Mom has been on hospice for 9 months. I became suspicious of my provider as she kept being renewed despite weekly nurse visits that ended with "she's great!"
Knowing that Medicare was paying $300/day I began to wonder if she really needed hospice so I switched providers, which ended up being the hospital that referred her to hospice. At the switch over, they wanted to evaluate Mom for 2 months to make a determination.
She was doing well, although definitely showing signs of decline--increased sleeping (now 14-16 hrs/day, weakness, muscle wasting, mental decline).
Two weeks ago Mom had a first-time weird episode while the nurse was visiting. The next day the nurse thought she might be transitioning. Fast forward one week and the nurse told my Mom she might be graduating. Today they are removing her from hospice based on the last two weeks of Mom looking ok.
What the heck?!!!
Hospice showed up over a week-end. When I left on Friday (I didn't work week-ends) the client was fine. She ate well and took her meds and from time to time needed a Tylenol if her 'rheumatism' was acting up. When I came in on Monday morning there was some strange aide that I didn't know. My client was nearly comatose laying in a puddle of urine on a hospital bed in her living room. She was drugged up on Halidol, lorazepam, and morphine. She went from needing a Tylenol once in a while for her 'rheumatism' two days before to now needing morphine, halidol, and lorazepam.
I warned her kids that she wasn't going to get anything for free and that they were making a mistake allowing themselves to get talked into hospice. They dismissed all of us.
She graduated out of hospice and lived for three more years. The money all went too because agency care is expensive.
I would not have hospice at home for anyone I care about. They were great for my father but he was in a hospice facility, not at home.
My own MIL went from LTC to hospice when they thought she was going to pass from covid. She was on it for many months (more than 6, can't remember exactly how long) and was making very gradual improvement. They took her off it because she's total fine now (as in, as good as she was pre-covid).