My friend's father committed suicide right before Christmas. He was the primary caregiver for my friend's mother who suffers from dementia. Mom was placed in a nursing home. When my friend calls her mother everyday - Mom ask, "Did you know that Dad died?" or "Why didn't you tell me Dad died?
I talked to her about it. But, my question is this... should I frame the last picture I took of the,together and put it in her room. I don't know!
Any advise?
These situations are all so sad.
She was his "caregiver" for the last year of his life. They were divorced, but she moved back in with him. This basically involved me running myself ragged trying to care for bothof them at his house. But, I am glad they got to havethat time together and she could feel needed again for a while.
It's stories like this that make me hate dementia so much more than I already do.
memory impairment
+ re living death
= nearly unimaginable anguish
First, it is so sad that the husband took his life. Most likely a combination of burnout, helplessness and separation from his wife. He was clearly overwhelmed and kind of fell through the cracks because all the focus is on the wife. He was the husband and the father, and have been the strong caregiver. Nobody realized he was falling apart and he apparently didn't issue a cry for help before he had decided he had had it and just chose to exit. Please give your friend hugs by proxy and tell her even more are waiting for her here should you choose to come on board.
Most of us are accustomed to repetitive behavior with dementia but I believe that witnessing the constant re-recollection was one of the most heart wrenching things to try to deal with. And it isn't limited to spouses, but also extends to parents, children and best friends - whomever the patient is able to remember.
In my dads case, he had Alz for about 11 years, starting when he was around 70 years old, and ending when he was 81. Somewhere between 78 and 79, he started asking why his parents for coming to see him. My grandmother died when I was five and dad was 35. My grandfather passed much later, when my dad was 68. So it was about 1992 when my dad started wanting to return to the family home in Hollywood, where he hadn't lived since he was 28 years old. At around the same time he started asking about his parents and every time he did, my mom would tell him that they were dad. He would be shocked, then angry, then upset, then start arguing, then telling my mother she was crazy, which prompted my mother defiantly to dig out the funeral announcements and show my dad. He could still read and apparently could still understand the concept of death, he just couldn't remember they were gone. Tears would well up in his eyes, and my dad, the strong one, the Joker, would break down crying uncontrollably.
I kept telling my mom she couldn't do that anymore but she was determined not to be called crazy. After a hellacious argument between the two of us, she finally agreed that the next time he asked she would try telling him that they'd be up in a couple of days. He did ask, I was told, shrug your shoulders and what about his business. That where's my moms first acquiescence of getting into his reality and practicing therapeutic fbbing.
I have described in other threads how, when my dad was upset, he wouldn't eat his blood sugar drop, he nearly fall over, all 6'3" & 219 lbs. of him (scary!). When he was finally ready to pass out, we could get him to take some orange juice and ativan and he sleep it off for 4 to 6 hours. Very stressful.
I have read on here more than once how some people do not like their. Fitting or lying because they think that its just a mechanism to make the caregiver feel better. That may be true in some cases, but that is so not true and a general way. If your dementia patient is pliable, divertable, sweet and otherwise manageable, and doesn't suffer over repetitive negative information, then that may be a person you don't have to practice therapeutic line with.
But if the person is suffering when you remind them of the truth, you aren't doing them any favors, especially if you have to medicate them to manage the distress.
That isn't to say that short term medication may be good to get her over the hump. But, IMO, your friend has to change her moms reality. Brightly disagree with any death, just say dad is coming tomorrow. Her mom has dementia and that is a slippery slope anyway. On her own, her mom will reach a point where she forgets that her husband has died because she will regress to earlier times.
It is definitely a miserable situation and your friend will have to experience her own suffering about it, but she can certainly do something to ease the suffering of her mom.