I had found 2 great caregivers by contacting my local Community College. 2 students were waiting for next semester to start. I told them I could work around their class schedules. This might be an option for you.
After you see the doctor in 5 months, do you feel that you will go home and get immediate relief? I looked it up under the Cleveland Clinic and there really is no cure but you can get symptom relief. The symptom management will be listed at the end, but you seriously need to look into longer term care in the future. Meanwhile you might try some of the suggestions below : How is dysautonomia managed or treated? There’s no cure for this condition, but you can manage the symptoms. Your healthcare provider may suggest many different therapies to manage your particular dysautonomia symptoms. The more common treatments include: Drinking more water every day. Ask your healthcare provider how much you should drink. Additional fluids keep your blood volume up, which helps your symptoms. Adding extra salt (3 to 5 grams/day) to your diet. Salt helps your body keep a normal fluid volume in your blood vessels, which helps maintain a normal blood pressure. Sleeping with your head raised in your bed (about 6 to 10 inches higher than your body). Taking medicines such as fludrocortisone and midodrine to increase your blood pressure.
Check your local caregiving places to see what they can offer, although it seems you need to start visiting ALs by what you describe before your body deteriorates more.
How is dysautonomia managed or treated?
There’s no cure for this condition, but you can manage the symptoms. Your healthcare provider may suggest many different therapies to manage your particular dysautonomia symptoms.
The more common treatments include:
Drinking more water every day. Ask your healthcare provider how much you should drink. Additional fluids keep your blood volume up, which helps your symptoms.
Adding extra salt (3 to 5 grams/day) to your diet. Salt helps your body keep a normal fluid volume in your blood vessels, which helps maintain a normal blood pressure.
Sleeping with your head raised in your bed (about 6 to 10 inches higher than your body).
Taking medicines such as fludrocortisone and midodrine to increase your blood pressure.
Check your local caregiving places to see what they can offer, although it seems you need to start visiting ALs by what you describe before your body deteriorates more.
Good luck!