Follow
Share

I try to be caring but I don’t always carry it off. He had both hips replaced in the last year but refused to rehab so he still won’t walk much. He watches TV and is in a recliner at least 20 hours a day. He won’t help around the house and says he isn’t depressed so won’t seek help there. Recently, he injured his leg and he’s on blood thinners so it was a mess to say the least. I got him bandaged then had to clean up the mess as he walked all over. He has refused to wash his hands for years so the wound got infected. It took having our daughter come over to get him to the ER. They gave him antibiotics and he kept taking them on an empty stomach and drinking beer all day so he got very nauseous. I had to get him on a teledoc visit, because he wouldn’t go to the doctor, and it took a lot for me to get his antibiotic changed and nausea meds. I arranged at home wound care. I just heard him gag again because he took the new med on an empty stomach. I’m about to lose my mind. Suggestions are so welcome!

Find Care & Housing
What a complex situation. He is about to get worse plus he is most likely an alchoholic. With his next accident you call 911 but on top of his expected refusals, you also ask for a 72 hour psych hold to assess if he is no longer safe at home. Make sure you tell staff how much he has been drinking because he might also need detox care. Next time he is hospitalized because of some accident, when you get the call for rehab or discharge, you need to speak up and say it is an unsafe discharge and you can no longer care for him. This gets the social worker involved for long term care.
Helpful Answer (6)
Reply to MACinCT
Report

You cannot reinvent your husband into a better patient and into someone making better decisions. You and only you can decide how much you can handle and decide either to suck it up and continue as you are or consider either the alternative of placing him in a facility or getting in-home help to take the stress off you. There aren't many other choices. Just remember you are older than him and the stress of caring for him can take its toll on you. You could go first.

Please also don't make this your children's problem. They have their young families to raise. Figure out what's best in your situation.

Wishing you the good luck as you navigate this sad situation. It isn't easy.
Helpful Answer (5)
Reply to Hothouseflower
Report
Janew6 Jul 14, 2024
Thank you for your thoughtful input. I don’t wait on him and never will. But I think you are right in that this is taking a toll on me. I will speak to his doctor about his lack of activity and about getting a cognitive assessment.

Agree that our children don’t need this dumped on them while raising their families. I already worry that they are too involved as it is.

Thank you. You helped.
(1)
Report
I have some disappointing news for you...
At 72 he is not going to change.
What you can do for yourself though is this
Next time he has to go to the hospital talk to a Social Worker and tell them it is getting difficult for you to care for your husband at home. He is NON COMPLIANT and he needs rehab to gain strength.
You could also talk to the wound care nurse as well. Maybe he would do better in rehab.

What you can do at home...
Do not bring him a drink, a snack, a meal.
If he wants any of those he can get up and get them himself.
If he wants the paper, he can get it.
If he wants the mail, he can get it.
Ya see where I'm going here?

As for helping. Bring him laundry to fold.
After dinner if he refuses to do the dishes then maybe next time you do the dishes, he makes dinner and if he does not make dinner then you can fix something for yourself and he can fix something for himself.
I guess I am trying to say stop making it so easy on him to not do anything.

Oh, if he listens to your daughter more then you maybe she can tell him that you are getting burned out and you are going to end up needing more care than he does and where will that put both of you...
Helpful Answer (5)
Reply to Grandma1954
Report
sp196902 Jul 12, 2024
He doesn't wash his hands. I don't think I would want him touching anything.
(1)
Report
Sounds like hubby has some dementia going on from what you describe, to be honest. Who walks around trailing blood all over, refuses to wash their hands and causes an infection as a result, refuses PT, and sits in a recliner for 20 hrs a day? Not to mention continuing to take antibiotics on an empty stomach which causes issues. Those w/o cognition issues would realize the error of their ways and fix it after the first incident of nausea.

He needs a cognitive evaluation asap. Then you'll know what you're dealing with and why he's so stubborn. You'll become more and more of a caregiver as time goes on, too, so being surprised at suggestions you're given (After asking for them) isn't a good idea. Be open minded and keep reading the forum. If hubby is diagnosed with dementia, you'll need to formulate a plan to bring in help for yourself. Even if he isn't, you still need help because he's not paying attention to hygiene and helping you around the house.

We all love our loved ones.....but we need to recognize and acknowledge issues they have, like alcoholism for instance, which is a BIG cause of dementia and cognitive impairment, so we're not enabling such behavior anymore.

Wishing you the best of luck getting to the root of these issues with DH.
Helpful Answer (5)
Reply to lealonnie1
Report
Janew6 Jul 14, 2024
I will schedule a cognitive test. Thank you.
(2)
Report
You have multiple problem here including having an alcoholic for a husband on top of everything else.
The next time any issue arises with your husband you call 911 and have him taken to the ER. Once there you let them know in no uncertain terms that your husband can no longer return home as he is an unsafe discharge, and you can no longer care for him. Period. End of sentence.
They will of course lie to you and offer you all the things they can do to help you but PLEASE don't fall for it.
Instead, stand your ground and let them know that he CANNOT return home, and they will have to find the appropriate facility to place him in.
And if money is an issue Medicaid can be applied for.
Your husband belongs in a nursing facility now, as his care is WAY too much for you, so don't be afraid to call 911 sooner than later.
Helpful Answer (4)
Reply to funkygrandma59
Report
Janew6 Jul 12, 2024
I appreciate your input. I have four kids and 8 grandkids who adore him. I can’t just refuse to bring him home. I’m actually surprised at the suggestion.
(0)
Report
See 3 more replies
"...drinking beer all day..."

So he is an alcoholic and you are his enabler.

Yes to Al Anon meetings for you.

If he has been drinking for a long time, he may be in danger of having Wernicke-Korsakoff Syndrome, which is a type of dementia that alcoholics can get. If caught early enough it can be treated (because it comes from a vitamin deficiency created by the alcoholism).

You will need to figure out healthy boundaries with him before you completely burn out. Are you his PoA? Does he have one? If not, he should be encouraged to do this. If he doesn't he is a candidate to become a ward of a court-assigned legal guardian. Then you won't have to deal with him anymore. But this takes time and you could burn out beforehand. You need to make some hard decisions that won't sit well with the family who "adores" him -- but they're not the ones who are orbiting around this bum at the cost of their own health and happiness.
Helpful Answer (3)
Reply to Geaton777
Report

Hi Jane - wow, it sounds like you have a lot to contend with! Well, I'm sure you realize if the situation doesn't change with your husband, it just gets worse in time....fast forward, what will he be like in 10 years? And, how much will you be doing for him?

If I were you, I wouldn't remain passive with him and his ways. Yea, he made a mistake not to go directly into a skilled rehab after his surgery - that could have helped immensely. Can you ask his doctor if there is any chance for him to still be admitted? A rehab really helps - they would be encouraging your husband and working towards his recovery and walking, etc.

If that's not feasible, then you can also speak to his doctor about getting in-home physical therapy weekly - the therapist can come to your home - it's done all the time. At least that's a start. Your husband should be doing the proper exercises to strengthen his body. And the drinking beer all day, watching TV all day - and not even getting out of the chair - yikes - how long has that been going on for? No wonder you feel like his caregiver!

If I were you, I would be very tough on him - I couldn't handle his drinking beer all day and expecting you to be serving him. The drinking needs to go - he has an empty stomach and still drinking and taking antibiotics - he's not taking care of himself - not even his hygiene. That's too much for you to handle - he needs to step up, take ownership of his life, take responsibility - and take measures to improve his health and his life. Is he capable of doing so? If not - and he remains as is, he's setting himself up to fail and pulling you down with him.

I hope things change for you and positive steps happen. Wishing you all the very best ~
Helpful Answer (2)
Reply to Hopeforhelp22
Report
Janew6 Jul 15, 2024
Your response was very supportive and helpful. Our insurance refused in patient rehab. And he did have at home PT after each hip replacement. He was supposed to go to outpatient PT and he did for awhile but quit. He still hardly walks. I really can’t afford to have him placed in care. He never got nursing home insurance while he was working. I have it so maybe I should just put myself in assisted living. Ha.
I am going to look into several suggestions that I’ve gotten here and try my best to unburden myself as much as possible. I have never waited on him. I prepare food and he gets his own but my workload is pretty heavy.
(3)
Report
See 1 more reply
You “have four kids and 8 grandkids who adore him”. You are seeing him and the twelve grand/kids as more or less forcing you to wait on your DH. It sounds as though the twelve adoring ones haven’t seen the down side of all of this – for his future as well as for you.

My suggestion is that you tell the twelve more honestly what this is like for you. Even if you think they don’t ‘adore’ YOU, they surely must have some concerns about what reality is like for you now – if they are honestly informed. Tell them that posters here have suggested that you consider an aged care facility for him. If you were "actually surprised at the suggestion", it will shock their socks off. Ask them how THEY can work on him behaving more sensibly. If you can, get the lot of them together to discuss it.
Helpful Answer (2)
Reply to MargaretMcKen
Report

Rehab
Helpful Answer (1)
Reply to KNance72
Report
againx100 Jul 15, 2024
Rehab is the only place my mom will do PT. Outpatient, with the expectation of more being done at home without them to cajole her, just does not work unless the patient is self motivated.
(1)
Report
This post is from July and the OP has responded but not since then.
Helpful Answer (1)
Reply to Geaton777
Report
Peasuep Sep 18, 2024
Ah yes. It popped up in my feed. I hope Jane got it straightened out.
(0)
Report
See All Answers
Ask a Question
Subscribe to
Our Newsletter