My sister is mid-stage AD. My daughters (17 and 23) live with her in her house and manage daily life, etc. I work full time, my older daughter stays home with her and goes to an online school, and the younger is still in high school. My niece and nephew help by handling finances and stepping in for respite. Legal arrangements were made with my sister's input and approval when she was first diagnosed 3 years ago. Now, she is becoming delusional and is very angry we won't let her go spend time with her male friend who lives several hundred miles away. I suspect she is complaining to friends and neighbors who know she has AD but may still believe her. I've spoken with those people, but one couple in particular feels we are too controlling in her life and encourages her delusions, as does her male friend. Anyone else have a similar problem? Any advice?
so many people do not understand ad and the things that can take place for a patient. my mother too was delusional but don't think she ever experienced hallucinations. Of all people my podietrist completely understood what i was going through i almost fell off the table. he's a good wise smart man.
"Thanks for your concern and interest, Neighbor. I'm so glad that Sister still has her old friends in her life. You may have noticed that the AD is progressing. We need to make decisions in her best interests now. I'm sure we won't always make the right decision, and we'll probably never know in some cases what was "right" or "wrong." But I assure you that every decision is made in love and wth Sister's best interests at heart. If you have any insights into Sister's situation, you can call me at any time. Thanks for caring."
If Neighbor wants details and expects you to defend your decisions, "I'm sure you can appreciate the need to respect Sister's privacy. We keep all medical details within the family."
I'd only have these conversations with the people who appear to be encouraging delusional thinking.
Just out of curiosity, why isn't Male Friend coming to visit her, instead of expecting her to travel?