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Who are you caring for?
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How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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The Area Agency on Aging of NorthEast Florida is your contact for assistance and referrals. Their number is (904)391-6600. Their website is www.eldersource.org. They can hopefully let you know what resources are available to you and your sister. Her age is not a factor. In the meantime, please know that you’ve found a wonderful forum for encouragement, support, and advice. Hugs.
I suggest you contact your Area Agency on Aging even though your daughter is much younger than the age group they normally help. They may know of programs your daughter would qualify for because of her disability, including some respite care days/hours so you could take a break. If there's a rehab hospital nearby they often have lists of support groups and services. I encourage you to engage in a support group for yourself and find one for your daughter too.
When my SIL suffered small strokes at age 42, I know depression was a major hindrance to her recovery efforts. Depression is both a chemical reaction to the injured brain and a normal reaction to becoming disabled at such a young age. Is your daughter struggling with depression too? Maybe not exerting much effort in PT/OT programs? Or not pushing to do as much self-care as she maybe could? We pushed SIL as much as we could and tried getting her out and involved in pre-stroke activities but nothing seemed to help much until she became a grandmother. Suddenly she wanted to be self-sufficient so she could babysit or visit her grandchild. Witnessing the depression and disability was very difficult for the rest of the family too.
I'm sorry you are reaching burn out. I think almost every caregiver feels that way at least once, sometimes from the physical demands of care giving but often from the emotional side of things too. Has something happened recently to increase the care giving load or change your circumstances?
Is there a therapist you can talk to? Caregiving is very draining. Sometimes we need someone to help us work through our thoughts and feelings so we can be more productive
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
https://www.stroke.org/en/help-and-support/for-family-caregivers/caregiver-resources
It's from the American Stroke Association, and some of the resources look helpful - I hope it will be a start, at least.
They can hopefully let you know what resources are available to you and your sister. Her age is not a factor. In the meantime, please know that you’ve found a wonderful forum for encouragement, support, and advice. Hugs.
When my SIL suffered small strokes at age 42, I know depression was a major hindrance to her recovery efforts. Depression is both a chemical reaction to the injured brain and a normal reaction to becoming disabled at such a young age. Is your daughter struggling with depression too? Maybe not exerting much effort in PT/OT programs? Or not pushing to do as much self-care as she maybe could? We pushed SIL as much as we could and tried getting her out and involved in pre-stroke activities but nothing seemed to help much until she became a grandmother. Suddenly she wanted to be self-sufficient so she could babysit or visit her grandchild. Witnessing the depression and disability was very difficult for the rest of the family too.
I'm sorry you are reaching burn out. I think almost every caregiver feels that way at least once, sometimes from the physical demands of care giving but often from the emotional side of things too. Has something happened recently to increase the care giving load or change your circumstances?
Somewhere down the line, something will click and resonate with you and you will be able to figure it out.
If you are able to speak to a therapist it may help also.
I wish you well. Take care.