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Mopey, I have quite a lot of familiarity with lymphedema secondary to breast cancer, but little expertise in other types.
Can you tell us specifically what this lymphedema you are dealing with is secondary to? You have posted under "cancer" and so I will assume we are speaking of involvement of arm and underarm on one side related to removal of lymph nodes.
As with all medical questions, this one goes first to your doctor. We are a forum of strangers who are not familiar with you or your case. I can tell you that overall it is a shooting match who gets this and who doesn't after the removal of nodes in the case of breast cancer. There are compression garments that help, but more than that many have VERY GOOD results with specialized massage by a specialist from PT who is trained in methods to work with this condition. You would need referral from your doctor. My first cancer surgery, a right mastectomy 35 years ago, I had two positive nodes so they removed a total of 14 nodes. It was sheer luck that I escaped dealing with any problems with lymphedema (which at best can be quite uncomfortable). I will be having a lumpectomy on left next week, and will not have to face lymphedema because I won't have nodes removed at all. I at 81 will no longer accept chemo or radiation of any kind, so removal of nodes for examination would be moot.
I wish you good luck. Start with your doc. Explain your pain, why, where, how much and what helps (raising arm, etc). Ask for referral to specially trained expert in lymphedema therapy.
I'd reached out to the National Lymphedema Network for a friend who's son is in a nursing facility and not receiving specialized care. I can't find the reply but remember the respondent saying most people aren't adequately treated. I hope you'll find something useful on their website at lymphnet.org/patientinfo.
My husband's good friend has bad lymphedema in his leg brought on by lymphoma cancer and a LOT of treatment. Its very painful for him and constantly causing infections, even into the bone, where leg amputation has been considered.
My stepson is a wound care nurse and treats several patients with lymphedema. It's a very painful situation to be treated for, since swelling from all that excess fluid stretches the skin to capacity. I don't think you're alone with your suffering.
Here is a link to an article (one of many) online about lymphedema that is factual and may be of interest to you:
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Can you tell us specifically what this lymphedema you are dealing with is secondary to? You have posted under "cancer" and so I will assume we are speaking of involvement of arm and underarm on one side related to removal of lymph nodes.
As with all medical questions, this one goes first to your doctor.
We are a forum of strangers who are not familiar with you or your case.
I can tell you that overall it is a shooting match who gets this and who doesn't after the removal of nodes in the case of breast cancer. There are compression garments that help, but more than that many have VERY GOOD results with specialized massage by a specialist from PT who is trained in methods to work with this condition. You would need referral from your doctor.
My first cancer surgery, a right mastectomy 35 years ago, I had two positive nodes so they removed a total of 14 nodes. It was sheer luck that I escaped dealing with any problems with lymphedema (which at best can be quite uncomfortable). I will be having a lumpectomy on left next week, and will not have to face lymphedema because I won't have nodes removed at all. I at 81 will no longer accept chemo or radiation of any kind, so removal of nodes for examination would be moot.
I wish you good luck. Start with your doc. Explain your pain, why, where, how much and what helps (raising arm, etc). Ask for referral to specially trained expert in lymphedema therapy.
I sure wish you the best.
I hope you'll find something useful on their website at lymphnet.org/patientinfo.
My stepson is a wound care nurse and treats several patients with lymphedema. It's a very painful situation to be treated for, since swelling from all that excess fluid stretches the skin to capacity. I don't think you're alone with your suffering.
Here is a link to an article (one of many) online about lymphedema that is factual and may be of interest to you:
https://medlineplus.gov/ency/patientinstructions/000045.htm
I hope things improve for you soon. Good luck.