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This is a poem dedicated to the families that lost love one, like my wife of 54 year of wonderful years of marriage...
and families that had their love ones become infect with covid 19 by the reckless action of their state governors by putting positive hospital patients into nurse homes and assisted living when these facilities had no PPE and nurse aid quitting. This is also for medical hospital staff, that when people infected from their homes were sent to these hospital their staff would write off these poor people knowing that when taken into nursing homes that the residence of these homes had underline condition they still wrote these poor senior off. This is a very solemn day for me it is my wife's birthday and I'm grieving for her and the over 60,000 that died because of our govement leaders.
PLEASE READ THIS POEM 
Love is not something you see.
It's meaning everything to me
It's needing to have you in my life,
So much that I made you my wife.
Love is not something you hear.
It's always wanting to have you near.
It's needing to feel your lips each day
So much that no words could ever say.
Love is not something you taste.
It's never letting it go to waste.
It's needing to see you even when we fight,
So much or I'll miss you day and night.
Love is not something you touch.
It's knowing that you mean so much.
It's needing your skin when I'm in bed,
So much that you make me lose my head.
Love is not something you smell.
It's something that you're proud to tell.
It's needing to always make you smile,
So much that you make my life worth wild
Source: https://www.familyfriendpoems.com/poem/a-sense-of-lov
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Dear MrsHoover, your post is most extremely touching as it speaks of the such strong emotional turmoil you are feeling after the recent death of your husband. Our hearts are with you. If you think of your marriage as a little boat on the ocean holding just you two, this last bit was a very choppy ride and you had to man the oars alone. Anyone would lose their patience and snap in situations you described (I've been there too). It's natural for unresolved feelings of regret, sadness and even guilt to surface now that he's gone and you have time to feel. But you rowed him home, you did not abandon him, and you will always love him. Yes, be proud of that! It will take time for your emotions to play out and they will be complicated. I agree that grief counseling is a very good idea. Wishing you peace.
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JanEllen Dec 2020
JD654321, I love your response and analogy of the boat on the ocean. My LH passed in 2018 and I'm still struggling with feelings of guilt, regret, and sadness. Ours was a rocky relationship, but I stood by him and did the best I could at any given time. I'm currently in counseling, and am just now working through the grieving process and I have to admit that it's not easy. My LH and I were the primary caregivers for my mother who is 92, has vascular dementia, and lives with us/me, so there's been no "down time" to grieve.

AnnandPaul1629 I know it's hard, but try to give yourself a break. The frustration, anger, and regret are real. I ask for forgiveness in my prayers each night and start the next day anew, hoping to do better. I allow myself 15 minutes for crying (in the shower) then try to focus on the positive for the rest of the day. I also keep a gratitude journal, which helps me focus on the positives instead of the negatives. It's a process, but I think we'll all get there one day where we think of our LHs in only the best of terms without beating ourselves up with "would've, could've, should've". Sending hugs your way.
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You should try to forgive yourself because you are human, and you are not Jesus walking on water. Your mind will work overtime to make you feel guilty which is part of the grieving process, but whatever imperfections we caregivers have done, realize it is all in the PAST. It is OVER. Just be thankful you never put him in a nursing home which they can receive terrible care to the point of bedsores, undocumented falls, and other unseen events. Now try to collect your thoughts and get the death paper work done. If he was on Social Security retirement, notify them of your husband's death for death benefits and you get like $250 to help with the cost of funeral or cremation.
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My deepest condolences. Even though it seems that you did not have Hospice, they do offer community grieving programs that are free. Please call. You will find you are not alone in your feelings. Your grief is yours alone and take as much time as you need to find peace. There are no judgements on feeling, they are what they are.
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Sending you so much love. I lost my beloved partner in circumstances almost exactly like yours 3 weeks ago. I, too, remember "hollering". But now I make sure that every day I think about the sweetness of that time and how close we became at the end - even though maybe he didn't always process thoughts - he felt. I have a picture of him with a candle that burns every day until the 49 days of passage end (I am Buddhist.). This ritual really helps to shine a light on who he was rather than who he became. Peace, my love.
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DizzyBritches Dec 2020
“Who he was rather than who he became.”
OP,I’m sorry for your loss. I lost my husband in February after being his caretaker for about two years. I too feel guilty sometimes about being a hardass on him at times. Had I known how close to death he was I might have been softer. But I took to heart what the doctors and nurses told me.
What helps me now are the memories of when we were first married and how much fun we had together.
My sister was my mother’s primary caretaker for 13 years. She still feels guilty about getting angry with Mom at times. But she knows she did the best she could.
You were there for him when he needed you. That’s all that matters.
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https://www.healthline.com/health/benefits-of-crying#pain-relief

Read this article. It's ok to cry whenever the grief hits you.

We are so hard on ourselves. We are human, doing the best we can.

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So sorry for your loss. You've been given some excellent advice. I imagine your husband would want you to do something wonderful for yourself at this time. Pick something that gives you joy and then go do it. Then come back to this site and let us know how you are doing.
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I am so sorry for the loss of your sweet husband. It sounds like you did an outstanding job keeping him at home and caring for his every need. I believe that somewhere deep inside him he knew you were with him and doing your best. You need to forgive yourself for just being human. All of us who have walked your walk know how utterly exhausting and demanding it is to be the caregiver 24/7.
It takes all your strength and more.
May God give you peace and time to recover. Take good care of you!
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Sorry for your loss I lost my husband last xmas, I feel tremendous grief because I had to put him in care for 6 months while I had operation , unfortunately he suffered terrible neglect and abuse and it took me 9 months fighting with council to get him home , but he died 3 months later hospital said due to lack of liquid his kidneys had dried and only one was working they tell me it takes time to come to terms with grief but I can’t forgive myself
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JBryan Jan 2021
I'm so sorry about your husband monkeyhuts. You didn't neglect or abuse him. This is the time for you to reflect back on the good times - the good times that no one can ever take away from you. Does the Funeral Home where your husband had his service - does it offer bereavement times to go speak with them (usually a minister or someone of your faith is who they have available). Please forgive yourself. You didn't do anything wrong and although I don't know you - I'm sure your husband wouldn't want you to live the rest of your life grieving.....rather enjoying the memories you made together. Prayers to you. Best.
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I'm so sorry for your loss. It is hard to be a caregiver so don't pound yourself for your anger, it's natural. But, on the other hand, could you imagine seeing your husband like you describe, for a few more years, his own embarrasment at what he had to have you do for him. That wasn't in his mind when he married you, and so as he neared the end, he must have felt something that made him want to help or get on with by wiping his hands.
Don't beat yourself up. Would you have wanted him to go on like that for a few more years? I know I wouldn't want that. You did what most of us spouses do/did. We take care of our loved one, despite being grossed out.
I took care of my husband for 10 years or so first with dementia then Alzheimer's. He mostly was docile, slept most of all day on his recliner, but in the beginning we went for walks and places. Later, it was just in his chair; he probably slept 18 hours a day. Finally, came the day I had to do IT. Find a place for him, as he got to wandering (you've all read this before, crossed 6 lanes of boulevard on a Sunday afternoon when there was hardly any traffic!). That was hard to do. He didn't get incontinent until he was in the AL; he began falling, 3 times there when he didn't fall at home, Hospitalized for all 3. Came back to the AL and Hospice was making up his room for safety when he had 3-4 strokes between his being showered and brought to his bed. While I hated to see him pass, I was relieved for him, as he would have had a more tragic death since he was prone to wandering at this stage, and very well could have walked into the street if the doors weren't locked. And, by the way, he hadn't know who I was for at least 4 years before his passing. Before he was in AL, I found him one day putting the house key in the ignition of the car (his keys were in the safe and mine in my purse); I knew it was almost time. His wandering up the boulevard was the straw that broke the camel's back. When he passed, as I was talking with him in the bed, I shed a few tears, but to this day, I couldn't shed a tear, barely at his memorial at the VA cemetery. In my heart I was glad that he had no more suffering, I didn't have to worry about him breaking down the door at the AL, or figuring out the button to push to get the hallway doors opened , as he was prone to do., and he could keep his pride when he soiled. We know when our spouses we've been married to many years (mine 58), should go, we don't want to accept that, but for their sake, we must think what is best for HIM/HER, not for us. Be brave, chin up, look around the house of memories, put all your pictures of you together on the wall, talk to them if you must, and remember only all the good things of your lives together. They are in a better place. Shed the rock on your shoulder of your words that may have hurt him. Maybe he didn't even know what you were saying or understand. Be kind to yourself. Hospice provided me with a counselor, and I didn't think I needed it. But, it helped me so much. I suggest the same for you. It will definitely help.
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I lost my husband after 3 years of brain cancer. I remember telling him to be quiet in the hospital as he lay dying. He moaned so loudly. When I look back over our life together I see many occasions we lashed out at one another. I wish I had been more loving. When you are giving care and feeling suicidal you can not cope completely with your own emotions. Stress has to be expressed or you will become incapacitated. Both of you knew this. He knew this. The fact that you cared for him instead of leaving him demonstrates your undying love for him. No one is a perfect caregiver. We fail and keep trying over and over. Besides your love is not based on whether you lose your cool or not. Your love is based on how you cherish each other even when you are driving each other crazy. Your husband is now in a place of unconditional love. You can count on him offering that unconditional love to you. The transcendent realm or after life is all about love. Not being perfect. You were awesome with your husband. You still are. You and he can connect on a different plane within your heart. Remember the three years that you cared for him were a sacrifice for both of you. It was not normal. It was not how you wanted it. Life never is. But love endures. Love endures. You are beautiful. You are an inspiration. I can’t think how anyone could do what you did without cracking under the strain. You are human. You are a human who loved your husband. Love never dies. Please enjoy life however you can even if it’s just for a few minutes here and there. You don’t have to feel happy all the time if ever!!!
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My deepest condolences to you for the loss of your husband. We've all been right where you've been. Beloved, no matter how angry or upset you became at times, your love covered him more than the anger. God's grace towards you was sufficient even during the suicidal times, so that tells me of His love for you. Caregiving is the hardest work in the world because of the constant giving of yourself. Most don't realize that the caregiver needs care at times too. But you made it and God is very proud of you. Now it's your turn to be cared for. And take your time too!
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Wish I could reach out and hug you right now. Bless you. Caregiving isn't easy ~ especially 24\7. I know it's difficult to see this right now - but, the very moment you start remembering the awesome times you had together ~ the older memories, the good memories, the happy memories will be first & forefront. You may occasionally think back to an unpleasant memory, but the majority will be the fun times. Look through your pictures and remember ther good times. Remember the pictures just as they were when you were in them. Those memories will soon flood you with the the beautiful life you had together.
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I hear ya sistah! My hubs of 51 years passed May 21. I had been taking care of him for 15 years. The last 3.5 years were the worst he was mostly in a wheelchair late in the day but on a walker the rest of the time. I eventually had to take the walker away at night because he would get up to go to the bathroom and had forgotten what he needed to do. I usually woke up at some point after he had left the bedroom. The messes he would make with poop trying to clean himself smh. When he no longer had the walker, he would wake me up and I would walk him to the bathroom and give him prompts about what to do when he “finished”. Eventually he went to adult diapers full time as his mind and body deteriorated.

Yes, I yelled and I fussed. He would just smile. He was a brilliant man before his stroke and I loved him very much and he was very fastidious about his personal hygiene and grooming. So I tried very hard to maintain that. But things can get frustrating to say the least when you’ve cleaned them up, got them dressed for a doc apt, then have to do it all over again because of an accident. Anyone would get aggravated. Don’t beat yourself I’ve thought about all those times and wish I still had him here to do things for again. That’s 6 months out perspective. It’s part of the grieving process. He passed holding my hand. I’m sure he knew I loved him and your hubs did too. Take a little time and pat yourself on a job well done even if there were a few bumps in the road.
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NeedHelpWithMom Dec 2020
So sorry. Thanks so much for your transparency. It helps for others to see that people aren’t perfect!
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My husband has FTD and I went through the exact same thing. He’s now in a close by residential facility and they take care of the things that used to cause my meltdowns. I have to hope that those episodes did not stick with him. I often apologized afterward. I know it’s irrational to become so angry with someone who can’t help it, and it helps after reading these answers to know that I’m not alone. Bless you and know that YOU are not alone. You were not angry with your husband as much as the horrible situation, and he probably knew that. I hope that all along they feel our unconditional love.
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Caring for my husband was not nearly as daunting a task as you and many others describe. I was fairly lucky in that regard. Still, I was sometimes exasperated or angry or furious at things he would say or do. When he would not "co-operate" such as leaving his feet on the bed long enough for me to run around to get his head also on the bed, I would holler at him, "I'm going to take you the The Home," all the while thinking, "You can't be mad at someone who is dying!" But, of course, you can. You are stressed and tired and depressed that your LO is dying. Your husband's difficult behavior put you right over the edge. So you hollered. That's how you felt. You and your feelings count too. Do not beat yourself up about that.
If there is any "there" there, your husband is only remembering that he loved you and that you took wonderful care of him and that, yes, he probably gave you a run for your money there for awhile. Any yelling you did in the process is long forgotten.
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PS Your husband died only two weeks ago! This is still shock and PSTD time for you. Take care of yourself and give yourself plenty of time.
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Griefshare.org
look for a group in your area.
and starting dates
you do not have to go to every single meeting
and you only speak if you want to
They sometimes offer a session called
surviving the holidays
and another for widows.
very helpful.
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Being a care giver is the most stressful vocation you can do.
No matter how much you loved your husband, and it certainly sounds as if you both were blessed with a loving relationship, we all have our breaking points. I am sure you provided excellent care for him.
Think about the loving times you shared together.
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MrsHoover,

I'm so sorry for your loss. Grief is such a peculiar mix of feelings and all too often guilt sneaks in and complicates everything, especially our recovery.

Grief is the price of love. There is no timetable for it. Allow it; don't suppress it as it ebbs and flows.

So you lost patience at times. Forgive yourself those lapses. You are only human. But you were there for him, for better and for worse. How fortunate for you both you shared a love many only dream of!
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Your grief and your guilt is testament to the strength of your love. Feel them but don't dwell on them for too long. All of your feelings were normal and valid. Focus on your shared love, which is alive and everlasting. Wouldn't your husband say he knows how much you love him? When you are feeling anxious about it, try this therapy technique that I learned: Close your eyes and imagine you and your husband together. Where are you? Use your 5 senses to recreate a moment. The more detailed the better. Say them out loud. What do you see? What do you hear? What do you feel? What do you smell? What do you taste? Really form the whole picture in your head and spend the time. Open your eyes and note how you feel. You can keep that beautiful image in your head whenever you need it throughout the day.
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Sometimes. When we care we tire our selves out with care giving. We are human and tend to fall apart. Sound like you needed help before his death. You may have put your mental and emotional health at Risk. Please forgive your self only you are hurting you with all these regrets. I needed help from my Dr.and friends. After 5 years in my 70’s I was worn My daughter helped me . He went into Rehab because of a small stroke. His family took control. God loves you and he does not hol those things over you. I am saying this out of my heart. You have been a wonderful caregiver
Jane Osborne


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My heart hurts for you. I lost my husband to Lewey Boby Dementia June 26. My heart is hurting so bad. We would have celebrated our 55 anniversary the day after Thanksgiving. I'm trying to take one day at a time. Sending hugs & prayers. I'm thinking about trying to find a suuport.
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NeedHelpWithMom Dec 2020
So sorry for your loss. Many hugs.

Your husband lives in your heart. He will be with you in spirit for your anniversary.

It’s obvious how very much you loved him.
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Sorry for your loss. This is a terrible time for you. Forgive yourself we’re going through the same thing with our father, it’s irritating, frustrating and sooo time consuming it’s not a good feeling. Just know that others have/are doing the same but it doesn’t mean we don’t still love them. Warm hugs
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So sorry for your loss. It sounds like you were a very devoted caregiver, and like your husband's needs were pretty extensive. I hope you can forgive yourself for being human -- everyone has a breaking point -- and allow yourself to grieve your husband without beating yourself up. You did the best you could, loved him faithfully, and cared for him to the very end of his life. Hecwas a lucky man to be so loved.
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I, like yourself expect the very best of myself at all times, and forgive others shortcomings relatively easily. Generally men are comfortable being 'angry' and women comfortable being 'sad'. It societal conditioning. We all have the full spectrum of emotions. And it is healthy to express them..especially with family
Considering the strain of constant demand and little appreciation (at the time) you have just been through, its amazing you weren't angry 'a Lot more often'.
Anger is how we push people back. A defense mechanism. Don't second guess yourself and punish yourself with guilt.
You were completely devoted.
And showed loyalty and care in a time when very few ever do. Read some of the conversations on other questions on the platform.
Most people advise institutionalizing the elderly when they lose control of their own health. And therefore life. Whether it be a spouse, a family member or a relative.
Rest secure in the knowledge that the Angels are taking care of him now.
And you need to take care of your health and be gentle with yourself
Dr Bach Rescue Remedy avail at any big pharmacy, market, or Amazon, used frequently, (rub onto perfume spots..behind ears & on inner wrists, and added to juice & water constantly) will help you keep your emotional balance. Its made from essence of flowers, no drugs, no side effects. And has been available for over 80 years now.
Its okay to feel relieved.
We are only human beings after all
Im sure he will be waiting by the door for you when you too cross over.

"Love is never seperated from itself for long"
Mother Theresa
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I don't think you were hollering at "him" but more so the disease.  I guess we all feel guilty at time for lashing out after being frustrated and drained, but it has to come out sometime or we would all go crazy and also become physically sick ourselves (stress does terrible things on the body).  I know there was a couple time I yelled at my dad using a 4 letter word which I never used around them, but I had just had enough.  Just like today with my mother.  She doesn't have full blown dementia but I can tell in small things that she will be getting it or has a "small" amount in there somewhere.  after trying to determine IF she put the wrong meds in with another med and also with her diabetic stick pen.....she got mad and said she didn't give a "d" and I said I didn't give a "f"..........I felt bad later but I just get tired some days.  Just like you.........you did a wonderful job but after trying to get someone with a disease to understand and they don't.......you have a breaking point.  Don't beat yourself up over it........again you were hollering at the disease for being so unresponsive to your request.  I am sure your hubby (if he could tell you now), that he did NOT hold it against you and that he couldn't help it.  I wish you peace with knowing you did good.  Get a picture of him and talk to him, tell him you are sorry.......God bless and wishing you a peaceful recovery of his death.
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Seems you are on your way to finding comfort in good memories of him - even in the midst of a difficult situation. Think more about the good memories. Ask God to forgive you for the difficult moments and your frustration.

If you feel you need more help, join a grief group like GriefShare during this first year of life without him.
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I am so sorry for your loss. Many condolences.
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One of the things I do for my loved ones who have gone on is to say a "prayer for the departed" which is supposed to help their souls grow closer to God.
One I use is this:

O my God! O Thou Forgiver of sins, Bestower of gifts, Dispeller of afflictions!
Verily, I beseech Thee to forgive the sins of such as have abandoned the physical garment and have ascended to the spiritual world. O my Lord, purify them their trespasses, dispel their sorrows and change their darkness into light. Cause them to enter the garden of happiness! Cleanse them with the most pure water! And grant them to behold Thy splendors on the loftiest mount."

I also thank God for having this person in my life and for the love and blessings I received from them. And, if I remember, I try to do something special for another person in the name of this loved one, honoring them by doing this.

Being able to take some positive actions for our loved ones helps me feel that love still and be thankful for it. Perhaps it would "atone" for your bouts of frustration and anger.

I hope this helps!
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Puma1953 Dec 2020
JohnnyJ: Your words helped me because I miss my mother. It has been 3 years and I cry almost every day. I do a lot of things for my elderly neighbors and yes, I do it to honor my mother.
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