I have written here before, some years ago. It's been 9 years since the passing of my beloved mother. For every time I fall into this black hole of blaming myself for my mother's death, it tends to get deeper and deeper, and I honestly don't know how to continue living.
My mom was dying and one night had rapid, hard and loud respirations (no mucus) without any pauses. This went on for 9 hours before she passed.
It was my fault that she passed that night.
I rang the nurse who came and gave her a shot of morphine and sedatives (called Stesolide in my country). Maybe it eased it a little bit, but the rate was just as high, around 50 breaths per minute. In panic I rang again after 30 minutes, and said that I didn't think it helped. I thought that the shot would have a significant effect, so Mom's breathing would ease, little did I understand at the time. It was the experience for HER that it helped, the morphine couldn't CHANGE her breathing. It was I, a scared daughter who panicked. I so wish the nurse would have spoken to me, telling me this, calming me down and also telling me what another shot of morphine that close to the first one would do.
My mother died 2 hours after the second shot.
So, I basically killed the one person I loved the most on this earth. :(
My mother was totally awake and alert that night and would have lived some days more. But I destroyed her remaining time and I made a farewell impossible.
My brother had gone home during the day, and I WENT TO BED AN HOUR BEFORE SHE PASSED! I didn't understand what was going on. I thought that she would be able to rest after the morphine and we would meet in the morning (a lady from the nursinghome staff went to sit with her).
I hastened my mother's death and I went to bed, and I feel this guilt has destroyed my remaining life. I feel so alone with this, I have tried to look for other people that have experienced something similar, but I haven't found anyone.
My mother was dying from pneumonia, she had been sick for 15 years from multiple strokes, we had been there for some days before this happened, but the nurse had said it would take time. It breaks my heart that she had to pass this way. :(
I don't know if I have a specific question, besides how do you carry on living with a guilt like this?
If someone have experienced the same kind of regular very fast breathing without any pauses, that would also help to hear. It was so hard to witness.
I have been in the black hole of guilt- depression, replaying my father’s death over and over. … please keep reading my note to you even after I say this next part.
you must get counseling and possibly ( even fir the short term) medication. You must do this b/c you know that your beloved mother would not want her daughter to suffer. Am I right? Re-read that last sentence. She would not want you in this anguish.
i think what would also be extremely helpful to you, which I did , is to talk to Dr about the process of death and how morphine affects the body. Your mom was in DISTRESS. You and the PROFESSIONALS did the correct thing. If the microphone would have hastened her death, the staff would have said “no”. What the Morophine did was to slow her heart rate so her panic at not being able to get enough air ( I’m sorry if this is bringing back memories) was lessened. It calmed her panic.
there are people who believe there might be a miracle~ even though they are watching the death process. I can respect that. Miracles happen, but, dear friend, they are rare. As much as you want to think you were controlling the situation ( her death), you were not. Call it God, call it biology. You , the nurse, dr, etc we’re not in control then. You ARE in control now. Seize this control.
One more thing. Often loved ones pass away when the people they hold dearest to them are not watching. Again, call it God, natural instinct…. I don’t know why, but perhaps it was a last kindness to you. You must be gentle with yourself.
I beg you to seek counseling bc the days you wished for your mom are being given to YOU. Life is exquisite… please live it.
With Love.
Have you considered that your mother was ready to die? That she knew she would not recover and wanted you to be spared watching her pass? She obviously knew you would not be able to deal with this and tried to make it easier for you. She is not in pain or distress, she had a long life, and you are wasting yours.
Guilt has no place in life. If you did something wrong, which you did not, you need to make amends. The only way to do that for someone who has died is to live your life for both of you: do the things your mom would have done; experience the things and the joy she is no longer here to share; live each day as she would have wanted. Be loved and loving, appreciate your family and friends, enjoy the good and the beauty in the world.
To say with 100% accuracy that the last shot of morphine was the reason she went a little quicker, is something you are devising in your own brain and are continuing to promote to yourself, the question is why?
I would strongly urge you to go to therapy, get some help, this self-imposed guilt is something that you have been manifesting way to long. It appears that this thought process has all consumed you.
Keep in mind, we are all destined to die, you or no one else here on God's Green Earth is powerful enough to stop the process.
I for one would prefer dying quicker, suffering in pain is not my thing.
IMO you were wanting her to live longer for you, not her, maybe she was ready and that is what happened she made the decision to move onto a better place, this you will never know!
That is extremely well put. Thank you.
He was in the hospital with end stage CLL. Slowly drowning in the fluid that was building up his in lungs. He could not cough it up and he was trying, but no strength and no energy to do so.
We get a call that he is actively dying--and we hustle to the hospital. The oncologist met with us (Dh and me, SIL and BIL) and he explained that dad could NOT recover from this, as he had almost no red blood cells and he was actively dying and miserable. Dr asked if he could give dad a shot to 'ease his discomfort'--Dh and SIL just looked like deer in the headlights. I stepped in and said "that would be wonderful"--you guys OK with that?" which was all the dr needed. He stepped up to the head of the bed and the IV hanging there and proceeded to empty a HUGE bolus of morphine. He kept his back to us, but I knew he was essentially ODing dad on morphine. And GOD BLESS HIM for that.
FIL died less than 15 minutes afterwards.
It took YEARS for my Dh to not blame me for 'pushing' the morphine. IDK what he thought was going to be the outcome.
8 months later I was doing the same thing for my sweet dad.
KarenBe--you are wasting YOUR life second guessing your decision. I hope you find a good therapist to help you through this.
Those few days you wish for would have been very unlikely to have led to a romantic farewell; instead, as an RN I have seen them come to begging for an end, begging for help. If you want to speak of guilt for allowing that to come, I would understand your reasoning, but for peace and a gentle final exit, and after this number of years, I am afraid you may need help beyond what a forum may be able to give you.
I truly would suggest counseling and therapy, and I am not someone who says this without having HAD the same three times in my life when my own ability and understanding was insufficient to handle a life crisis. While mourning is individual to us all, for you to take on this responsibility of guilt, has a whole pattern that needs to be combed out with help of a professional. Guilt beongs to felons, and they never feel it. What you are experiencing is grief, and it is now, at almost a decade, too long to carry this.
People have many subconscious reasons for remaining in a state of guilt. Guilt implies that thee was an answer, one you chose not to hear. That there was a cure you refused. That something could have been different and you chose not to see it. Guilt implies you could have fixed all this. Am that is a kind of hubris. It suggests you are godlike, or at least a good fairy with a strong wand. Grief, instead, understands that loss comes to us all, and is the price of our giving and receiving love, which enriches our lives.
I am sorry for your loss, but it sadly does not honor to your Mom. Would she not have wanted you to ease her death and celebrate the wonder of her life?
I encourage you to seek help from a good therapist. I have found that often for life transitions work a private practice certified Licensed Social Worker is best. I wish you so much luck and my heart goes out to you.
Are you a trained doctor, nurse, palliative care attendant? Or have you lived experience from attending many family deaths & have witnessed various end of life breathing changes?
Warning: more tough love;
Was the timing, doses & deliveries of medications inc morphine up to you? Only you?
No. These things are prescribed, timed & delivered by medical staff.
STOP beating yourself up over any lack of medical & end of life knowledge.
STOP telling yourself so many lies. #1 lie is that you had all the control over someone's life or death. A lie. You didn't.
Absolutely reach out for grief counseling. Lay this burden down where someone professional can help you sort through all the emotions. Show you the lies too.
I do honestly wish you peace.
No, I am not a trained nurse and yes, it was the first death I ever attended (not really attended, since I went to bed).
I wish the nurse and the doctor haven´t agreed to try and "save" her, they later admitted there wasn´t any chance, they said yes to that, just to please us, her kids. So the night she died, we didn´t know what to believe, was she dying or wasn´t she??
it was not the chief nurse that administred the medication that night, it was a nurse that was on night duty.
Later I recieved my Mom´s records( is that the word, medical journal in my country) and they had changed the times of when the morphine shots were given. This is clear evidence that thing were not handled the right way.
I later also found out that the nurse who worked that night had been fired..
and the
I see 3 points in your story that are a focus. The nurse had said it would take time; you called and they gave shot; and you didn't get to say goodbye.
Firstly, the nurse tried to prepare you but she doesn't know. Every time they give us a prediction, it's wrong. I think mom's breathing change is an indication of a change in status. She probably had only hours to go. In hindsight, you really needed that nurse to update you that night, giving you a better indication. She wasn't perfect.
The shot sedated her yes. But the nurse knew what she was doing. She wanted to relieve your pain as much as mom's. In reality mom may have been hanging on cuz you were there. She was looking at an agonizing wasting. Instead she was asleep.
It seems you wanted an idyllic death while you were there. But most often they wait til you leave the room briefly to die. They stick around because you are there. Your mom already know how much you love her. She knew you were there for her. It was easier for her to go like she did. How do you know? Maybe this was the way it was supposed to be.
I hope I didn't cause you more guilt or sound too simplistic or trite. Every step of this is traumatic and you question everything. But your mom had a good death too. Just not the one you wanted.
We're happy you have found the support of others here on this site. You've already received some excellent advice, but there are limits to what untrained members of the forum can provide for you.
If you are experiencing thoughts of suicide, please reach out to experts for additional support. "Mind" offers mental health resources in Sweden, including an anonymous Suicide Line you can reach by calling 90 101 or by starting an online chat on their website: https://mind.se/.
You may also want to learn about complicated grief and specialized therapies proven to help family caregivers who are experiencing ongoing struggles with loss and trauma.
Read more about complicated grief and how it's treated here:
https://www.agingcare.com/articles/accelerated-resolution-therapy-may-help-family-caregivers-cope-with-complicated-grief-439255.htm
Hang in there and please take care of yourself!