The Area Agency on Aging of NorthEast Florida is your contact for assistance and referrals. Their number is (904)391-6600. Their website is www.eldersource.org. They can hopefully let you know what resources are available to you and your sister. Her age is not a factor. In the meantime, please know that you’ve found a wonderful forum for encouragement, support, and advice. Hugs.
I suggest you contact your Area Agency on Aging even though your daughter is much younger than the age group they normally help. They may know of programs your daughter would qualify for because of her disability, including some respite care days/hours so you could take a break. If there's a rehab hospital nearby they often have lists of support groups and services. I encourage you to engage in a support group for yourself and find one for your daughter too.
When my SIL suffered small strokes at age 42, I know depression was a major hindrance to her recovery efforts. Depression is both a chemical reaction to the injured brain and a normal reaction to becoming disabled at such a young age. Is your daughter struggling with depression too? Maybe not exerting much effort in PT/OT programs? Or not pushing to do as much self-care as she maybe could? We pushed SIL as much as we could and tried getting her out and involved in pre-stroke activities but nothing seemed to help much until she became a grandmother. Suddenly she wanted to be self-sufficient so she could babysit or visit her grandchild. Witnessing the depression and disability was very difficult for the rest of the family too.
I'm sorry you are reaching burn out. I think almost every caregiver feels that way at least once, sometimes from the physical demands of care giving but often from the emotional side of things too. Has something happened recently to increase the care giving load or change your circumstances?
Is there a therapist you can talk to? Caregiving is very draining. Sometimes we need someone to help us work through our thoughts and feelings so we can be more productive
https://www.stroke.org/en/help-and-support/for-family-caregivers/caregiver-resources
It's from the American Stroke Association, and some of the resources look helpful - I hope it will be a start, at least.
They can hopefully let you know what resources are available to you and your sister. Her age is not a factor. In the meantime, please know that you’ve found a wonderful forum for encouragement, support, and advice. Hugs.
When my SIL suffered small strokes at age 42, I know depression was a major hindrance to her recovery efforts. Depression is both a chemical reaction to the injured brain and a normal reaction to becoming disabled at such a young age. Is your daughter struggling with depression too? Maybe not exerting much effort in PT/OT programs? Or not pushing to do as much self-care as she maybe could? We pushed SIL as much as we could and tried getting her out and involved in pre-stroke activities but nothing seemed to help much until she became a grandmother. Suddenly she wanted to be self-sufficient so she could babysit or visit her grandchild. Witnessing the depression and disability was very difficult for the rest of the family too.
I'm sorry you are reaching burn out. I think almost every caregiver feels that way at least once, sometimes from the physical demands of care giving but often from the emotional side of things too. Has something happened recently to increase the care giving load or change your circumstances?
Somewhere down the line, something will click and resonate with you and you will be able to figure it out.
If you are able to speak to a therapist it may help also.
I wish you well. Take care.