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My mom and I were/are very close, I'm an only child and my dad died when i was 11 so it was always her and I. I love her she was a great mom. Now it's still just me, my husband left me a month after I put her in AL and we were not able to have kids so it's still just my mom and me. She's never made me feel bad or anything (in fact she chose to go to AL) but now with dimensia she's not the same, and the other day when I left she kept calling out my name, I had to leave but I went back, gave her a hug, and then left to her cries. I felt horrible couldn't sleep and cried all night, and can't figure out if I should have her at home. Personally I think the place she is at can take better care of her than I can, even with home care help, my house is small and the place she is at has a squad of care givers, doctors on call, and are always so nice (although I do think they overmedicate her when she gets agitated) so it's really just guilt but that doesn't help me feel less guilty. Sorry for rambling but my question is how do you deal with the guilt of leaving them and not taking care of them when they are so alone and sad.

By changing your thoughts.

Eg 1. "not taking care of them.."

You ARE taking care of Mom by having her live with support 24/7.

Eg 2. ".. when they are so alone and sad."

Mom is NOT alone. She is living with many others, residents & staff. Sad? Maybe at that moment as you leave, yes. But probably not all day every day. She may well have a smile & a laugh with other people during her day.

When you visit you can bring EXTRA joy to her life. Your familiar face, your warm hug, both enjoy that lovely connection for the visit.
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Reply to Beatty
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cover9339 Aug 24, 2024
Eg 2 She can live with many others and still feel alone.
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You remind yourself that this was the best only solution for her and that she is indeed getting appropriate care and is not alone.

If she has memory impairment she won't even remember that you just visited her. This is how it is with my own MIL, in LTC with memory impairment. She just got off the phone talking to one of her sons ("Glen"). I asked how is Glen doing? And she said, "I don't know... I haven't heard from him in a long time." Literally not 1 minute had passed.

Do not feel guilt -- because guilt is for when you do something that is immoral, illegal, unethical or selfish. You can think of your feeling as grief, which is what it is. When we leave my MIL we try to make sure it coincides with an activity or event at the facility. We wheel here there so that she has a distraction as we say goodbye. Then the staff takes it from there.
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Reply to Geaton777
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You didn't cause it and you can't fix it.
You CAN mourn it, and accept that she will mourn it. But taking on responsibility for it, for her happiness, simply isn't going to work. You are a human being with limitations; you need to accept that. Do feel free to share her tears and tell her you are so sorry for them. Continue to do what you can.

It is terribly difficult to stand witness to the losses of our loved ones, but it is wrong to take on responsibility that isn't ours.
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The only way I got past all this stress…..same story about my mom and me..was to go to counseling! I go twice a month..it has saved me..I leave with her looking teary but I can now manage to feel no guilt..I am 73 she is almost 91…we are in year 6 of this stress.. my mom told me from the start…never listen to me when I am full blown dementia just do the right stuff for me…that has helped..today was a crappy visit but I will manage to enjoy the rest of my day! Good Luck…
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Reply to Sadinroanokeva
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My daughter always told Mom she had to go to work, never used the word home.

So sorry about your husband.
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fluffy1966 Aug 24, 2024
That's a great departing comment, JoAnn29, and I will remember it.
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The guilt is misplaced. Mom’s sadness is normal, not caused, and able to be fixed, by anything you did, or can do. Her life has changed, no one’s fault, just the natural course of aging and there’s isolation and sadness that comes with that. You couldn’t fix it in your house, it would remain along with you being an overwhelmed, stressed out caregiver. Visit mom, be relentlessly positive and encouraging, take her things she enjoys, and most of all, don’t accept guilt for things you don’t control and cannot change. You and your mother have been blessed to have each other for a long time, that’s the important thing and it hasn’t changed. I wish you both peace
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DJBeach Aug 24, 2024
Well stated. I’m dealing with the awful guilt right now of considering putting my dad in AL because I am extremely burned out from the caregiver role and believe he’d do better with professional care. Thank you for making me feel like I’m not a bad person. I keep reading how important it is for the caregivers to take care of themselves but it’s a difficult balance.
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Maybe mom is getting upset when you leave because YOU are upset.
Make your next goodbye when you visit very short. Get her involved in an activity then quietly leave. If she says anything when you get up just say "I have to go to the bathroom" or "I will be back". I think she may be picking up on your feelings.

You are taking care of your mom. You said yourself that she is getting good care that even with hired caregivers you could not manage that level of care at home.
Be very grateful that you have found a place where she is well taken care of.

Get rid of the "G" word..guilt. You can feel sorrow, grief, anger at the disease but you have nothing to feel guilty for or about.
If you are concerned that she is "alone and sad" when you are not there ask the staff if she is alone and sad when you are not there. Is she involved in activities? Is she sad?
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Reply to Grandma1954
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I understand your level of pain, as it was always "just you two", you and Mom. And now you additionally have been deserted by your husband. There are complex and intense emotions swirling around in your head and in your heart. GreenTeaGal, you could be supported at this difficult time by a well-trained Therapist and additionally, by a Grief Support Group. I don't know if you live in a city or small town, but membership in church, in community volunteer groups, in any type of "shared hobby" activity would be a lifeline for you. Placing your mother in Assisted Living best served your Mom. Plus, it's giving you a chance to work on separating from her by stages. The big separation will come at the time of her passing. I read that your mother is now 98 years, so the AL placement gives you time to prepare for her passing. I love the idea of departing the AL after you have wheeled her to a group activity. Then, you can quietly leave after her attention is engaged by something else going on. BTW, do you still work? Work is a good thing for someone who finds herself at a juncture in life when you have landed. It doesn't have to be full-time but "real work" where folks are counting upon you and where you meet colleagues with whom to share camaraderie: is a good thing. Part-time Library assistant, something pleasant. It doesn't matter if it is a paid position or not. I see that you might be 'retirement' age if your Mom is 98 years. Sherman Oaks is highly populated, I think. Elementary schools always have a need for "read aloud Tutors" to assist struggling 2nd or 3rd Graders. Middle Schools always have a need for PALS, who are simply Mentors to preTeens who have little or no family support. You are a dutiful daughter to placed your dear Mom in a great facility. Now, it's time for you to get support (counseling) at a time where you have a chance to build a meaningful chapter of your own life, going forward. I am very sorry that your husband left at this critical time of your life, but with Mom being well-taken care of, you have a chance to "Finish Well" in what just might be a very satisfying chapter of your own life, which might go on for decades now. God Bless you, and I could truly feel your pain as your described Mom calling out for you as you departed.
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Reply to fluffy1966
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I experienced the same concern, and it was really tough when the staff told me she called my name throughout the night. So, this is what I did: When my mom started to decline, I told myself that I want no regrets. So, I visited her virtually every day, fed her when she could no longer eat on her own, sat next to her bed when she started to fall asleep, held her hand, reminisced, took her to medical appointments, listened to music with her and told her I love her. I was still employed at the time (and still am), but I did everything possible under the circumstances. She would often tell me how much she appreciated my help and how special I am, so that helped me through that tremendously difficult ordeal. I miss her dearly and still get tears in my eyes, but I know I did everything I could. And that helps.
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You need to realize that you are her only loyal protector, keeping her safe an comfortable as she will progress through different stages, needing the professional care that you cannot provide. Your role now is to be her guard at the door, making decisions for her care as the changes occur. Nobody else can do what you are doing for her. Your job is to stay healthy to complete this job for her. Be proud to be there for her. It’s a journey that will require a loving loyalty.
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