Follow
Share
Read More
This question has been closed for answers. Ask a New Question.
Find Care & Housing
For Midkid58, can you turn off the TV or change the channel? Also, can she talk to the one she's worried about on the phone?
Helpful Answer (1)
Report

And, you don't have to have an answer for every single comment she makes.
Helpful Answer (3)
Report

I agree about the teepa snow. I have watched several episodes. I sit and say sure, looks easy for you. But that reality doesn't live here. Just like the help I pay. They come for 4 hours and then leave. My world is I live here. My shifts are not over in 4 hours.
Helpful Answer (1)
Report

To LaurieB -
There probably is no "one size fits all" solution, but as you have become painfully aware, explaining and arguing really do not work.
Short term memory is usually what goes first, so retaining any new information is not going to happen - so much for the explanation attempts.
Whatever the issue is that has popped into her head cannot be argued away. Trying to argue or reason with our mother, I could see it when brother tried - she would clam up (not really a bad thing, stops the yammering about the broken fridge or whatever!)

The responses/actions all depend on what the issue is and how important it is to your mom. You know your mom better than we ever could. Try various methods and see what works. Only she knows, but she cannot work that out. Using the fridge example, as several have suggested, pretend to listen or check it out, and then say yes I will have to call the repair man (or your brother if he is usually the fix-it guru) - walk off to check the phone book or "make" the call and then tell her it is scheduled. It will likely come up again, so repeat... Now that's done mom, how about a nice hot cup of tea! If she veers off onto another issue, get her a pad of paper and a pencil and have her make a "To Do" list for you, things for you to check on and/or fix! Then go do it and cross off each item when it is "done".

Another thing to be aware of is sun-downers. I think you said the doctor mentioned this. Typically the behaviors your mom shows with this will occur later afternoon and/or evening. She can become very obsessed with things and even OCD. I have read some people even become nasty, but in the morning, peachy sweet! If these obsessive behaviors are only occurring later in the day, this may be why. Of course she may be like this all day, and who knows perhaps some people ARE afflicted with this (S-D) all day or different times of the day, not just afternoon/evening. Read up on this topic, see if any relates to mom and if so read suggestions for softening the blow of this behavior (more lighting, possibly medications, etc).

Although the doctors cannot discuss a lot with you if you are not on the Hippa, that does not mean you cannot bring her there for appts. You say she cancels - does she *really*? Mom would SAY she was going to cancel, write it on the calendar and/or the reminder, but she would never actually make the call. On my way to get her I would have to call the Dr office and say IF she does call, DO NOT cancel!! One time it took my brother 45 m to get her out the door - every excuse in the book was used. I even tried calling her to give her good reason why she needed to go (you NEED refill of Rx and cannot get it unless they see you!!!) Still took another 20 m. :-(

As for DPOA and Hippa, sounds like mom is really too far gone to have her reassign (revoke bro, assign you, even she would even agree to it). She must be, in the atty's opinion, cognitively aware of what she would be signing. If anything needs to change (sounds like it does) you will need to petition the courts for guardianship (gives you authorization to make decisions for her) and stewardship (gives you basically POA over her financial affairs). You would need an Elder Care atty to process this correctly - it won't be cheap or easy, but more than likely, if mom has funds, the costs would be covered by her (if you need to kick in some money to get the process rolling, you should be able to petition for refund.) Also the courts require periodically reporting back to them, unlike a DPOA :-(

Anyway, it might just have to be trial and error with responses to mom until you find what works or *sigh* determine that it is because you are the care-giver (this happens all too often as well). Hope you find the magic touch/words!
Helpful Answer (1)
Report

Type Alzheimer's Reading room. Read what he did to overcome many of the things we're reading while caring 8 yrs for his mom. I've read a lot & realize several kinds of dementia. Alz 9 yr is my hubby. First getting antidepressent chgd him from lion to lamb. Also ice cream is a good redirect idea. Don't worry when they eat it we all know this desease only goes down hill & w ice cream will relieve your stress. Rub their shoulders, head or feet helps some. Theropudic lies are stress savers. I used to write the answer to same constant questions for them to read. He no longer or hardly does that now. I don't have TV for him to watch except HGTV or talent program. I don't want tv people to be real people or bad happenings to him in his life. I was reminded by my daughter to never say remember. My hubby sometimes doesn't know who I am after 63 yrs marriage. Don't worry if they ask like he asks if I'm his sister & I say yes cause in 1 min he won't remember & im not sure he knows difference sister, wife, son, daughter. We have our wedding pic on the wall & he asks who are those people. One day, only once, he was tossing pillows to the guy in the mirror. My recommendation to all caregivers go to a support group. I go to one that meets weekly. Go at least twice before you quit thinking not what you need. Also ask your brother to keep your mom 12 hrs 1 day a wk. Helps them to really see what you go through. We must spill our thoughts to release the pressure that's what you do in support grps not on the patient. TEEPA SNOW says take 3 deep breaths before reply to release stress. I know my hubby sometimes doesn't hear right what I say & he repeats what he thought I said & I can't help but laugh as it ryms but way off. 36 hr day bok is go read. Can read or print really good "Understanding the Dementia Experience" it's 28 pgs printed. May God help you thru this crises.
Helpful Answer (2)
Report

Redirecting the conversation doesn't always work. Sometimes though if you can get them to go into another room and then back out again, that may get their mind onto a different course. Here's an example....

One day my Mother-in-Law with dementia had to go in to the doctors office for lab work. She was fine when we left, but when we brought her home she was agitated for some time. I wasn't sure why she had become agitated after bringing her home. However, shortly thereafter I realized from her comments that she thought she was still in the waiting room at the doctors office! She was angry because she didn't understand why she was being held there, and not able to go home!

The diversion tactic I tried didn't work, which was this: Walking over to a table I pointed out her family photos and said, "Look, you're right here at home! Here's the photos of your son, your daughter and your other loved ones!" but she was so quick-witted and in a humorous way as she responded, "Oh come on, anyone can place photos somewhere!" and she didn't believe me that she was at home! Lol - I thought the photo diversion was going to be brilliant - lol - wrong!

But then, she needed to use the restroom. She had to ask where to find her bathroom, so I directed her down the hall. After she came out of the bathroom she had snapped back into the reality that she was indeed in her own home, and happier again! :-)

So if a conversational diversion doesn't work, try getting them to go into another room. :-) Lol - it may add a bit of humor to the challenge.
Helpful Answer (1)
Report

Thank you so much for these answers. I have been not talking with my mom because I didn't realize I should enter her world. I spend this weekend alone with her as my husband (her favorite caregiver) is going out of town. I was so nervous about it but coming across this question I think will help me cope better. Not correcting her will take a load off my mind. Everyone is so helpful one this website. Thank you again
Helpful Answer (2)
Report

Never talk to them as if they're a child...talk to them as one-on-one adult...it's too condescending and it will make them feel like something is wrong with them !!! Then the anger and hurt will start and you don't want to start that path...if they suggest something, talk to them about it. If it's not a good idea, find a good reasoning way to say it's not...don't just shoot it down...they will know if you're talking down to them...just love them over and over again; it's the disease not them...put yourself in their shoes and then you'll know what to do, say and act...it works !!! peace.... :)
Helpful Answer (2)
Report

CWillie is spot on . Just be gentle, is the best method. We battled too in the beginning, but learnt that being gentle works best. Allow them some activity even if it is 'silly stuff', they often want to feel useful, even if it makes no sense to you. They mean no harm.
Helpful Answer (1)
Report

Redirecting works depending on what stage of memory lost as you can satisfy questions of the moment'. Re: the fridge, I would agree, say someone is looking into it, your brother, etc or say it was fixed while she was napping, etc. Correcting her thinking will not work! So you have to either agree, deflect or say to her, why do you say that etc to validate her thoughts and allow her to express them. When my mom would hallucinate and see furniture on the ceiling I would just say oh yeah, wow. And let her just tell me about it. There is no easy answer of course but hopefully you'll find some strategies from other caregivers that you can apply. Best to you in your journey
Helpful Answer (1)
Report

LaurieB, the real issue for Mom isn't the refrigerator and if it is working or not. She is looking for validation that she is still a part of this world and what is going on. Instead, tell her that you will call the repairman about the fridge so that we can make sure it works. Thank her for noticing that there might be a problem. When she brings it up again, tell her that the repairman said that it was ok as long as the ice is hard and cold and let her help you decide if it is or not. Take a complicated thing like a refrigerator working and make it a simple thing, is the ice cold.
Helpful Answer (0)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter