facility, but she'll eventually pass while at home also. Yes, you'll feel guilt in placing her, but you'll also feel relief in knowing that she's someplace where she's lovingly cared for. Remember, relieving yourself of this onerous responsibility and knowing she's safe, you are taking care of her.
God bless.
Im not a kid anymore, I can put her in a good place and myself too tho that won’t be together. She’ll never be satisfied and I have to be at peace with the mother God gave me. Good luck in this very important decision, I know you’re strong enough to make it. You’ve already made it this far where most may not :)
Place her somewhere convenient for you, but stick to a visitation schedule.
No more sucking! It's time to enjoy life, girl!
...If you find you can't move on, it's therapy time.
I also wonder if women are typically harder to deal with in old age, regardless of dementia. Emotions rule my mom and the biggest effort is breaking through them with logic. I don't live near her but am always on-call for remote help, etc.