I mostly lurk here, but I read a lot, today I am posting.
My husband who has mixed dementia's and PD or LBD, is driving me crazy. On one hand months ago I had a hard time getting him into the shower. NOW he wants to take one several times a day,changing his clothes fully.. He claims he is stinky all the time, he is not, I am very sensitive to smells and if he was I would know it! I know he passes a lot of gas and I try to tell him taking a shower is not going to get rid of that smell once he passes gas again.. He took a shower 2 hours ago, and just got out of another this was his 4th for the day.. Driving me nuts!
Yes, I would rather he shower then not, but several times a day if not needed is too much..
Yes, we do have ALZ hotlines.. There are support meetings once a month, but on the same day he has a standing appt every week, so I never get to them.
I find the little white lies are getting more frequent, tho sometimes I think is he aware enough (he fluctuates with is cognition frequently) to know I am lying..
Hugs to you and hope someone with more experience can help you also do you have a number there for ALS helpline 24/7 I know UK have one which i thought was a great idea just if you needed to talk to someone in a hurry!
He is a Vietnam Veteran and all his illnesses coming from his service.. This area the VA is so overwhelmed that its tough to get in touch with his Dr's, all are at several of the VA clinics in NE Florida. I can leave a message via offices or internet, but it can take weeks to hear back depending on what the message is about..
I mentioned it to his psychiatrist about a month ago and she felt it was in the progression of the dementias.
Sometimes I think I have less patience since I have gone from being very active all day to a 24/7 caregiver, he does go to adult day care 2 days a week thru the VA.. But we moved to another state where I know no one, hard to get a social life. and our children live out west and the pacific northwest and they are not able to visit.
AND NOW he is telling me he needs another................... geeeeeeeeezzzzzzzzzzzzzz.. I just told him its my turn before he uses up all the water..
I would talk to his doctor OR maybe someone else here has experienced this gosh dont wash then wash too much this is so stressful maybe a bit of paranoia has started he feels unclean constantly how sad but as you say must be driving you nuts!