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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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You mentioned Gabapentin... I gave my mom Gabapentin at bedtime and she woke up in the middle of the night in a hysterical panic. She came to our bedroom asking if we saw my dad.. said he was asleep next to her, he got out of bed and didn't come back. She was so panicked, she was putting on her shoes, in her nightgown, to go out and find him. My dad passed 3 years prior to that. My husband said we had no choice but to tell her the truth. When I told her that her medication is causing her to be confused, she was more aggetated... I finally told her he passed a few years ago and her reaction was as if I told her he just died in a car accident. She went pale and was on the verge of fainting.. she was uncontrollably hysterical. I had to call paramedics. She was taken to the ER. I told the doctor this never happened before and appeared to be a reaction to the Gabapentin. I Googled reactions and got mixed reviews.. some people did horribly. The ER doc did not agree and said it was an episode due to her dementia. She came out of it gradually and was back to herself 6 hours later.I never gave her Gabapentin again and she never had a similar episode again. Moral of story: don't believe everything a doctor says. Be proactive and use common sense. Also, I now list Gabapentin as an "allergy medication" for her.
I moved my 87 year old mother in with my husband and me 4 years ago when my father died. For those of you who struggle with a parent with dementia, it's not easy... But, add narcissism on top of that and it's h*ll. I've gained 40 lbs, my depression is in full force, I'm with her 24/7. If I do go out once in a blue moon, with a friend, she makes it so difficult for me... But I realized as long as I'm not having fun, she can tolerate my going out, so I say I'm visiting a dying friend in the hospital. I know paranoia is a dementia symptom, but it kills me that she doesn't trust me when I've been glued to her side my whole life looking after all her needs when she was quite capable... it's called enmeshment to the enth degree. I put up with all her sh*t cause I chalk it up to dementia, tho I've put up with it as long as I can remember. She's self centered and always has a reason to be unhappy and gloomy. It's like we live in a cave of darkness all the time. Oh, and did I tell you she's barely appreciative of all I do which is literally everything, but I guess after 40 years of my complete devotion, she sees all I do as an expectation... I have so much resentment for her controlling me since before I was aware of it... So now it's very difficult to put up with her cause I see her so much more clearly tho I still do 98 percent out of conditioned guilt. Bottom line, she doesn't qualify for Medicare and refused to part with 10 cents for any kind of companionship/aid. I'm depressed, overweight and at 62 I feel like my life is over.
I talked to my mom's neurologist about her moodiness & argumentative responses. We decided to keep her in the Gabapentin for her headaches and take her off the Namenda since there's no evidence that it really helps with the disease. Since she had been of it, her moods have gotten much better & she is much more cooperative. I have been awful busy and have not actively engaged in these forums but hope to more in the future. You all are a great resource & connection to have when trying to deal with everything. Thank you.
Jinx4740, thanks. Great suggestions that I will have to practice daily. I will most dedicated check out those you tube videos. It must be more difficult in many other ways when dealing with a spouse oppose to a parent. Last night I told my mom that it saddens me she thinks we would lie to her or (nastily) tells us we are saying she's a liar. I continued the conversation by reminding her that she tells us she forgets and gets mixed up and that's what we're also telling her...not that she's lying. She understood (this time). I also made a point to tell her that we love her and are trying to help her, that there is no benefit for us to lie. I asked if she trusted us and she responded positively. I assume at some point as he disease progresses that won't be the case. I have to make a commitment to put some time daily into reading and sharing. Again, thanks for your responses.
Jeanne's advice is on the money. All I have to add is to confirm how nearly impossible it is to avoid arguing, when they are so clearly WRONG!
Make it a habit to say to yourself, "She can't help it. It's the disease." Repeat several times an hour. After an occasion when you ended up arguing, go over what happened in your mind. What set her off? Why? What set you off? Why? Is there a way you could have avoided triggering her? Is there a way of looking at her words that would make you laugh instead of getting angry? No blame. Just process improvement.
My husband has the delusion that he formerly lived in this house years ago with relatives. I'm confident that he never did. It's just that his memories are unstuck in time now. When he tells me about that, I have learned to say, "Oh, really?" and let him talk. But one day he was talking about being in the house when his relative had the cabinets installed. I went a little ballistic, and spoke harshly to him. Then I realized why. He and I had chosen everything for our redecoration of OUR home. Now he doesn't remember that. I guess it cut pretty deep. When he asks if we are married, and asks my name, it rolls off my back. But forgetting our home renovations is another story. Go figure. So when I apologized for getting upset, I told him that it made me sad that he has forgotten that. It helped him to forgive me.
Hang around here and read about others' problems, and you will learn a lot. Try to imagine what is going on in your mother's mind, and try to feel compassion for her. Compassion makes it easier not to get angry or hurt. Look at Teepa Snow videos on Youtube. More knowledge makes caregiving easier. Do not seek perfection, and try to laugh! Good luck!
Wow! I'd be combative if I had 2 to 4 migranes a week! I hope that gets resolved.
Be sure to let her doctor know about all of her symptoms. Not all can be helped with medications, but some can and it is worth trying.
I think life would be easier if you avoid arguing. She thinks the water has been sitting there a long time? Give her a fresh glass, with ice and a smile. She forgets the walker? Set it down next to her, "here ya go, Mom," and smile. Smile a lot!
If the floor surface is not cluttered and Mom knows her way around by "furniture cruising" it may be more important to use the walker when you leave the house. Or consider a wheelchair for trips out.
Pick your battles. Don't argue when it doesn't matter. Reasoning is no longer an option. Would you argue with a 2-year-old? Would you let them goad you into yelling? Being right isn't nearly as important as maintaining harmony! Keep your goals in mind.
jeannegibbs, thanks for responding. My mom is not on anti-anxiety meds. We're going to a new neurologist. He is treating her for migraines mostly. They run in our family and she gets 2-4 a week. He just put her on Gabapentin which could be making her argumentative states worse. It sends whenever we tell her to do something she doesn't really want to do or hear, like use your walker mom, i just Gabe you that water outreach not been sitting thete since yesterday, are you tired mom. .. sends you can't keep your eyes open etc. She'll deny, get confused, mixed up and argue about it. All normal die a dementia person. I need to learn how to handle those behaviors where i don't lose control of myself and react by yelling. I know skews going to get worse and i really want to keep her out of a nursing home if i can. Biggest problem is when she ignores me and didn't use her walker. She's stumbled a few times and fallen. She doesn't recall of course. Her balance will get worse, I'm concerned she'll fall and break her hip.
A local caregiver group is a good idea, I'll have to look for one in my area.
SalGerm, the argumentative states have got to be very wearing! Is your mom on an anti-anxiety med? Have you discussed the argumentative states with her neurologist?
Belonging to a local caregiver group can be very validating.
Are the argumentative states constant or frequent or once-in-a-while? Is there any particular trigger than you've noticed? Over-stimulated? Tired? Bored? Hungry?
I am a new member. My mom was diagnoised with Vascular Dementia at the age of 80, she will be 88 next month. Since then I have noticed a slow stead decline. My heart aches for her and i want to take care of her but in my caregiving I find her argumentative states are tremendously annoying me that i find myself yelling at her. I need to find a way not to react... suggestions wecome. Since her diagnosis 8 yrs ago A Neurologist has diagnosed her with Alzheimer. We just have to take it somerimes, one minute at a time. Stubbornness is what keeps them going, we don't want to bask them cuz then they may loose the will to live. .. but we want / need cooperation. How do we get this when we can't reason with them?
I have been living this nightmare for some time. Knowone should have to go through this; it is killing me. The elder rage from my mother has become so much worse over the years. She abuses (verbally/physically/mentally) her immediate family and the rest of the world thinks that she is an angel. As an only child, I am exhausted, bitter and overwhelmed. I meet people from other countries who say that it is an honor to take care of their parents. I used to think so too. We Americans tend to throw our families into nursing homes and not look back. I used to think that it was cruel and unusual until her behavior over the years is not effecting my mental and physicall health. As soon as she is financially able to relocate to a place, I am going to strongly encourage her to move and finally - SAVE MYSELF. Sometimes, love from a distance is BEST.
We recently moved our mother back into her own home. She has dementia and had a stroke in May of this year too. She was the sweetest most reserved person before the onset of dementia.....now it's like night and day, the complete opposite of what she was like. She refuses to bathe, change her clothes or help with toileting....and she is very strong when in this state! We have no exprience in this area and are looking for answers on our options. We don't have the financial resourses to admit her to these places...they all seem to cost to much.Please, Where can we get help to place her if we need to in our area in skagit co. wa.
WOW this is a tough situation! But you have to be fair and honest to everyone...including yourself. May you all find a happy middle ground to stand on.
HAPFRA: What great advise. Each of your suggestions provides an excellent basis for harmonious living! REGARDLESS of the age of the person, it is an adjustment for anyone to be moved, 38, 88, it doesn't matter.
Ummmm. What would you do if she were 38, combative and argumentative? You would have her leave, wouldn't you? Is there any way that she could live elsewhere? Funding is usually the problem, but in this case, I would find the money to have her live out of your house.
Some tips I found that may be of help to your family:
•1 Discuss everything in advance. Your parents are probably used to living independently in their own home, and it may be difficult for them to adjust to living under someone else's roof, with someone else's routines and expectations.
•2 Talk about all the issues you can think of before they move in, create an atmosphere of mutual respect, and try to come to some compromises that will work for everyone in the family.
•3 Clearly establish the "house rules" as tactfully as possible, and agree on each person's responsibilities and limits within the home. Each family has its own identity, and the addition of elder parents to the formula can often disrupt family harmony for a while, even when it's handled with great care and sensitivity.
•4 Consider your children, if they still live at home. When Grandma and Grandpa move in, it can be a difficult adjustment for kids and teens, so set some boundaries that everyone can live with. Your children need to be considerate of their grandparents, but the grandparents also need to step back and let you discipline your own children when necessary.
•5 Make sure everyone has some privacy. This may mean possibly adding a separate suite to your home, installing an extra bathroom or even just rearranging your home slightly. Even though your parents no longer live in their own home, they'll still want some space of their own and some private time to themselves.
•6 Figure out what goes where. This may sound obvious, but it can be tricky. Your parents have been surrounded by their own furniture and possessions for many years, but your house is almost certainly not big enough for two sets of furnishings. Perhaps some things can be sold, given to relatives or put into storage.
•7 Work out a budget. Will your parents be contributing some of their pension money to cover household expenses, or will you be paying for everything? Never make assumptions, especially when it comes to finances. Discuss the situation ahead of time.
•8 Let your parents help around the house if they want to and are physically able to. Many seniors connect their sense of self-worth with their "usefulness," and it can be difficult emotionally if most or all of their daily tasks are taken over by someone else.
•9 Encourage your parents to maintain their independence and to stay active. This will benefit their physical and emotional health.
•10 Be patient - it can take a while for the rhythms of the household to re-establish themselves after such a big change.
If a behavior issues still continue-consult a neurologist or familt physician about how to keep things harmoneous-if at all possible--if dementia is involved there may be a relatively easy fix.
Best to all on your caregiving journey~and the handeling of your combative parent/s.
Keep in mind that everyone is different, but here's what helped me when my wife (78) became angry and difficult to deal with. It's not her character but I had noticed a gradual decline over several years. I researched the Internet and Found Dr John Lee's progesterone cream. (I have no financial interest in this) A pea size dose on thin skin applied once daily has greatly improved my wife's demeanor and improved her appetite. Her doctor is okay with this, but it made no difference to my wife's memory devastated by dementia.
Was this normal behavior for her while you were living at home, or is this new behavior? If it were my mother, and she DIDN'T have dementia/alz issues, I would be sitting her down and talking to her about her behavior. I would tell her that if she doesn't like living with me, then she's free to move into asst living or whatever. BUT if it's related to her mental decline, then that's a whole different story. Then probably a doctor should be brought into the picture to evaluate her and see what's going on. I hear they make pretty good 'happy pills' :)
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
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APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
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If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
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This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I've gained 40 lbs, my depression is in full force, I'm with her 24/7. If I do go out once in a blue moon, with a friend, she makes it so difficult for me... But I realized as long as I'm not having fun, she can tolerate my going out, so I say I'm visiting a dying friend in the hospital. I know paranoia is a dementia symptom, but it kills me that she doesn't trust me when I've been glued to her side my whole life looking after all her needs when she was quite capable... it's called enmeshment to the enth degree. I put up with all her sh*t cause I chalk it up to dementia, tho I've put up with it as long as I can remember. She's self centered and always has a reason to be unhappy and gloomy. It's like we live in a cave of darkness all the time. Oh, and did I tell you she's barely appreciative of all I do which is literally everything, but I guess after 40 years of my complete devotion, she sees all I do as an expectation...
I have so much resentment for her controlling me since before I was aware of it... So now it's very difficult to put up with her cause I see her so much more clearly tho I still do 98 percent out of conditioned guilt.
Bottom line, she doesn't qualify for Medicare and refused to part with 10 cents for any kind of companionship/aid. I'm depressed, overweight and at 62 I feel like my life is over.
Again, thanks for your responses.
Make it a habit to say to yourself, "She can't help it. It's the disease." Repeat several times an hour. After an occasion when you ended up arguing, go over what happened in your mind. What set her off? Why? What set you off? Why? Is there a way you could have avoided triggering her? Is there a way of looking at her words that would make you laugh instead of getting angry? No blame. Just process improvement.
My husband has the delusion that he formerly lived in this house years ago with relatives. I'm confident that he never did. It's just that his memories are unstuck in time now. When he tells me about that, I have learned to say, "Oh, really?" and let him talk. But one day he was talking about being in the house when his relative had the cabinets installed. I went a little ballistic, and spoke harshly to him. Then I realized why. He and I had chosen everything for our redecoration of OUR home. Now he doesn't remember that. I guess it cut pretty deep. When he asks if we are married, and asks my name, it rolls off my back. But forgetting our home renovations is another story. Go figure. So when I apologized for getting upset, I told him that it made me sad that he has forgotten that. It helped him to forgive me.
Hang around here and read about others' problems, and you will learn a lot. Try to imagine what is going on in your mother's mind, and try to feel compassion for her. Compassion makes it easier not to get angry or hurt. Look at Teepa Snow videos on Youtube. More knowledge makes caregiving easier. Do not seek perfection, and try to laugh! Good luck!
Be sure to let her doctor know about all of her symptoms. Not all can be helped with medications, but some can and it is worth trying.
I think life would be easier if you avoid arguing. She thinks the water has been sitting there a long time? Give her a fresh glass, with ice and a smile. She forgets the walker? Set it down next to her, "here ya go, Mom," and smile. Smile a lot!
If the floor surface is not cluttered and Mom knows her way around by "furniture cruising" it may be more important to use the walker when you leave the house. Or consider a wheelchair for trips out.
Pick your battles. Don't argue when it doesn't matter. Reasoning is no longer an option. Would you argue with a 2-year-old? Would you let them goad you into yelling? Being right isn't nearly as important as maintaining harmony! Keep your goals in mind.
like use your walker mom, i just Gabe you that water outreach not been sitting thete since yesterday, are you tired mom. .. sends you can't keep your eyes open etc. She'll deny, get confused, mixed up and argue about it. All normal die a dementia person. I need to learn how to handle those behaviors where i don't lose control of myself and react by yelling. I know skews going to get worse and i really want to keep her out of a nursing home if i can. Biggest problem is when she ignores me and didn't use her walker. She's stumbled a few times and fallen. She doesn't recall of course. Her balance will get worse, I'm concerned she'll fall and break her hip.
A local caregiver group is a good idea, I'll have to look for one in my area.
Thx for the welcome. :)
Belonging to a local caregiver group can be very validating.
Are the argumentative states constant or frequent or once-in-a-while? Is there any particular trigger than you've noticed? Over-stimulated? Tired? Bored? Hungry?
Welcome to the forums.
•1
Discuss everything in advance. Your parents are probably used to living independently in their own home, and it may be difficult for them to adjust to living under someone else's roof, with someone else's routines and expectations.
•2
Talk about all the issues you can think of before they move in, create an atmosphere of mutual respect, and try to come to some compromises that will work for everyone in the family.
•3
Clearly establish the "house rules" as tactfully as possible, and agree on each person's responsibilities and limits within the home. Each family has its own identity, and the addition of elder parents to the formula can often disrupt family harmony for a while, even when it's handled with great care and sensitivity.
•4
Consider your children, if they still live at home. When Grandma and Grandpa move in, it can be a difficult adjustment for kids and teens, so set some boundaries that everyone can live with. Your children need to be considerate of their grandparents, but the grandparents also need to step back and let you discipline your own children when necessary.
•5
Make sure everyone has some privacy. This may mean possibly adding a separate suite to your home, installing an extra bathroom or even just rearranging your home slightly. Even though your parents no longer live in their own home, they'll still want some space of their own and some private time to themselves.
•6
Figure out what goes where. This may sound obvious, but it can be tricky. Your parents have been surrounded by their own furniture and possessions for many years, but your house is almost certainly not big enough for two sets of furnishings. Perhaps some things can be sold, given to relatives or put into storage.
•7
Work out a budget. Will your parents be contributing some of their pension money to cover household expenses, or will you be paying for everything? Never make assumptions, especially when it comes to finances. Discuss the situation ahead of time.
•8
Let your parents help around the house if they want to and are physically able to. Many seniors connect their sense of self-worth with their "usefulness," and it can be difficult emotionally if most or all of their daily tasks are taken over by someone else.
•9
Encourage your parents to maintain their independence and to stay active. This will benefit their physical and emotional health.
•10
Be patient - it can take a while for the rhythms of the household to re-establish themselves after such a big change.
If a behavior issues still continue-consult a neurologist or familt physician about how to keep things harmoneous-if at all possible--if dementia is involved there may be a relatively easy fix.
Best to all on your caregiving journey~and the handeling of your combative parent/s.
Hap