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I've had experience with my mother when she needed care while suffering with Alzheimer's dementia. My brother-in-law suffers with Parkinson's with Lewy Body Dementia. It is a 24 hour a day job to "watch out" for him.
I don't have any professional experience to handle this. I've been here for 6 months with no end in sight. I need help and advice."
24 hours a day? Are you getting enough sleep? Sleep deprivation is a form of torture, you know.
What is your H doing for his brother? Did he move in, too?
It sounds like this is too much for you. Time for another solution?
Prayers to you. 😘
Do you have a question for us?
If you have no specific question go to the top line where it says AgingCare, go over to the magnifying glass, press on it for search, and look up questions with the headings of either topic. Just yesterday there were threads about Lewy's.
Now he has LB he may get aggressive and even violent. Again, time to tell his family they are going to have to find another option. I hope u were being paid.
Mom’s brother also had Parkinson’s disease. He lived to be 96. He suffered horribly the last couple of years of his life.
My uncle lost use of his hands. He could no longer feed himself, had trouble swallowing, etc. When he could no longer live alone, his children placed him in a skilled nursing facility.
Your profile says that you volunteered to help and that you have been there for six months and need help to learn how to care for him.
I feel that the best advice that I can offer to you is to have him placed in a facility. This job is too much work for you to handle alone.
I realize that you are a kind person to offer your help but sometimes it is best to allow a person to be cared for by an entire staff who have experience in this situation.
Best wishes to you.
And as it is with progressive diseases, it gets worse.
I don’t know much about dementia but I believe i read about Lewy Body and it is worse than others, i.e. Alzheimer.
My husband has Parkinson’s, no dementia, so his motor skills are getting worse and worse. And rather quickly, plus other symptoms and diseases, as people with PD are not somehow immune or perhaps more susceptible as it is his case.
So realize now you cannot do it alone.
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