My mom has had dementia for three years she is now bedridden and is semi conscious she has to be fed and cared for in every way. Hospice thinks she's dying now the doctors has ordered to stop feeding her even though she eats without a feeding tube is this legal?
I learned that the body, when dying, doesnt really need food. However, patients may ask to eat, thinking they are feeling hungry when possibly feeling discomfort in the abdominal area. Depending on the condition of Mom's body, feeding her, even small amounts, will prolong the time until the inevitable end of life. Also, the body does not process food well which raises the opportunity for constipation, possible impaction and the very unpleasant possibility of the nurses having to assist your Mom to have a bowel movement.
This is all so very foreign and difficult, I know. That is why I urge a full conversation with the doctor on exactly what he sees and what he is thinking. Also, if you have hospice nurses, they are wonderful at taking all the time you need to answer any question you have, however many times you need to ask it for reassurance that you are doing right by your Mother.
If, after you have all the information you can gather, you still choose to give Mom small amounts of food when she asks, I would feed her: again being sure there is no problem swallowing, which could lead to aspiration or medical complication of which you are not presently aware.
As for the "legality" of stopping food, only an attorney can answer for sure, but I would strongly believe the doctor is not going to order anything for which he would be criminally liable. His order may actually be an act of kindness if your Mother is truly near the end of her life. Having witnessed a prolonged, slow dying process with my own Mother, it was agonizing to watch her literally whither away until her body was simply unable to sustain life.
It is a devastatingly hard process for both the dying and the one who loves and watches. Good luck to you both. You have my very best wishes.
If this was my mom, I would like logical reasons as to why they would stop feeding her when she is eating on her own. It took the NH many different ways to get her to eat. Mom lost 25 pounds when she was not eating. ( 125 down to 99.) It just the psychological set back she was having.
Although, when you know you are dying your body is shutting down eventually and hunger is not on your mind. But until then it's cruel to not bring them food if they can eat on there own.
Equinox
Yes, talk with the doctor for answers, but don't be afraid to challenge him & his assumptions, etc.
Please let us know what happens. You're in my thoughts and prayers.
I was told by several posters that mom was close to the end. Although a part of me denied it, I called family members on island to come and verify if mom is really bad off. I figured I was too close to the situation to be objective of mom's health. sure enough, sil took one look at mom and her body, and told me that mom would not last the end of the week.
The thing is, we had difficulty after that getting hospice service because the doctor needed to see mom in order to get hospice. We, the family took one look at mom and decided she's too weak to take on the ambulance roundtrip. We did our best to get around this requirement - And Failed. So, I had to Google on dying processes, etc... We siblings were "winging" it on our own. (I am soooo angry with both hospice and the doctor. My doctor of a different insurance said that if mom was his patient he would make an exception to do housecalls. It's the quality of life of mom that was important. Hospice could have sent a nurse over to evaluate mom and then speak to mom's doc. Both hospice and doc refused to compromise. We even went to adult protective service for help in this. Mom died while going thru the red tape.)
Since we were winging it, we siblings decided to continue to feed mom. But we only fed her as long as the nutrient went down the tube. When it stopped moving, we stopped feeding her. And yes, the 1/2 can got down to 1/3 only. We continued to feed her, and she did continue to poop liquidy. Until she finally died in her sleep. And yes, even with the 1/3 can, mom continued to quickly get skinnier as the days go by.
In the end, I think it would not have mattered if mom had her nutrient drink or not. But, for us, to NOT feed her was like starving her. We fed what she can take in. In the end, with mom passing away, not one of us siblings were left with any guilt that we had "starved" her. But mom is different from your mom. My mom could not talk or tell us that she wants to eat. We just fed her 3x a day and only what her stomach would allow.
I think, as long as your mom can eat and still swallows the food, then feed her. I've read enough posts here that when their loved ones reaches this state, they still eat but less food. Eventually, they will refuse to open their mouth for the food. Then it's time for liquid. When she starts choking also on the liquid, and she has a DNR, then your only options are to ignore the DNR and insert the stomach tube or respect her wishes, and let her be. Her body will continue to shut down either way. Stomach tube will prolong her suffering (body slowing down). Or she can die naturally. Sigh.... HUGS!!! to you. Sincerely, Book
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