Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
kazzaa--yes, unfortunately, it will probably get worse. I have said the same thing, I want to run away and yes, I feel guilty for thinking it--but one day, we will get peace. I do feel guilty for wanting to be able to enjoy my life, but I know that is what we are supposed to do. Life is way too short for all this misery. My mom doesn't understand why everyone around her isn't as miserable as she is. Today while doing her hair one of the ladies stopped by the salon and talked to us. Before she entered the door my mom said, "oh lord, here she comes". Dreaded for the nice lady to stop in (even though she tells me no one talks to her, not true). The lady is 84 a retired teacher and full of life--i just love to talk to her (we have teaching in common) her hands are crippled with arthritis and she still tries to paint. She talks with a shaky voice and sounds just like Audrey Hepburn--love it. She was sharing some stories and my mom tried to stay focused and seem interested (believe me, it was great to have someone else in the room). After she left, my mom said, "how does she walk and how does she get dressed with her hands like that?" How does she get up and going? My mom just doesn't understand why this lady doesn't just complain like she does. Grant it, this lady doesn't have dementia. She just doesn't want to live alone and loves the AL facility. Something my mom said today that has kind of disturbed me though. I don't really know what to make of it. Maybe you can give me some insight. She started crying (as usual) and said, "all I have thought about is dead people". when I asked her what she meant/to explain it she just repeated herself, "I am thinking of dead people". Her mother died at 90 in October and I asked her if it was mamaw. She began to tell me of a lady she worked with years ago, and other people I hadn't heard of before. then she did say she keeps seeing my grandmother in the casket..grant it, a few weeks ago she couldn't remember going to the funeral and would cry that she didn't go. I am confused and have not heard of someone thinking of "dead"people.
kazzaa - sadly, it will only get worse... (((((hugs)))) to you too
not get any worse it does. She is angry a lot, and has desire to have me have
any kind f life. I have found that at times she is aware of what she is saying, and when I leave the room when she gets too mean, she at times will come in
and apalogize. They will say thay have not eaten, been out etc... even though
they have. Your family needs to be taken care of, as well as you. JUST knowing
she is safe, eats, and is kept clean, is important, and also realize she will forget
when you have been there, try to keep in touch with one of the caregivers at the facility, to find out how she is really doing, most of the information has to be documented. Also, it may be time for a memory facility, rather than assisted living, if that is where she still is. They have better programs, and documentation than assisted living facilites.
It feels so good to write it, I just need to believe it. The filter is definitely gone...she didn't have much of one to start with, but now, shew she even says the most terrible things to my son. She says he is spoiled right to him, something she would have never done. If he is on his phone when we go visit, she always makes a comment about it. But doesn't say too much to my daughter, just him. I finally don't make them go anymore. My mom will say, my grandchildren never come anymore, I just say they are busy. I do not go in to detail about how she is mean to them. I am ready for the beach or somewhere far away for a while. My husband and I went away in the fall for our anniversary and she threw a fit. She didn't like it one bit. I heard about it for days.
My sister who is a geriatric nurse practitioner, said she learned in her education that a whatever trait a person had when younger will only intensify when they are older. Hence, so many negative parents become even more so and especially with dementia when the "filter" is gone. So if this experience with my dad has taught me nothing, it's taught me to take a good hard look at myself and how I interact with others and the world. I believe I learned some of his traits early when I was a child and I'm working hard on myself to feel gratitude rather than complaints. Research does show it helps in aging well. So I am actually grateful that he's moved here…I might not ever have noticed this in myself.
This is where I think counseling with someone might help you but she can TRY to make you "feel guilty", (that's called manipulation) but only you can feel guilt from yourself. You need to find a way to not absorb and take on what she wants to project on you. Guilt is unreasonable because you've done nothing to feel guilty for. You say you tell her about activities...stop. The staff has told you she is participating in things...let her do as she wants, you need to understand you are not dealing with a person who wants or cares for your advice. You hit the nail on the head when you said you're not responsible for her happiness. Bingo! Once you can let go of that need to mother her or control the situation to bring about an outcome that is impossible, you will feel a weight lifted. Have a mantra you say before seeing or calling her like "none of this is my fault or in my control. She is who she is" and then say the same mantra after your visit. We all would like a lovely life with our parents but sadly it just isn't always so and wanting our parent to like us is buried deep in our psyches. This is why even abused children still want the love and approval of the abusive parent. So parent yourself. See about getting her on an antidepressant and get yourself to a talk therapist for a better understanding. Your happiness is deserved. I can tell you are a lot like me and this is where I speak from. So much of what you write could have been written by me six months ago. Even now I have to step back and try not to control my dad's life and feel like I need to make him happier than he is. I realize this is long, but please know it's written from a "kindred heart". Take care of yourself by learning coping skills. Blessings
With a kind of pleasant and neutral look, I went over to talk to her about whether she felt up to setting the table for supper and she made some generally rude remarks. I continued to look as pleasant as possible and just re-asked it, basically. She eventually kind of snapped out of it and we had an ordinary conversation where she did focus on the conversation (not easy for her, every day).
Obviously my mom isn't as far along as others but I do still have to kind of have to do that. But, like jeweltone's Mom, my mom gets annoyed by my positive or sometimes just non-negative attitude. She does also take her frustrations out on me. I'm her caregiver, the representation of the loss of her independence, which she does resent a bit. Most days, she still knows enough to appreciate it. Other days, everything is my fault and I'm an awful person. As she progresses, I wonder if some day that every day will be a bad day where everything is my fault, but I'll have to wait and see how her condition progresses.