Follow
Share

My friend is only 62 years old. She has had several issues for the past 3 years. Numerous back surgeries and hospital stays. It's of course very complicated. She evidently started drinking a lot after the surgeries and has been diagnosed with Wernike"s disease. I noticed a few years ago that she would ask the same question several times when I saw her. She was just not herself and sometimes would be hostile and agitated. Really too much to go into. While in the hospital last year it was found that she has a mass in her breast and it is cancer. The oncologist is reccommending chemo treatments in hopes of shrinking the tumor and then possibly surgery. She is in a memory care now and all she wants at this point is to go home. She doesn't understand that that is not possible. She doesn't realize she has a mental problem. My concern is that she would not sit still long enough to have the chemo treatments. I don't know that much about them, but have heard they can last for hours. There is no way she would sit for that long . Has anyone ever had a situation like this before?
I appreciate any input from anyone at this point. I know just being her friend is all I can do at this point. Guess I just needed to ask for anyone's ideas??

This question has been closed for answers. Ask a New Question.
Find Care & Housing
Wernicke-Korsakoff Syndrome (WK) is SOMETIMES treatable with intramuscular thiamine via IV. In many instances, however, it is not. If your friend has untreatable WK then sending her off for long chemo treatments seems like an impossibly disastrous route to take. Not to mention it's a cruel idea to extend someone's life who's suffering from such a disease in the first place.

Your friend's POA should speak with her Oncologist and Neurologist to discuss the best treatment option, which may be hospice at this point.

Wishing you all the best of luck with a sad situation.
Helpful Answer (1)
Report
Barbarasfriend Oct 2022
Thank you so much for your input. I fear you have confirmed what I expected. She has a court appointed guardian that was assigned to her in addition to her husband and mother. It just breaks my heart that such a smart vibrant young woman is in this situation. She was a fun intelligent person until the 1st back surgery and it was botched leading to more surgeries and other issues. I fear the friend I knew and loved is just gone forever. I hate to see her just waste away from the cancer but I agree that chemo would be a disaster.
(0)
Report
I agree with Fawnby--can this woman even make a decision about her own care?

I just read up on Wernicke's and it's treatable, but doesn't seem to have a lot of success...

Chemo treatments can last for hours--a few of mine went over 6 hrs. And I wasn't up walking around at all. Just sitting there.

Chemo definitely left me with 'chemo brain fog', which 2+ years after the fact is still something of an issue. I am aware of my cognitive losses and it's not fun. It doesn't appear that I am ever going to be as 'sharp' as I was before cancer.

You're her friend, not family, so I don't know how much a dr would talk to you about her. IF she is able to name you as a person of 'care' then they could.

At some point, for all of us, we have to look at quality of life, not quantity-b/c if your 'quantity' is going to be spent sick and miserable...is it worth it? This is something only she can answer.

Such a sad situation! If she has family, I would talk to them, if you feel comfortable in doing so. She does need an advocate, for sure.

You are kind and caring. I hope she will allow you to help her.
Helpful Answer (2)
Report
Barbarasfriend Oct 2022
Thank you for your reply. I know all I can do is voice my opinion to her husband and he is at the end of his rope. I don't want to stress him out any further. I guess she is in the best situation she can be at this point and should forgo chemo. It's just so sad. If she was 15 or 20 years older, I think it would be easier to accept.
(1)
Report
Is it possible to discuss this with her oncologist? The doctor should level about the possibility of cancer treatment leading to a decent quality of life. She already has Wernicke-Korsakov, that’s very bad and won’t get better. Since chemo and general anesthesia can both accelerate cognitive decline, maybe she ends up a lot worse mentally. How is she even competent to understand what she needs to know in order to make a decision for cancer treatment? Or against?
Helpful Answer (1)
Report
Barbarasfriend Oct 2022
She is not competent to decide this on her own and I agree with all the answers here that chemo should not be done. Thanks for your answer and wisdom. I guess I am thinking with my heart and not my head. I just want my old friend back.
(2)
Report
See 1 more reply
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter