Is there a way to centralize all the resources needed for an individual with complex medical issues?

Kmi7688: Some physicians offer patient portals, which allows the patient or their advocate (you) to set up an online account whereby they can obtain medication requests, appointments, appointment summaries and more. Some PCPs have coordinated patient physicians. Patient portals are beneficial in many ways, i.e. requesting medication refills after normal office hours.

Kmi...my husband has hereditary [transthyretin] amyloidosis, a life threatening illness with cardiac involvement as well as, Parkinson's, polyneuropathy and heart failure. His neurologist has begun palliative care for us. The way it has been explained to us, it is a team consisting of a nurse practitioner, a social worker and a chaplain. It is one step closer to Hospice... but is not hospice. The NP will visit twice a month ( or more) at home. They will monitor ALL of his multimorbidities. She will coordinate his status with his neurologist, the cardiologist and our primary care physician. I will still need to take my husband when it is necessary for routine tests and lab work and to the hospital if necessary. Other than that, health oversight will be done at home with the NP . We have only had the initial intake visit...but I am hopeful for some badly needed assistance coordinating everyone. If a health need arises in between visits, I have been instructed to contact a team of physicians that makes house calls (Dispatch Health).
Ayway, it might be something for you to check in to. Best of luck.

https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/485366

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7435073/

Talk to Dad's primary doctor to see if he/she can call in a coordinator.

All the information is on a computer - it is centralized .

I have Health groups affiliated with Hospitals where I live. If you go to a doctor within these groups, they can go into the shared site and see the other doctors notes. If these doctors are affiliated they should have access to each others notes.

Maybe time to see if Dad needs all these doctors. Maybe he doesn't need to see them as often. Maybe now he has been to specialists, his PCP can take over. Dad can always go back to the specialist. There is no cure for Parkinson's.

Each state is different. In my state, the healthcare providers use a portal system called MyChart. Even if I use a clinic that is not directly in my provider network, their MyChart can be connected to mine.

Use whatever patient portals are in your state. Ask each doctor what they would do in your situation, or how they would prefer the info be shared.

Transporting your Dad as he becomes more disabled will be an ongoing challenge requiring time and money. Unless he is in a care facility where doctors can go to him, you will need to hire a medical transport vans to get him to appointments. Try to get his appointments on all the same days if at all possible. I wish you all the best, and to be careful not to exhaust yourself on this journey.

I find most physicians and hospitals are never on the same page. If you're trying to access his records sign up for the patient portal. They are great for obtaining records. Maybe find a specialist to manage all of dads care