Please look online as they sell a big pad that has four handles at each corner that is put under the patient so that the caregiver can pull on the handles and turn the patient over. We had the same problem with my mom when she was in a hospital bed.
Tell his PCP, you want an order placed for hospice assessment and admit to hospice of your choice per hospice evaluation. This will give you in home support, RN, CNA, SW, Chaplain etc etc to help you not only with daily care but SW will also be able to help you assess facility options if you choose. Also equipment will be provided by hospice in the home with instructions how to use as assessed by the RN Case Manager assigned. Also you can send him to hospice respite care to give yourself a break and let them assess him further while there ( 5 days paid for by hospice).
Or tell his PCP you need him admitted to a skilled care facility ASAP. Get a case manager assigned to you to help find facility care for him.
You cannot do this alone. Do not let him nor anyone guilt trip you. Get Help ! Today !
Is this a problem in the morning when he's trying to get out of bed? This could be a morning off period until his morning meds kick in. Several options here- how about an extended release med at night so he still has dopamine in his system in the morning....or wake up earlier just to take a med in bed and then try to get up after the meds kick in. Try sheets and bedclothes that are like satin...slippery so there's less friction in moving. Also have a pole from floor to ceiling installed next to the bed so he can grab it and use it to help pull himself up. These are sold on medical equipment stores or online. Discuss this with an Occupational Therapist for additional ideas. He must have other issues that could could benefit from so m e professional advice.
We have the oasis bar/ handle on side of bed. Also use satin sheets. Takes ER sinemet going to bed. goes to pt my fear is the parkinsons is progressing. Heartbreaking maybe just take more sinemet; seems to always be the answer.
P.S. Addendum to my earlier response: If your husband is assessed by hospice and determined to be not yet hospice appropriate, the physician can certainly refer you to In Home Care agencies. In fact some hospice entities also have a division of " in home care" that serve patients until / if they become hospice appropriate. And do not let the PCP tell you whether your husband is hospice appropriate or not! Only the hospice evaluation by the hospice RN determines " hospice appropriateness ". It is the up to you and ( if your husband is A/ O ) you and your husband decision if you want to accept hospice care. Remember hospice is not about dying; hospice is about patient and family quality of life in the midst of a life limiting illness .
You have choices: 1. Hospice ( you can also call a local hospice of your choice and talk with Clinical Supervisor about your situation. They will be glad to speak with you and follow up as you both decide). 2. In Home Health Care Services 3. Placement in facility care 4. If husband is veteran, veteran in home care services or other care. Contact VA. 5. Call 911 and have him transported to ER . 6. Call his PCP, today, tell him/ her you need help !!!
I have read through just a ton of good advice on this thread, Kk92, and I hope you will return with a response as to whether any of this was of help to you?
That said, my concern here is for YOU. Given the weight, and whether or not you have a bed with adjusting height, I am worried for your back. No matter how carefully we nurses practiced "body mechanics" and no matter how many assistive devices we had, I don't know a single one of us who did not retire with "old nurse's back".
An injury to you in attempting exemplary care will mean no caregiver whatsoever for your husband. You would likely not even be able to be sufficiently active to find a good facility for him.
And without sufficient turning and with obesity, a decubitus cannot be avoided that I can see. These can be deadlyl.
As hard as it is to do, to admit, I am wondering if this is not the time to consider long term care?
I cared for my mom who had Parkinson’s disease. As the disease progresses, mobility becomes more challenging. How far along is your husband’s Parkinson’s disease?
Please speak with your husband’s doctor about ordering home health. It makes a big difference.
Mom never had a weight issue. In fact, she was very thin. I’m sure that your husband’s weight is making his situation more difficult but thin people like my mom struggled too.
Parkinson’s disease is a neurological disorder and even though the brain gives the signal to move, the body begins to lose it’s ability to follow signals that are sent from the brain.
People who have Parkinson’s disease struggle with strength and balance. Home health will focus on a program that is designed specifically for Parkinson’s patients. They send an occupational therapist and a physical therapist. You need both of them.
I gave my mom’s therapists a list of the most difficult things that she struggled with. The occupational therapist went into my mom’s room and gave mom and I useful instructions. She even rearranged mom’s furniture to make things easier for her. I ordered a railing for mom’s bed so she could have something to hold onto while moving to get out of the bed.
The physical therapist worked on strengthening mom’s core muscles and balancing issues. Mom was in her 90’s and showed improvement so don’t lose hope.
I will say that my mom worked really hard in home health and rehab and her results were good.
I would be concerned about pressure sores due to lack of mobility. Mom dealt with those and the home health nurse was excellent in treating them. She happened to be a trained in wound care before doing home health.
Home health also sends an aide to help with bathing.
Look up YouTube videos called “rolling a patient in bed and look up devices on Amazon. It would be best if you have a home health aide to assist with this. Sometimes a sheet is used also.
https://parkinsonsocialnetwork.org/2018/10/26/rolling-over-in-bed/
Have you discussed this with his doctor or Physical Therapist?
Also you can send him to hospice respite care to give yourself a break and let them assess him further while there ( 5 days paid for by hospice).
Or tell his PCP you need him admitted to a skilled care facility ASAP. Get a case manager assigned to you to help find facility care for him.
You cannot do this alone. Do not let him nor anyone guilt trip you.
Get Help ! Today !
goes to pt
my fear is the parkinsons is progressing. Heartbreaking
maybe just take more sinemet; seems to always be the answer.
Addendum to my earlier response:
If your husband is assessed by hospice and determined to be not yet hospice appropriate, the physician can certainly refer you to In Home Care agencies. In fact some hospice entities also have a division of " in home care" that serve patients until / if they become hospice appropriate. And do not let the PCP tell you whether your husband is hospice appropriate or not! Only the hospice evaluation by the hospice RN determines
" hospice appropriateness ". It is the up to you and ( if your husband is A/ O ) you and your husband decision if you want to accept hospice care. Remember hospice is not about dying; hospice is about patient and family quality of life in the midst of a life limiting illness .
You have choices:
1. Hospice ( you can also call a local hospice of your choice and talk with Clinical Supervisor about your situation. They will be glad to speak with you and follow up as you both decide).
2. In Home Health Care Services
3. Placement in facility care
4. If husband is veteran, veteran in home care services or other care. Contact VA.
5. Call 911 and have him transported to ER .
6. Call his PCP, today, tell him/ her you need help !!!
Peace.
That said, my concern here is for YOU. Given the weight, and whether or not you have a bed with adjusting height, I am worried for your back. No matter how carefully we nurses practiced "body mechanics" and no matter how many assistive devices we had, I don't know a single one of us who did not retire with "old nurse's back".
An injury to you in attempting exemplary care will mean no caregiver whatsoever for your husband. You would likely not even be able to be sufficiently active to find a good facility for him.
And without sufficient turning and with obesity, a decubitus cannot be avoided that I can see. These can be deadlyl.
As hard as it is to do, to admit, I am wondering if this is not the time to consider long term care?
Please speak with your husband’s doctor about ordering home health. It makes a big difference.
Mom never had a weight issue. In fact, she was very thin. I’m sure that your husband’s weight is making his situation more difficult but thin people like my mom struggled too.
Parkinson’s disease is a neurological disorder and even though the brain gives the signal to move, the body begins to lose it’s ability to follow signals that are sent from the brain.
People who have Parkinson’s disease struggle with strength and balance. Home health will focus on a program that is designed specifically for Parkinson’s patients. They send an occupational therapist and a physical therapist. You need both of them.
I gave my mom’s therapists a list of the most difficult things that she struggled with. The occupational therapist went into my mom’s room and gave mom and I useful instructions. She even rearranged mom’s furniture to make things easier for her. I ordered a railing for mom’s bed so she could have something to hold onto while moving to get out of the bed.
The physical therapist worked on strengthening mom’s core muscles and balancing issues. Mom was in her 90’s and showed improvement so don’t lose hope.
I will say that my mom worked really hard in home health and rehab and her results were good.
I would be concerned about pressure sores due to lack of mobility. Mom dealt with those and the home health nurse was excellent in treating them. She happened to be a trained in wound care before doing home health.
Home health also sends an aide to help with bathing.
Best wishes to you and your husband.