My dad is in a nursing home. He has dementia , almost in the last stage. He still knows us. But my dad that I knew is going and i am having trouble visiting a dad that is not there. How can I come to terms with this, and are there any books on this subject?
I know it's hard. Be there to show him he is loved. It's the best thing you can do for both of you. I lost my Dad unexpectedly, and I don't know if this helps any, but I'd give anything for 5 minutes to tell him how much I loved and respected him, hug and kiss him. Big Hugs!
I am a hairdresser and I have seen many clients of mine in all stages. Some of my clients I have seen decline from normality, straight through to final stages of dementia. Even though your Dad is not able to respond in ways you would normally expect him to, such as words or hugs, kisses things like that. There are deep memories you may be able to trigger, some type of emotion that connects you to him. Such as an object he remembers as a gift to you, a toy, a song, a picture even if you just smile or a joke he may have liked anything like that from your childhood may trigger a memory, the day you were born or some dramatic event.
I'll tell you something about one of my clients that I saw go from being a vibrant wonderful person, decline thru all the stages. Her husband was her caregiver and was wonderful and patient, understanding and supportive. Her appoinments were monthly with me and until the last few, It became obvious she wasn't going to be hanging on much longer. I saw her decline more rapidly and her husband informed me that it was time for NH full time. At this point she could only mumble and could not even raise her head without assistance and noone really knows what was left of her memory or who she recognized. I managed to cut her hair. I had a feeling this was our final appointment.
In hopes she could understand and I was not expecting a reaction at all...
I put my arm around her shoulders (she was in a wheelchair) I softly whispered in her ear "You have a wondeful husband, your a very lucky lady!" Well to my and her husband surprize, she lifted her head up SMILED at me and looked at her husband with the biggest grin, as if she wanted to tell him that herself but couldn't!
She passed away a few days later. He came into my shop and said to me "Thank You for making my wife smile!" It may have been only a smile for a fleeting moment of time,this was a smile loaded with emotion and memories and so much Love for her husband wrapped in one!
This also taught me something about memory that is attached to feelings there is alot of strength in a strong bond and even dementia can't take a person's whole heart and true feelings from them.
I didn't want to ramble on about this but I think this story about my Mom fits in to this subject as well.
On Christmas Eve last Christmas my Mom in NH was being weened off of a Med, she was completely unstable, basically didn't know or care it was christmas, didn't know or care who I was either. She wanted me to leave her alone. I told her OK I'll go if you open this present.. I am just as stubborn as she is. She agreed probably just so I would leave. She took the gift out of the gift bag. It was the sweetest looking stuffed SnowWoman! I saw her in the store and I feel in love with her and only $6.00, was perfect too, and knowing an expensive gift would probably dissapear at the NH. So Mom's eye's lit up and without even thinking about it I said "what are you going to name her?" (she always asked me the same question whenever she gave me a stuffed toy I remembered afterwards, it was like a natural question to ask) She said "let me think she's really cute and adorable...OH how about SUZY!.... Oh yes that's perfect!" I took care of MOM for a year prior to NH she always called me Sue (I insistead on being called Suzy as a child though) This meant to me that even though she was completely out of her mind on the surface, that her true feelings were brought to the surface because of a natural reaction triggered by an emotion triggered by a bond only her and I shared. I left her that Christmas eve knowing my Mom was still in there somewhere and she Loved me, reguardless if she could express those feelings in a normal way. So hang in there with an open heart and you may witness a bit of something that could make you smile and you'll have to keep with you and he can take with him. He is still in there... you may need to look at your Dad with your heart and not your eyes. I hope my shareing this with you gives a brighter spin to your situation. You asking this question on here shows your love for your Dad and that is something meaningful in itself. That means he has given a part of himself in happy thoughts of him. As I just wrote that, I just realized that my Mom in her demented condition, feels safe and tells me often that her Dad is taking care of her. It is comforting to me that she feels safe with this thought and sometimes I think to myself, he may just be looking out for her. If this thought gives her peace, it's all good.