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Mostly Independent
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a family member has suggested that my LO’s Dementia may have been misdiagnosed. They have known of cases of Metabolic Encephalopathy that can be cured they say with antibiotics.
Very often chronic underlying medical issues are a large factor in metabolic encephalopathy . It’s not always caused by an infection . It’s not always cured either . The underlying problems need to be managed , some permanent changes can occur that resemble dementia .
My sister was having slight dementia symptoms for about a year , then she developed full on metabolic encephalopathy ( due to some other serious chronic medical issues , that she neglected to take some of her meds for years ). She had bad seizures in the hospital and almost died . Although she improved , she has never returned to her baseline . She also was diagnosed with vascular dementia 6 months later .
I should add that before having full on metabolic encephalopathy , my sister was also having other neuro symptoms , gait problems , etc . Doctors had thought at one point it was ALS , or an aggressive form of MS that elderly people get ( though rare) . It wasn’t until she got much worse , came down with delerium at home and my nephew ( who she lives with ) called 911 , landing her in the hospital that the encephalopathy was found.
I agree with Alva, but does this family member have any actual reason to suspect a misdiagnosis?
From what I can research, it is usually caused by some underlying health issue such as:
Diabetes (hyperglycemia or hypoglycemia) Heart failure Kidney failure Liver disease or liver failure Malnutrition Pancreatitis Sepsis Vasculitis
and toxic agents, including: Alcoholism / drub addiction (non-prescribed) Heavy metal poisoning
You would be hard pressed to not see any of the symptoms from those listed risk factors. If you are the Medical PoA for your LO then you can have this discussion with their primary physician.
There are many encephalopathy diagnoses, including alcoholic encephalopathy. If someone has reason to be concerned about a misdiagnosis this should be discussed with medical personnel. As to whether this is possible? Anything is possible in missed diagnosis in medicine. Anything is worth exploration.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
The underlying problems need to be managed , some permanent changes can occur that resemble dementia .
My sister was having slight dementia symptoms for about a year , then she developed full on metabolic encephalopathy ( due to some other serious chronic medical issues , that she neglected to take some of her meds for years ). She had bad seizures in the hospital and almost died . Although she improved , she has never returned to her baseline . She also was diagnosed with vascular dementia 6 months later .
I should add that before having full on metabolic encephalopathy , my sister was also having other neuro symptoms , gait problems , etc . Doctors had thought at one point it was ALS , or an aggressive form of MS that elderly people get ( though rare) . It wasn’t until she got much worse , came down with delerium at home and my nephew ( who she lives with ) called 911 , landing her in the hospital that the encephalopathy was found.
From what I can research, it is usually caused by some underlying health issue such as:
Diabetes (hyperglycemia or hypoglycemia)
Heart failure
Kidney failure
Liver disease or liver failure
Malnutrition
Pancreatitis
Sepsis
Vasculitis
and toxic agents, including:
Alcoholism / drub addiction (non-prescribed)
Heavy metal poisoning
You would be hard pressed to not see any of the symptoms from those listed risk factors. If you are the Medical PoA for your LO then you can have this discussion with their primary physician.