My MIL lives with me and my husband. She sleeps all day... sometimes gets up between 4 and 7:00pm. We try to get up her; but, she will end up going back to bed. She can dress herself with assistance; she can feed herself.... with minor supervision - we have to tell her where to pour the milk and make sure she takes her medicine as she doesn’t know what to do with it ; and she can bathe herself - after she is finally ready. (When we tell her it is time to take a bath, my MIL suddenly become overcome with exhaustion and get back in the bed). After having her breakfast she will frequently go back to bed. Or she starts her “sundowns”. She will have an urgent need to leave the house and hail down any passing person. Or she will stand in the yard yelling for help. She frequently says that we should call the police. A few times they have arrived. She will immediately flirt with them. Her cognition abilities have definitely decreased and you cannot have a conversation with her. Also, her balance is also becoming an issue.
Thank you for any insight.
I never found the 'stages' 1-7 that useful. People can vary so much in the day, like you described. That's why Teepa's *gems* sum it up better for me.
Mild/mod/severe is ok when dealing with hospitals. Mild being still driving, living alone ok-ish. Severe being hardly talking or walking. Moderate being everything in-between.
Every person with Alzheimer’s experiences the disease differently, but people tend to experience a similar trajectory from the beginning of the illness to its end. The precise number of stages of Alzheimer’s is somewhat arbitrary. Some experts use a simple three-phase model (early, moderate and end), while others have found a granular breakdown to be a more useful aid to understanding the progression of the illness.
The most common system, developed by Dr. Barry Reisberg of New York University, breaks the progression of Alzheimer’s disease into seven stages. This framework for understanding the progression of the disease has been adopted and used by a number of healthcare providers as well as the Alzheimer’s Association.
Here is a summary of the seven stages of Alzheimer’s based on Dr. Resiberg’s system:
Stage 1: No Impairment
During this stage, Alzheimer’s is not detectable and no memory problems or other symptoms of dementia are evident.
Stage 2: Very Mild Decline
The senior may notice minor memory problems or lose things around the house, although not to the point where the memory loss can easily be distinguished from normal age-related memory loss. The person will still do well on memory tests and the disease is unlikely to be detected by loved ones or physicians.
Stage 3: Mild Decline
At this stage, the family members and friends of the senior may begin to notice cognitive problems. Performance on memory tests are affected and physicians will be able to detect impaired cognitive function.
People in stage 3 will have difficulty in many areas including:
Finding the right word during conversations
Organizing and planning
Remembering names of new acquaintances
People with stage three Alzheimer’s may also frequently lose personal possessions, including valuables.
Stage 4: Moderate Decline
In stage four of Alzheimer’s, clear-cut symptoms of the disease are apparent. People with stage four of Alzheimer’s:
Have difficulty with simple arithmetic
Have poor short-term memory (may not recall what they ate for breakfast, for example)
Inability to manage finance and pay bills
May forget details about their life histories
Stage 5: Moderately Severe Decline
During the fifth stage of Alzheimer’s, people begin to need help with many day-to-day activities. People in stage five of the disease may experience:
Difficulty dressing appropriately
Inability to recall simple details about themselves such as their own phone number
Significant confusion
On the other hand, people in stage five maintain functionality. They typically can still bathe and toilet independently. They also usually still know their family members and some detail about their personal histories, especially their childhood and youth.
Stage 6: Severe Decline
People with the sixth stage of Alzheimer’s need constant supervision and frequently require professional care. Symptoms include:
Confusion or unawareness of environment and surroundings
Inability to recognize faces except for the closest friends and relatives
Inability to remember most details of personal history
Loss of bladder and bowel control
Major personality changes and potential behavior problems
The need for assistance with activities of daily living such as toileting and bathing
Wandering
Stages 7: Very Severe Decline
Stage seven is the final stage of Alzheimer’s. Because the disease is a terminal illness, people in stage seven are nearing death. In stage seven of the disease, people lose the ability to communicate or respond to their environment. While they may still be able to utter words and phrases, they have no insight into their condition and need assistance with all activities of daily living. In the final stages of Alzheimer’s, people may lose their ability to swallow.
Who would ever get diagnosed with stage 1 or 2 though? That's what I find a bit funny/weird. (Hope I'm still a 1..)
Positive Approach® to Care, strives to educate, support, and train others in strategies that work for dementia care.
My husband has stage three Alzheimer's. Mostly good days, but we will be moving this fall and his mood will change, until he becomes accustom to our new living arrangements. I'm fully prepared for this, being we have done this once before. As long as he knows I'm here, he seems to get over the disruption after a few stress filled weeks.
This is a good video. Explains the progression of AlZ. My Mom was diagnosed with Dementia but she pretty much went thru the same stages.
Positive Approach® to Care, strives to educate, support, and train others in strategies that work for dementia care.
It sounds like your MIL would benefit from Adult Day Care. A reason to get up and get going, a routine that she can count on. A routine is very important and can help prevent some depression and anxiety. She would get more socialization and remain active longer. And you would get a break as well.
Actually when I see her micro managing things; I know that her anxiety is boiling below the surface.
Also have Mom-in-law checked for an Urinary Tract Infection. Sometimes such an infection can mimic mild Alzheimer's/dementia. Thus if Mom-in-law does have an infection, when treated she may [or may not] calm down some of the things you are seeing. It's worth checking out.