Background: I'm 24 years old and my younger sister is 11. My mom is 59 (she had my sister at 48... very unusual I know!). She suffers from Frontotemporal Dementia, diagnosis 3.5 years ago. She has been in full-time care for the past year and a half. My sister lives with our dad, I live further away but visit a lot and we are all very close.
The situation: The three of us are obviously heartbroken over losing our mother/wife to this disease. Discussing our feelings about mom usually dominates the conversation when we're together. My dad goes to see her about 3 times per week, in between going to work and raising my sister. I join him when I can. We're working together to try and process everything that has happened and it's very much still a work in progress.
My dad has started seeing somebody new, she is amazing and I love to see how happy she makes him. She knows the whole situation and is very understanding and supportive. She plays a bigger role in my sister's life than she does mine, obviously because she's still a child. I think it's a good thing, my sister gets to experience a bit of normality after all the drama of the last few years. For example, she can have friends over again without worrying about my mom walking around naked or soiling herself. That is not stuff any 11 year old should be dealing with.
The problem is that old friends of my mom found out about my dad's relationship and have behaved atrociously ever since, accusing my dad of "replacing" my mom, saying aggressive things to him like "[sister's name] only has ONE MOTHER and that's [mother's name]!!!". They've also made comments about her care and have insinuated that my dad isn't doing enough for her. I feel that they have built up a narrative in their heads, where my dad doesn't care about my mom anymore because he's with someone new. He was her primary caregiver while she was still at home, and in my opinion he deserves to relax and be happy now. These friends of my mom clearly don't agree. What do they want from us? To be miserable forever? Aren't we allowed to grieve our mother and also try to get back to normality?
This has been going on since Christmas, so almost a year now. It's on my mind again because when we were in with my mom yesterday, a nurse stopped us to tell us that "two friends" came by asking questions about shoe size and clothes sizes etc because my mom "needs new clothes". This might seem like a kind gesture, but I know that coming from them it's not. It's them wanting to feel like they're coming to her rescue.
I'd also like to point out that these people are doing a lot more "helping out" now than when we were minding our mom at home for the first few years after diagnosis. They have no idea how awful it is trying to care for someone at home. They have no idea how finally getting someone into full-time care is the best and worst day of your life at the same time. The past few years have been a very emotional time for us all, it continues to be emotional and these people are being extremely judgemental and unhelpful during this difficult time. I'm nervous to talk to them about it as I barely know them, and I have a habit of breaking down when talking about my mom. Any advice?
And I don't think you should stress out over their behavior. You can laugh when they say judge-y things and tell them that your father has your complete and loving support.
Could it be that these women are, maybe, trying to help or show caring and compassion for your mom. Don't waste any more of your time or energy trying to figure these women out or understand their action. Take it as it is and leave it at that.
And know it s wonderful that dad has decided to let someone into his life. And more wonderful that you support him. And dad can manage this himself. You do not need to defend him.
Marriage vows are "to death do us part". Legally and historically death has been physical. I have observed marriages survive decades long physical incapacitation and even some mental declines. In my young adulthood I knew two couples in the extended family where the husband recovered from a combat brain injury and had some problems for the remainder of his life, yet continued to function (including in family life) with help from his wife and extended family. I watched my own mother remain devoted to my father while his vascular dementia turned him into an aggressive and abusive s.o.b.; I had a hard time recognizing as the man who raised me. In my own mind, my father "died" when his brain and/or mental function no longer allowed him care about anyone else or how his words or blows wounded. I'm guessing that in your mind, a large part of your mother has also died. She just isn't the person you knew in childhood. We still love the pre-illness person and their personality, we still love the rimlets of that personality which continues on in the failing physical body. But we have already accepted a type of death and started mourning the person we knew even as the body still lives.
So now we come to a new reality. What is relationship loyalty when the physical destruction of the brain renders someone unable to continue functioning in a relationship, not just with their spouse but also with their children? Are we allowed to "replace" or fill that hole in our heart while the original owner still physically lives? There are no historical precedents and our churches are sure not addressing this dilemma either. (Although historically, "mental" incapacity is one church accepted justification for divorce.) My personal belief is I saw my parents' marriage effectively end when my father became unable to treat my mother with _any_ care or consideration; that's certainly the time frame when my close relationship with my father came to a complete end. Mom and I would continue to care about him and after his placement in MC we remained involved in his care and welfare. But the two way love and communication that defines a relationship was gone even as the physical body continued breathing. People who have not experienced this journey personally will have very little insight into how painful it is to love the breathing shell of what we remember our LO being.
In my mind, as long as your father's actions toward your mother remain same, then he is being loyal to her. As long as he sees to her care, visits her to confirm the level of care, visits enough that she does not feel abandoned, and treats her loving during those visits, then I believe your father is being loyal to the relationship (diminished by your mother's illness) that remains. Your mother's life now exists within the world of her LTC facility and within that world, your mother has a husband. Unless her friends tell her differently, she doesn't know about any other relationships within her family and isn't injured by them.
If your father has found a woman who is willing to accept his wife will always have first call on his loyalty and still offer companionship to both your father and his daughters, then I would not criticize. I admit to being religious and perhaps old fashioned enough to prefer your father's companion retain her own home during your mother's lifetime. I also think that would be a good protection for your young sister if the relationship doesn't last. But it is not any more disloyal to allow someone else to fill the holes your mother's illness has left than it would if your mother had physically died. Life goes on and there is never too much love in it.
How blessed you are to have each other to love and encourage!
Continue as you are. You are a wonderful example to others who may look for reassurance as they begin to walk the path that you are walking.
I'd like to add that these friends have a set way of looking at relationships that you're not likely to change.
I remember trying to explain to my mother when I was getting divorced that it wasnt "the other woman" who was dictating stuff to my soon to be ex (mom thought she was telling ex not to pay certain bills so that she could have more money). Had to explain to mom that OW made more than my ex did! She couldn't wrap her head around that.
You don't get them "to see" because they don't want to see regardless of whatever explanation you offer; it's the "yes...but..." syndrome. When someone says "yes... but" they want to hold onto their views. And the more explanation you offer, the more important they feel. Avoid giving judgmental people importance in your life. You cannot fix them, nor is it your job to fix how they feel.
Let your dad know that he has your full support and let your sister know that you love her and are happy your dad has found companionship. And I would make it a point of getting a great big happy picture of you, your dad and your sister into your mom's room. Not an old picture but rather a new one of you all looking happy and living life.
Your parents are so young to have something like this. Your sister really does need a woman in her life right now. There are things a father just doesn't understand or can't explain. I think as long as this woman doesn't move in and the relationship is kept on the "downlow" its OK. Even though Mom is no longer the woman Dad married, he does have a responsibility to her. So she should come first.
Great answer!
You will have to toughen up now. And you are right. No 11 year old should have to go through this and hear from these dreadful people, as well. You will have to learn that one half of the people in this world think they are here to JUDGE YOU. That will never change. They will always be here, at any point in your life. It is best to see them stretching out an arm and pointing to you. Do it now. Do you see that there are THREE fingers pointing back? Because they won't ever even notice that.
Some friends will be genuinely caring and curious about your feelings. If you don't wish to share them, don't. If you do, then do. And for the sake of all that's holy move forward with your lives the best you can. You two children have had to learn very early just how hard a wollop life can give us. My heart goes out to you and to your Dad, and to the wonderful woman who can see past all this and provide him with support and love. There may come a time he has to divorce even to be able to provide your Mom ongoing care by medicaid.
I have a friend who went to Tahoe with his young wife and two young sons. Early morning she took a walk and fell from a small cliff into the water. She was in a vegetative state until her death decades left. He had to go on, and he did go on, without her, because she was gone, even if her body was there. Life can be very cruel. And that is sad. PEOPLE can be very cruel; and THAT is on THEM. Not you.
Hugs! You keep on keeping on. If you are religious and they are saying vile things, just tell them you will pray for them, smile gently and move on. If you aren't religious (I am not) just smile and move on.
As this horrible disease continues to ravage families, I think a cold hard look has to be taken at how spouses will survive after placement. Will they choose to get divorced so they can remarry? Or will they choose to stay married, in spite of the fact that their spouse is no longer able to actively participate in their lives? I vote for divorce, personally. Why should your father NOT move on with his life and get remarried so your sister can have another woman in her life, LEGALLY, who can give her the loving guidance your mom is no longer capable of?? Without, perhaps, the continuous judgment of the 'friends' and neighbors who can't and won't stop clucking their tongues over the injustice of it all. Nothing like righteous indignation to turn one's stomach, huh?
Your father would, of course, continue visiting your mother in LTC, as he's always done. He hasn't stopped LOVING her, he's just chosen to allow his life, and his children's lives, to move in another direction due to her incapacitating disease.
What is wrong with that? Not one doggone thing.
If your dad chooses to stay married to your mom and have another romantic relationship at the same time, I don't see the clucking tongues EVER stopping, frankly. If he takes that route, there's nothing wrong there either, it's just something you girls will have to learn to live with. And that's a lot easier said than done.
I think your dad needs to consider all of these factors and then make a decision accordingly, with YOUR input, of course. This is a family decision that affects ALL of you, not just him. In fact, you two girls are MORE affected by his decisions than HE is.
I wish you all the best as you travel this journey of life, and my condolences over the loss of the mom you once knew. I hate this disease with every ounce of my fiber. I'm sure you do too.
I would like to say just ignore them...but I know that is easier said than done.
One thought just came to mind: I don't know if these people are religious, or not? If not, perhaps there is SOME type of group they are involved in, which has an overseer?
I was thinking that perhaps you could go to their Pastor, Ministor, Bishop, Priest, AA Leader or Lodge dude...and sit down to discuss the situation kindly with them. Explain some details, and take enough time to help her/him clearly understand that NOBODY outside of your immediate family could POSSIBLY have enough information, knowledge or experience to rightly cast judgement or speak one ill word of your Dad, or family.
Let him know WHO of his/her flock/association is offending, and ask if they can find a way to lovingly approach the problem with the offenders.
Whether he/she visits with them, individually...preaches his/her next sermon, lesson, or talk on the subject of judgement (hopefully using a strikingly similar example that is SURE to cause them to realize & regret their unkind words & actions toward your family! 😉)...or never says a word or does anything:
YOU can then wash your hands of it, knowing that you made a protective attempt to help the situation. And move on.
Good luck, and God Bless!
How does your father respond to the deeply unhelpful interjections you've described?
Does the hostility impact on the lady who is doing her best to support him and your little sister?
Getting new clothes and shoes for your mother IS a nice thing for them to do. Don't let your feelings about their less helpful contributions stop you acknowledging on your mother's - and your father's - behalf what is a useful, meaningful task undertaken; plus they're taking the trouble to get the right size, which is not nothing when you look at some of the peculiar things people in residential care are given to wear. Their motives - though I'm sure you're right that being snotty about your father is one of them, and not the least enjoyable either - matter less than that somebody has cared to get your mother some morale-boosting new clothes. Your mother will like it. That's good enough.
I don't think you should set out to talk to these people. If you encounter them and they say something ignorant, unkind, harsh, or even just mistaken, correct it but within bounds. You cannot hope to change closed minds, and a confrontation will simply make their attitudes more entrenched than ever. You'll just find yourself on their hit list and that's hardly going to make your father feel better.
Instead, stress that your father's ability to continue caring for his wife is greatly strengthened by the support he gets from his new relationship; and that after the turmoil and fear of the last few years a stable home structure is essential to your sister's wellbeing and sense of security. Why, do they have better ideas of how to achieve those important things?
It may be impossible for you to look at these people advocating a continuation of care at home for your mother without thinking "and where were you?" but don't even bother to voice it. "If we had done more to help at the time perhaps our friend wouldn't have had to move just yet" is about the last idea that will enter their heads.
It may help to send a representative, (to address the issue with those 'friends'), like a pastor, or social worker: who may have seen this before. Please update us if we can help more. Best wishes to ur family!
Sadly, they will have their opinion, no matter what you say to them. Going forward, the best thing you can say is, " I thank you for being concerned about my mother, but she is being well taken care of...good day". If people are aggressive and harassing your father to the point that it is a disruption in his life and day to day duties...contact the local Police to pay them a visit.
People will think what they want no matter what, just know your family is taking care of her as best they can.
You are a wonderful daughter to your mom and your dad and a very loving big sister. It’s fantastic that you are understanding of your sister and your father. That doesn’t take away any love or respect for your mother. Your family didn’t choose these circumstances and people who have never walked in your shoes don’t have a clue.
You don’t have to explain yourselves to them. Say the bare minimum if you feel you must. Like you said, these women weren’t around when you needed them. Sort of makes one question their sincerity and if their concerns are genuine for your mom.
It kind of appears that they are using your mother’s condition to gather information because they are snooping. They must not have very fulfilling lives of their own.
I’m glad you like this new woman. She seems to be compatible with all of you. Your family’s relationship with her isn’t anyone else’s business.
I am sort of surprised and pleased at the responses I have read so for.
For one reason.
I am wondering if the responses would be the same had your Dad posted the same question. I have read other comments in other posts when the subject of sex comes up, dating when your spouse or SO is ill, in a facility, has dementia or any other life altering condition. I get the feeling that most people want the spouse to "remain true" to the vows that were taken and just "suck it up" so to speak.
Anyway to your post.
Ignore them. I hope your dad and sister can also ignore them.
Your dad, if he wishes can put restrictions on visitors so if there are people that are nasty then they have lost the privilege of visiting. Or restrict the visitation to when you or your dad are there.
If there are unwanted gifts that appear then you can donate them to a local shelter and let the shelter know where the gift came from so they can send the thank you card. (ok maybe that is a bit passive aggressive.but they would get the hint)
The woman your dad is dating I am sure has no plans to "replace" your mom.
Your sister is old enough to know the difference.
She wants "normal" in her life so does your dad.
I suppose the important thing is...How much does your mom understand?
Would she understand if she is told by one of these people that your dad is dating? If she would understand how will she react?
If there is a possibility that she would find out and if she would understand then either restrict visitors or your dad needs to talk to her and let her know that he has found someone that he can talk to , go to dinner with, go see a movie. This information should come from him not some busy body who is on a mission to make your dad look bad.
((hugs)) to you, your mom, dad and sister.
Sometimes the parent needs to allow some time for even adult children to adjust to the reality of the ill parent being emotionally unavailable before those children are ready to see someone new in the home where both parents once lived. I believe adults can have companionship without flaunting it in ways that injure others.
And sometimes the very adult children need to just get real too. My father's first cousin was primary care giver for her husband with ALZ until his death (he was 89, my cousin was 85 at his death, 65 years of marriage). Six months later, she started seeing a high school sweetheart who had moved back "home" after his wife died 2 years before. They married 10 month's after my cousin's husband died at ages 88 and 89. Unfortunately, my cousin's 57 year old daughter was distraught that her mother had remarried so soon after her father's death even knowing her father had not spoken to her mother at all for over 2 years prior to his death. My cousin and her new husband were very happy for the 2 years and 9 months they had before the husband fell on iced steps and died of a brain hemorrhage. Now my 94 year old cousin is twice widowed and lives in an AL just down the road.
It's a complicated issue with different resolutions and timeframes for different families. I believe the responsibilities of marriage continue (financial, physical, and emotional support) even when one partner is too ill to continue a real relationship. Where no one is injured by seeking companionship no longer available in the marriage, I see no harm in filling those holes with other people, whether that's someone to share a meal or a movie or something more intimate. Whether we want it to or not, life does go on.
I don’t know what kind of comments or disapproval their other friends or community made but her family welcomed the relationship for what it was, love and companionship for two people who had lost their spouses, whether to disease or death and who both deeply cared for my for friend's mother.
I hope these people are not mean enough to say things to your little sister. And I hope you and your dad can explain to her why they are acting this way and how to handle it. If it keeps up you might need to get a lawyer involved, something about libel, defamation, restraining order, etc might cause them to back off.
I also hope you will be able to use some of the great suggestions here and be able to turn the other cheek. At the least mutter something about "glass houses" or "throwing stones" next time you encounter these nasties!
I feel sorrow reading your post; so many people suffering loss and trying to put "normalcy" back together. Whether or not your dad "dates" is his business. If you or he are worried about implications, talking to a family lawyer about his relationships and legal obligations may help sort out the "dating while married" issues. If you both belong to a faith group, talking with a counsellor of your faith group may help as well. It really is a matter of what is loving and kind for all parties involved.
You're going to break down every now and then it's part of the grieving process. Your mom is no long the same person, she's someone else. It doesn't mean that you love her any less, or that she doesn't love you (I'm a firm believer that love doesn't die) but for all intents and purposes her brain is broken and there is no way to "fix" it. It's akin to a person's death without the closure.
Have you been to any support groups or counseling? Not sure if you are working or still at school. College campuses have counseling programs at the school. If working, does your company offer some sort of an ehap (employee health advisory program)? You can get up to a certain amount of free counseling visits thru them. They can also point you to available support groups that could help.
Hugs to you and your family for all you've gone thru and the journey that is still to be traveled. Continue to love and support each other, keep us updated on how things are. This forum is a lifesaver, I have learned much from those who have walked this path before me.
Best wishes. Take care of you!