OK, my mom calls, says she took a tumble. She does not want to go to the doctor and check her arm, where she hit it against the fridge. She wants me to go get her cigarettes. I go there, look at her arm (a bit swollen in the forearm, but she can move her fingers and wrists, albeit it's a bit sore). Again, is she sure she wouldn't want to see her doctor, which is up the road and they can do an x-ray there? No. Only cigarettes. So I go get her cigarettes and try again about the doctor. It's tense because I'm angry because she's been in her narcissistic mood swings. Just a week ago I received a letter from her telling me not to call her anymore (one of many) and now of course she can't roll her cigarettes so her sucker/child is needed to get them for her. I left and told her to enjoy the smokes and to call me when she wanted to go to the doctor or really wanted to get help for her health problems.
But, can I force her to see her doctor in cases like this? In a sensible world it's not unreasonable to want to get an xray to make sure there's no break. But in her world money is only for spending on cigarettes -- not on anything (hearing aid, gerontologist, neurologist) that might actually make her later years a bit better.
Let it go or drive yourself insane, I'm speaking from years of experience with my mother. She is now 96 and lives with me full time and what's left of my mind I'm telling you to let it go. Let her smoke and do whatever she wants it's her life and she should live it her way, you have a choice to walk away, tell her you love her but you cannot allow her to bring you down, I know easier said than done. Reach down and find the words and say them lovingly than walk away, we have no control over their life as we want know one to control us. You can control only what you want done to you, if she is driving you nutty walk away, if you do not want to get her cigs say no!!! you have all the right to live as you want, same as she has the right to live as she wants you do not have to be part of the negative it's a choice we make. You do not have to feel guilt it is a choice please hear me and I promise you, you will be better off. You can love her without the anger let her do what she wants, it is hard I know I'm watching my mom not eat, not walk enough, not talk to me, basically dying in front of my eyes. I made the choice to keep her with me, it's not easy it's just the right thing to do. Laugh a lot than cry
I repeatedly told her, I am not doing a thing for her until she goes to see the doctor, and I called and got her an appointment later today. She griped that she only had two hours to get ready and suddenly her arm wasn't broken. I said, tell me now, and I'll cancel it. Well, she's willing to go. But I am so tired of this. Man, if I could go back in time (I know, I can't) I would tell my 25-year-old self, get some distance from this woman. She'll eat your soul alive with her dysfunction and anger and addiction (yeah, now it's mainly cigarettes and xanax, but it really makes her unpleasant and demanding). I'm 41 now and really want nothing to do with her. I'll make sure her arm is okay and get her any meds they prescribe, but I think I might be done with this. Yes, she's getting older, dottier, weaker, more confused, but after a while the horse you're whipping is dead and can't feel anything. All I feel now is anger. Not a shred of pity and I used to at least have that, to worry she was hurting. She's just an angry burden. Is that normal? Healthy? I can't even say except it suddenly feels like I'm freer to have this disconnect and I kind of like it.
I don't think any of your feelings are wrong or un counted for, my daughter is 42 years old I could not even imagine taking her life on a guilt trip. I don't know how old your mother is and I don't know why you were picked to do what you do, get your freedom you are to young to allow this to go on. Believe me when you take your life back you will put her in a position to stop the madness. You can be angry if you choose, that will only hurt you, you just need to say what you are willing to do and than do it and no more. Don't give mixed messages and don't play the game. We care givers seem to think we have some type of control and truth is we do not. Our parents are still human they are still the same as they have always been toward us, we do not have the power to change them. They are just an older version of what we knew when we were younger, we can not change it so stop thinking that she will be different she won't. I believe they get worse as they get older, we are a care giver not because it is easy but because it is the right thing to do. That does not mean we should allow them to treat us bad, she needs you somehow and the two of you have formed some type of pattern over the years. You are still young so you must change the rules now. I know easier said than done, I'm dealing with my mother and sometimes I want to leave and never return. Remember we can not make them do any thing no matter how much we ask, they will do what they want, until she decides you have to step back. When she complains tell her you love her and walk away, or simply just say I don't want to listen to this right now and than leave. You have the power to change only YOU!!! so please do yourself a favor and let it go. As long as they can make a decision we can not choose for them. I'm sorry for you pain and all the other caregivers that have lost parts of their life trying to care for their parents. Good luck to all of us, again we do this because its the right thing NOT!!! because it is easy. Laugh a lot than cry
Laugh a lot than cry
At the doctor's they took an X-ray and there's bit of a break in the wrist. So her arm is now in a cast and she has orders to not get it wet, try to cut it off, etc. (I told them I'd bet a thousand dollars she'll try to cut it off with a knife in four weeks.)
But man, I was so mad. I don't feel much sympathy for her despite the break. In the waiting room she was griping loudly how nasty and mean I've been since I was a teenager. I actually started crying but walked away before she could see it because every time I have cried she accuses me of trying to stir up drama or of seeking sympathy.
After three hours in the doctor's office, she had to get a smoke while I got my car. She stood out there and yacked with every person who went by who would talk to her, and then when I pulled the car up by her, she waved me off, said "You can give me a few minutes to smoke since I gave you so much of my time today." I nearly blew my stack then and there.
Take time off work, wait for three hours in the doctor's office while she gets X-rays and a cast, and then be told that! I was on the verge of leaving her there. She then wanted to go to dinner, her treat, and I was not into it, but my husband said let's do it so we know she gets a meal. She's diabetic and hadn't eaten anything all day so I go along and now she's got leftovers to eat. We looked in her fridge and there's not much except a bit of meat and old bread.
But because she will need a touch of help showering and some things we'll have to come back and help. Do a bit of shopping for her, etc., take her to follow-ups. I felt good and empowered earlier today and now I feel enraged and like I am trapped all over again. I would so love to just drop her off at a nursing home and wash my hands of the whole deal!
I'm also trying to talk her into hiring a friend of a friend who works with elderly people. The doctor doesn't think the situation is bad enough to get a home nurse, but I'm going to see if my mom is willing to hire this woman to come by once or twice a week and help out a bit.
And would you believe at the end of the meal she treated us to, she was already complaining? The portions were huge and my mom had to box the food up to take home and she griped about how little food they gave her for the price. (It was a nice restaurant, too, and she got a really good seafood dinner with bread, potatoes, veggies, salad!) The waiter even went and got more fresh bread and boxed it for her and made fresh coffee for her!
I told hubby, that's just the beginning. She'll revisit that again and again and it'll grow progressively worse in her memory. Never mind that she does nothing. I'll often get a call and she'll brag she has $8,000 or $10,000 in checking, just piling up because she does nothing! I wonder if she wants to rub it in our faces, or think it'll keep us crawling back to her one day, for a loan or something. Really, though, I think why not use some of that money to see a specialist for some of these health issues! Why not hire a home nurse or someone to drive her around! (Is there a good place to find someone like that? Some website? Why couldn't she pay someone $100 to take her shopping for a 5-hour block once a week?)
At the restaurant yesterday she made it a point to tell the waiter that in Germany they fought for the right to smoke and won it back. I have no idea what she's talking about. But to make it into something like a civil rights issue ... pretty bad.
I've tried to point out to her, though, that getting medical help early means she gets home faster. In this situation she got an X-ray and a cast. If it had healed badly on its own she might have had to go to the hospital for surgery, etc., so fix it fast and fix it good, I say!
And then there's that saying that the definition of insanity is doing the same thing and expecting different results. I'm guilty of that with her, I admit. It would just be lovely to not have a conversation where I hear how the entire family has deceived her or been cruel to her. And I'm at the point where I have the hardest time not going into the room and feeling a flareup of anger at her. It's for me to get beyond that but god is it hard.
Mind you, my mom is a Christian women who is very sweet and they love her at the nursing home...it just did not have to be this way.
So I sympathize with folks who are trying to deal with their hard headed parents and know first hand what can and does go wrong when they refuse to follow advice. For those that have said on this post, well, they just want to be left alone to die...that is too easy. What we have been through is much harder than if she had actually passed away when she had the stroke. But we all agreed at the time that she should be given the chance to recuperate.
Would I have done anything different looking back? No I don't think so!
In some ways it's more difficult when I see my in-laws. My MIL is in good mind and she'll get knee surgery so she can walk around, etc. My FIL got a hearing aid and had a hip replacement so he can hear and walk around.
It hurts when a loved one tells you, indirectly, that they don't care anymore. Though I guess I'm doing the same thing in my ways by trying to build distance.
Wouldn't that be awesome if they came up with a cure for Alzheimer's and dementia? Please let it happen in this lifetime! Next week, preferably!
It's correct that no one can be forced to get unwanted medical treatment or care.
They will stand it for just so long, and then they might cave in and beg for help....usually, they cave most if it's breathing problems--there's pretty much nothing scarier than limited breathing.
Then you can get them care.
BUT...
If she is threatening suicide, that MIGHT be grounds for calling a Social worker to report it, and calling 911 to report it to instigate them doing a "well-check"---or even a 72-hour hold to evaluate her mental health..
Advice from instructors and officials I've spoken with:
IF someone threatens suicide, they MUST be taken seriously.
Of course, they will try to say they were just kidding, or just messing with you, etc....but still, they should be taken seriously.
After that hold, if they seem OK, they will be released.
OR, they might be released conditionally.
Consequences:
She will likely get VERY angry.
She might act out in any number of ways--including seeking someone else to be her POA, or not communicating with you at all--doing things to cut you out of her life---which may or not last long.
She will likely try to retaliate somehow, then she will feel bad about acting out or retaliating and beg to get back into good graces. Or not.
YOU stick by your limit-setting! It is unrealistic to allow her or anyone to keep jerking you around like that....that is otherwise known as "co-dependent" behavior.
IF you are a caregiver OUTside her home,
you will not likely be held accountable for her getting harm.
Especially if you make called for help when appropriate--like with suicide attempts.
If Social workers are called to come to her home, and find her unable to cope with living at home, she might be admitted to an Assisted Living or other facility.
Officials will TRY to strongly encourage family to take her in--you do NOT have to do that....no matter how hard officials try to push you to do it.
IF you are caregiving under the same roof with her...
IF you are living under the same roof caregiving:
Officials might try to point fingers at a live-in caretaker--
----they would send APS to the house and create files on you, which could become an ugly bit of business.
But if you are as broken by your elder's behaviors as we got, one can reach a break-point at which it almost seems a relief to get accused--even falsely---just to get the elder OUT of our house.
But it is far better that you systematically:
==== Call 911 to instigate well-checks on your elder.
====Keep a calendar with dates/times of her comments/behaviors, and your responses and actions, on it. Make sure you list all Doc appt;s or other activities you assisted the elder getting to, shopping trips, EVERYTHING, DAILY, Over Time-----this is a log or diary-----it is admissible in court as evidence, and could help protect you....it is just about one of the only things live-in caregivers, or even live-out caregivers, have to protect themselves from false accusations.
OTHER ways to protect yourself: calling 911 each time there's any incident--immediately--911 calls MUST be recorded--that is an official record---i.e.: she falls, call them--let her tell THEM she refuses medical help--not you!
====Contact the County's Area Agency on Aging to ask about Social workers coming to do an in-home evaluation of her ability to actually safely be on her own in her home. Ask to counsel with a free lawyer about issues you have questions about.
====Keep records of EVERYthing you do with or for your elder....it's a nuisance, we aren't used to it, it feels weird having to do that--but it's NECESSARY these days.
====If your elder is abusive of you, you call 911 to report it.
If they hit or injure you, make sure you see a Doc immediately and get that recorded--pictures of bruises, anything--medical records are official, and could protect you by showing that abuse to officials. If it's emotional/mental abuse--your Counseling session records could help you in court.
Make sure that you also encourage your elder to come for counseling to help you----when they refuse, it's part of that record, and it does not reflect well for them for refusing to help you process your stress.
====IF she threatened suicide, call police to report her threats--they might have her admitted for 72-hour psych safety observation...and evaluated for ability to live alone or not.
====If you can, record her behaviors and/or verbals. Some have installed web cams at home, which are sound or motion activated--"nanny-cams". These could be invaluable tools to help evaluate elders who are not always normal, might not be easy to evaluate otherwise.
IT's VERY hard to think of our parents causing us grief....even when they've been dysfunctional all their lives, we don't necessarily expect them to start hitting us, or doing weird things---so often, we try to ignore that, or think it'll only happen once, or otherwise try to make it like it never happened.
But elders only get worse--that's the nature of the issue.
They can't help it.
It takes discipline of ourselves, when we aren't used to it, and might be sick ourselves and having hard times coping.
It's really important to ask--and keep asking, for help.
Keep posting and keeping us up to date on how things are going, on this site.
We're all here because we've been going through renditions of this.
Good group, lots of advice and support here!
Mom, though, has been through the gamut. I was feeling a bit more kindly to her, post arm break, because I wouldn't want my dominant hand in a cast, either! Sympathy is waning fast, though. After trotting around to get her pills, groceries, etc., we stop in Sunday and I notice her cast is gone. I ask, what happened? She slid it off. She put a string through it and had it hanging on the closet door, and has been hanging it on her apartment door for neighbors to see, because she thought it was funny.
Well, I called her doctor, and let them know. Told them this is just a report for the medical file. I am doing no more about it, but they should know, so if it doesn't heal well, there's a reason. (Doc wanted it on for 6 weeks, too, and my mom wore it for 12 days!)
On top of that, mom is now getting hostile again. She was going on about medical bills and I looked at a stack on the table, and then stacked them more tidily. Today she says I had a fit and threw them up in the air and made a mess. I did no such thing but I'm going to drop off some denture glue she needed and a couple whoppers (which is all she wants lately) and give her some space again. She can't help it but I'm not going to go through this garbage again. I'll give her her space since she assures she knows everything better and focus on my new job.