Being overwhelmed by feelings of incapability and personal efforts not being good enough. What has helped you?

We could all write a chapter for the book of “things we should have done better” I could probably write several. Start with forgiveness, for yourself. Acknowledge your mistakes, give yourself forgiveness or ask for it from God, and resolve to move forward. None of us changes a single thing ever about the past, today and tomorrow are what’s important. Getting mired in what’s already done only makes today less productive, you’ll be less good to your grandmother today by being stuck on what’s already occurred. One thing for sure, your grandmother will die, we all do, it’s not an option for any of us, making it all the more important to move forward spending the time you have enjoying the now with her. And know that seeking therapy for you and more help for her are both good options. I wish you peace

One of the most important brain shifts I ever made for myself was that when we are caring for someone who was a viable living being for a long time and then became reduced in self care capacity by dementia, THERE ARE NO GOOD CHOICES.

As Gran becomes more dependent on you, you will need to makes the best choice of a bunch of all choices. And when you do that, as we all do, you will put guilt aside, figure out the best choice you have for her, and make that choice, based on love, compassion, and what she needs to remain as safe and as secure and as comfortable as you are humanly able to do.

It’s SO EASY to FIND life as a caregiver becoming overwhelmed with the beautiful memories of the times you spent with Gran when she was well, then returning to the realization that she is who she is today......and these memory trips are NOT HELPFUL to you or to her. Stay in her present. What is she able to do NOW, independently or with your input, that gives her satisfaction and contentment, is the best you can do for her.

GUILT. It’s an impediment, NOT a motivator, or encouraging, or improving one single solitary thing in her life, and DEFINITELY NOT in YOURS. We all feel it at one time or another, but you have a RESPONSIBILITY TO YOURSELF to stop it in its tracks by first acknowledge that you and everyone experiences it and the BEST CAREGIVERS corral it and MOVE FORWARD.

Good For You for asking for help. Now, place passed mistakes in the past,
as relics, and use your creativity to design future positive strategies for your LO AND FOR YOURSELF.

Trust me, you’ll find lots of them, and they’ll be much more useful than memories of what you could have done, and didn’t!

I'm so sorry you're going through this.

I've read your profile, and some of your responses, and you know, I have to say I'm a little annoyed with your dad in all this. You say he's "mellow" - I say passive-aggressive. I'll bet when you dip your toe in the water about getting some sort of outside help for grandma, he either 1) shrugs 2) makes non-committal noises 3) shuts down or 4) some version of these.

There's times to be mellow in life. But there are times when you have to grab the bull by the horns and be proactive. For the love of Pete, you say she's had surgery for at least one amputation! What is he waiting for? This is not a situation that's going to get better! As time goes by she's going to need more and more care - what is he thinking? He can foist it off on his daughter? So he doesn't have to be the bad guy and say "ma, it's time to talk about a care plan that involves non-family members who are professionals and better able to see to your needs." No wonder you're frustrated! And as far as you not having enough empathy for grandma, what about the other adults in the house having empathy for you? !?

Listen, I get the feeling of not being good enough (hence my board name)! I totally get it. I'm taking care of my mother, and, comparatively speaking from a caregiving point of view she's pretty easy. But I still get frustrated as heck with her, and I'm way older than you. I have come to realize that it's the situation I'm frustrated with, but since I tend to feel that way when she's right in front of me it comes across as being frustrated with her. Once I realized that, I was able to deflect my feelings somewhat. Don't get me wrong. I still get the feelings, and often I direct them in her direction, but sometimes I can catch myself and redirect the thought process.

But one thing I will not do, is expect my kids, both of whom still live at home, to "step up" and take on the lion's share of caregiving. Sure, sometimes they help out, but I make sure they know it is absolutely not their responsibility. And my mom feels the same way.

You've done nothing you need forgiveness for. In my opinion you've done more than anyone should expect a grandchild to do. Instead of feeling guilty about the things you feel you haven't done, feel awesome about the things you have done for your grandma! If no one else has said it to you, I will - your dad and grandma are lucky to have you!

Good luck! My best thoughts are with you!!

IssahN, as a grandchild you are way too young to have this responsibility "assumed" onto you (even if you are in your 20's or 30's). It's not your imagination that you are feeling overwhelmed. You ARE doing the best possible, given the circumstances. Everyone who is not a professional caregiver has gone before you in this regard, to varying degrees of results (notice I didn't say "success", just results, outcomes).

The quote you included sounds nice but was probably written by someone who never was a de facto caregiver. Some things for you to ponder:
- everyone is mortal, everyone dies at some point, some sooner, some later.
- you are not "bound" by anything, not obligated, to provide the care. You are *way too young* to tie up your life in it, as it will only get more intense as your gramma declines. Even though you love your gramma, you are not the best person to provide the level of care she needs.
- it is the responsibility of EACH PERSON to realistically and adequately plan for their age-related care. Adults are perfectly capable of doing this and choose not to. As I said above, no one gets out of here alive. Everyone knows this.
- for some problems there are just no perfect (or even good) solutions.

Sometimes people slide into, or are slid by others, into caregiving roles. I'm the granddaughter of immigrants. The generation above me is appalled that I was considering transitioning my 2 unmarried, childless aunts into a care community.

There may be many reasons your father isn't transitioning your gramma into a care community:
- tradition
-F.O.G. (fear, obligation, guilt)
- language barrier
- money
- her expectations/resistance to change
- you are a convenient and cheap alternative that satisfies all of the above

I strongly encourage you to come to peace with the fact that you cannot provide enough care for her no matter how much you want to, therefore your father must help solve this problem.

If you could provide more details about your situation, it would help the forum support you with insights, information, resources, and guidance on next steps. I wish you all the best -- give us more info and progress reports: we are here to help you!

As a grandchild, your 'responsibilities' for caring for an elder are MUCH different than those of a child to parent.

Do NOT beat yourself up over what you may have done differently. I am a grandparent and MY expectations from my grands are pretty low-bar. They are mostly pretty young and at this state of the game, I just enjoy them and the cuddles (from the littles) to shopping trips and fun talks with the tweens. I don't expect, as I age, for my grands to be involved in my care at all. I really don't even expect my KIDS to do much.

All your grandma wants is some time with you and to know you love her. Asking my sweet g-ma once, what could I possibly do for her to repay her unconditional love to me and she said "Be good to others, watch out for your kiddies and their kiddies".

I don't think she was trying to be saint like. She was just right.

There is an Essay by Robert Hastings titled The Station that I love and one of the lines in the essay is...
It isn't the burdens of today that drive men mad. Rather it is the regret over yesterday or fear of tomorrow. Regret and Fear are twin thieves who wold rob us of today.

Look back if you must
But do not second guess yourself.
Given the information you have you are making the best choice possible.
Can you honestly say that you would make a poor choice when it comes to anyone's care? A parent makes the best choice when making decisions for their child, as caregivers we make choices based on what we know of our loved one and what they would want.

As a human we sometimes doubt our choices. Don't doubt.

She will die, no one lives forever. The best thing you can do is make sure she is well cared for, well loved, not in pain.
And I have to add this..simply because it is me ..
Have you consulted Hospice to see if she is eligible?
With Hospice you will have a team of people that will help you and guide you.
A Nurse will check on her weekly.
A CNA will come in a few times a week to help bathe, dress, change bedding, order supplies.
A Social Worker that you can talk to about what's going on with you, the family and grandma.
There are others on the team and they are all there to help you and the family.
There are 2 types of Hospice For Profit and Not for Profit. The one I chose was Not for Profit and I could not have been more pleased. They helped me care for my Husband for almost 3 years. I could not have done it without them (and the VA)

Rest easy you are doing a good job!

Where is your Dad in all of this. He should be doing the bulk of the caregiving and should be helping around the house.

I am an RN with a lot of experience in critical care. Let me share a little of my experiences with patients. I have had patients that we provided letter perfect care to - who ended up having poor outcomes. It was nobody's fault that their bodies, minds, choices... did not lead to better health. I have also cared for patients that mistakes have been made - every care provider is human and we are never perfect. Some of those mistakes should have lead to terrible outcomes, but those folks actually thrived and walked out of the hospital, despite the mistakes.

I have come to see that my responsibility is to provide quality care and to leave the results in God's hands. I try to provide a good environment for health or healing, but only God can make bodies heal.

For me, I’m still accepting that the past is the past, you can’t change it. What you can change is the way you move forward today and tomorrow.

I feel so much guilt for a lot of different things. I also feel I’m not allowed to feel stressed or burned out because I’m the one that decided to do this all by myself. Quit my job (that I loved) and be my mom’s full time caregiver (whom I love more)...that’s 24/7 with no breaks for myself at all.

I have doubts too at times, should I have not quit my job and hired a full time caregiver instead? (that would have been about 12 hours per day Monday thru Friday) and that caregiver would have cost more than my weekly paycheck! Or pay for an Adult Day Care and a part time caregiver? That could have been possible...but then while I’m at work the constant worry of a stranger picking up my mom and doing things with her...Or maybe not, treating her great or maybe not? So I’m in financial worry.

I’m struggling with my physical abilities during the day bc my mom gets up to urinate throughout the night and it’s extremely tough to get her back to sleep which = no sleep for me either.

I’m struggling with my self emotionally because watching my mom deteriorate before my eyes everyday is one of the toughest things I have to endure.

I’m struggling mentally as well, why is this happening to her, why me? It’s all out of my control and hers as well.

I’ve researched and read all about Vascular Dementia (which is what the Neurologist states my mom has) but it still wasn’t enough. Went over & over her MRI results on her Multiple Strokes and the different parts of her brain that are affected. One part was Occipital - she has field vision loss, the guilt I feel now, when before I used to get mad when she bumped into things, it wasn’t because she’s clumsy but because just doesn’t see them! Another part of her brain that was damaged was sensation & pain, now I understand why it’s so dramatic every morning when I need to test her sugar because she does feel way more pain than it really is. Another part of her brain that was damaged was reasoning & judgement, can’t tell the difference between a commercial and show, when I ask what do you want for dinner? chicken or fish, she’ll just repeat chicken or fish, What crayon color do you want red or blue, she’ll repeat red or blue, is unable to decide (this is with anything). And some memory issues more with remembering what I just said now vs remembering the past. There are great days and not so great days.

How I try to deal with it all; daily exercise and eating healthy for the both of us, fresh air outside tho we are limited to going out to places bc of Pandemic now. Arts & Crafts keeps both our minds busy, music playing gently in the background. Get washed and dressed up everyday even if not leaving the house. Message her when she feels a cramp, brush her hair, hug & kiss her. Dance. Always Dance. Even when seated;) Prayers before bed.
And sometimes just breathe, slowly...in and out.
I’m only human and so are you.

God bless you for all you are doing and all you have done already.

My dear, I am so glad my words were able to give you some feeling of peace.

So now you need a plan going forward. You are where you are right now. You can't change the past; all you can do is try to come up with a plan for the future that doesn't seem so bleak to you. I'm going to try and give you some ideas, see how they sound. Feel free to use them if you think they will help, or not if you don't...

In a moment of calm/peace, sit down and make up a list of ALL the things you do for grandma. And I mean everything, even the things that don't seem like they directly contribute to caregiving: cleaning, going grocery shopping, etc. If there are things on this side of the list that you feel are starting to overwhelm you, highlight/check them off. Do that on one side of the paper.

On the other side of the paper: make a list of ALL the things grandma MIGHT need in the future. Everything you can think of, even things that seem "worst case scenario". Then go over this half of the list and check/highlight anything you would be willing to do on a regular basis. And be objective. DO NOT start checking items out of guilt, or things that you would do once or twice in an emergency. I'm talking about day in/day out care.

Sleep on it. The next day, wake up and review it again and make any changes.

Then sit down with dad and give him this list. It MIGHT be he's not even aware of all that's being done or might need to be done.

You can have a calm, loving, adult to adult discussion with him. "Dad, this is what I do now. The things I checked off are the things I'm starting to struggle with doing. (Point to that side). This is where I see grandma's care going. The items I checked are the ONLY ones I am willing to take on additionally. (Point to the other side). What are we going to do about all the rest of the items? We need a plan that involves outside help"

Here's the hardest part of the equation: if he agrees to outside care, but doesn't actually go forward with making plans for it, you have to stick to your guns and NOT do those things you said you wouldn't. Trust me, that's harder done than said. But hopefully with "evidence" in front of him, your dad will get on board and get some outside help to come in.

Good luck!!! I'm rooting for you!