Instead of getting better, I'm getting worse. He became dangerously aggressive after 10 years of my caring for him. I gave it my all, but couldn't handle it anymore. I feel lost. He was/still is the love of my life. My family is gone. Now I can't even visit him because of the coronavirus. I stay busy, but also just stay on pins and needles. I have an embroidery business in my home and I've always loved doing it, but now I've lost interest and can't seem to get going again. What is wrong with me and when will it end?
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Have you any social connections, even online? There are some VERY good people here, and although all of us have different stories, we all are living in situations in which we are caregivers for Loved Ones, or sometimes not too lovable relatives/friends.
We do our best to keep a stiff upper lip, but I think I can safely say that ALL of us definitely understand your feelings, and welcome you for whatever we can offer- sometimes it just helps to know that there’s someone around who knows how much work you had over the years you were caring for your husband at home.
So summing up, you’re doing ALL YOU CAN right now, and it’s OK. PLEASE come and let us know when things get tough. Somebody will be here, I guarantee it!
Thank you for your kind response.
And it's true that caregivers try to show a stiff upper lip, but mine tends to quiver! I am a poor actress. I just break down.
It's a big change. Maybe you need to see someone, maybe you could benefit from a med (or from some natural supplements and behaviors to fight depression).
Sending you much love and hugs. And remember we are always here for you.
So while it is hard, and none of us know how long this will last and how long we will have to wait it out, don't punish yourself for thinking something is wrong with you.
May God shower you with His choicest blessings in your sorrow.
Bob in North Carolina
Who says you are supposed to "get over it"
This is like a death. And no one should tell someone that is grieving to .."get over it".
You did the best that you could for as long as you could.
And you did not care for him for over 10 years, you cared for him for 52 years and I am sure a few years before that even.
I told myself when my Husband was diagnosed with dementia (Alzheimer's and Vascular) that I would keep him home as long as it was SAFE. Safe for him and safe for me.
I am sure your husband would not have meant to harm you but what would have happened to him if he had hurt you? You may have been injured to the point that you would have been hospitalized and then where would he be? What if he had killed you? (a friend of mine has permanent back injury due to her husband shoving her up against a wall. She placed him after an incident where she woke up when he wrapped one of his hands around her throat and had a knife in his other hand)
On the other side of the coin how would you feel if he started resisting while you were caring for him and because of that he got injured? I am sure the guilt would consume you as much as this does.
By the way another thought, you might want to talk to your doctor about this stress and depression. There is a fine line between depression and grieving talking with a therapist might help (although might have to be a tele-conference at this point.)
Keep staying busy. We are all on pins and needles at this point.
There is nothing wrong with you do not let anyone tell you there is.
Stay strong, stay healthy!
The incidents you mentioned were frightening, to say the least. My life was threatened and I truly believe the Good Lord is all that stopped it at the last minute. Thank you for sharing what CAN happen.
You are grieving a loss - the loss of your husband's company. It's a big change to adjust to, regardless that it was a necessary change. Since the advent of social distancing, try to find an online grief group to share your feelings with. They can recommend ways of dealing with this.
In some ways, it reminds me of all the times my husband was deployed or away on military missions. I would intentionally stay very busy for at least a month to get used to his absence. Nights were the hardest, but being really tired helped. I would send him letters weekly and goody boxes monthly. I relished when my hubby would talk with me on the phone. Maybe doing similar activities would help.Can he take phone calls in the memory care center? Weekly letters? Maybe create small treat boxes to deliver to him. Ask the staff to send you photos of your husband. Send him photos of you.
Thank you for answering.
so confusing to have our mate alive but gone
I think you have complicated Grief
i try to look for beauty all day long in my effort to deal with my grief
it helps but mostly I am truly exhausted
please rest see you doctor and seek beauty
Peace
Most memory care facilities and nursing homes are now completely closed to visitors because of the corona virus. This means no one—not even family members—can visit. A phone call is about the closest thing, but even that might not be possible. I would suggest that she send a picture of herself to him.
im sending my energy too.
I'm so sorry for your loss. I think you need grief counseling, the sooner the better. While he has not passed from this world he has passed from you and this is a process that will take time.
Realize that you don’t have to ‘get over’ anything and be gentle with yourself and give yourself time. Concentrate on good memories of things you shared, that made you both laugh, places you visited.
Most of all be grateful. Grateful for the wonderful years you shared together. Grateful for your health that you were able to care for him and ease some of his pain and suffering. Force yourself into a smile for him and for yourself. We all love you and are sending you our energy to get through this time of your life.
Sabrina
You were married forever. You lost him before you placed him but you were still physically together. He is now physically and emotionally gone. Double whammy! Don’t you think that’s enough to throw you for a loop? I do. I am so very sorry that you are struggling with this pain.
Feelings don’t end immediately. They won’t ever end. You will always care. You’re transitioning into a new period in your life. It’s unknown. It’s kind of scary. Accept your feelings. Honor your feelings. Who says that you should deny your feelings?
Of course, it’s troubling for you. You desire peace. The first step that I would take is make an appointment with a therapist. They can and will help. Give it time. Be completely transparent about your feelings. They have heard it all before and can lead you in the right direction.
You don’t need to expect that much from yourself this soon. It really hasn’t been a very long time. This virus is magnifying your feelings. You were already dealing with uncertainty and now more uncertainty so, this is completely understandable.
Best wishes to you. I hope you get to see your husband as soon as possible.
Take care 💗.
Over time, you will get stronger. And the beautiful, strong spirit that developed while you helped your husband can begin to light up some different corners of the world.
When a loved one passes we often feel guilt along with the hole their absence leaves but we find ways to get closure and move past some of this, be at peace with their passing. You experiencing The same hole, absence but without the ability for closure yet, it’s an impossible situation. No doubt often in his world when he thinks about you he pictures you embroidering in the back room or visiting with family, fiends and your church group, the things you did day to day 10 years ago before his illness changed things so when you do these things that give richness to your life you are supporting him as much as yourself, you are honoring your live together by living your life. Will it help you miss or mourn him less, probably not but it might eventually help you do that differently so it doesn’t feel so empty. Somehow I doubt he would want you feeling so empty and would feel terribly guilty about being the reason for that. What would you want for him if things were reversed and how would you choose to think about your good years together? It’s like looking up at the stars at the same time when your sole mate is thousands of miles away and knowing you are each looking at the same stars, you just need to live the life for the two of you now but your both thinking about the same life. Does this makes sense, not sure I’m explaining this well.
I do hope you can find a way to cut yourself and your dear husband a break by putting some joy back into your life. It isn’t a betrayal or even “moving on” at this point it’s validation of your life together and your love being strong enough to carry with you as you adapt.