My Mom has Lewy Body Dementia caused from her Parkinson’s disease. My 40 year old son, was visiting my Mom at her Assisted Living Suite. She was having a reoccurring delusion that she has to move from a different place to her existing place & has to go get her stuff. My son tried to tell her that she’s not moving, and she’s staying in the suite they are in right now. My Mom refused to believe him & insisted on going to her door & opening it. In the hallway, was EMS with a stretcher who asked my son to please stay inside until they were gone. So my son told my Mom they had to stay inside for now. My Mom determined to leave the suite stood in front of the door & did not allow my Mom to go out. He again explained, about the EMS. My Mom got very upset & my son could not deal with her so he called me but couldn’t get through, then called my brother. My brother talked to her and explained that my son was right, she was not moving & she should stay inside her suite until EMS were gone.
She called me after my son left, feeling that no one believes her. I listened & tried to validate her feelings. I told her I would call my son and find out what happened.
In reading this my thought was to call an aide or the RN and ask them to come to Moms room. My Mom believed the aides over me. Mom swore there was a baby in the AL. I said no, no baby here only adults. She looked at the aid standing next to me and "I'll believe you before I believe her (me)." Aide told her no babies, Mom said OK and walked away.
I would know what is coming. Discussing with admins is coming soon enough.
Meanwhile don't attempt to convince mom of anything. Give her a simple little duffle suitcase and let her pack and unpack as she pleases.
I am so sorry. My brother died of sepsis before the Lewy's could take him too far into it's own kingdom. He was thankful to be going on hospice. I was thankful and relieved for him. I will miss him so long as I live.
I suggest you buy a copy of Understanding the Dementia Experience by Jennifer Ghent-Fuller on Amazon so you can learn about dementia and how to deal with the whole situation with your mother a bit better.
Best of luck to you.
What a challenging situation that you have. I am so sorry that you and your family are going through this.
My mother also had Parkinson’s disease with dementia. At one point in time she was trying to escape out of the door. Her neurologist placed her on Seroquel and Ativan and she stopped trying to escape. Have you spoken with her doctor about meds?
Wishing you peace as you move forward on this difficult journey.
It's best for all involved to just go along with whatever your mom is saying as you must remember that "logic doesn't live here anymore"(one of my favorite sayings from my caregivers support group)with your mom, so you can't logically reason with her anymore.
When you go visit her you must leave your world behind and enter the world that she's living in now. That will make it much easier on all of you.
Best wishes.