Mom's living in a private pay facility and has 5 months of funds available. I don't know what to do or where she will have to live. It seems such a shame at 93 1/2 that we have to move her. We can't afford to pay for her monthly rent and care plan.
I am looking for ideas on where to start.
Now if this is AL, it’s going to be different challenges. Mainly you’ve got to find out ASAP is if in your state Medicaid pays for AL. AL is overwhelmingly private pay nationwide. Most state’s Medicaid do not cover AL. If that is your situation you are going to have to do things to build up her health chart to show “need” for a NH. So mom moves into a NH rather than an AL.
Medicaid has “at need” requirements for BOTH financial & medical “need”. financial is what you hear abt the most but medical is just as important. Most go into a NH from a hospitalization & the common drama is mom falls & breaks a hip; gets hospitalized (MediCARE pays) & has surgery (MediCARE); then mom discharged for rehab at a NH (again MediCARE pays & for up to 100 days); usually they plateau out at 20/21 days & it’s determined mom cannot return home so she segueways from a rehab patient to a NH LTC resident; MediCARE does not pay for LTC so they apply for Medicaid. Now under this scenario, NH has gotten the much much higher MediCARE rate for weeks so they are happier, AND, the elder has a nice fat health care chart that clearly shows them to be “at need” medically for skilled nursing care. So facility knows the medical “at need” is ok. Family often don’t even know the Medicaid medical “need” has to be justified. Family is busy with getting years of financial & legal stuff so that’s their priority.
BUT
Your mom is not coming from a hospitalization. What might happen is that Medicaid will want to establish that mom is medically “at need” for care. If she’s been in a NH sometimes a NH will accept a private pay resident who is actually “custodial care” rather than being “skilled nursing care” as a resident. If your state actually pays for AL, that too will have “need” but it should be pretty straightforward review of old AL chart. State will want to review her health chart in some way.
I moved my mid90’s mom from IL to a NH and mom’s Medicaid application had medical need issues & I had to file an LTC Medicaid medical appeal. NH takes lead in this type of appeal as they have to input stuff into health chart. For us, it was RXs and labs from her doctors office that were left out of her chart at the NH when she entered. It was all resolved way b 4 the appeal hearing date. My point is, if your mom could in anyway be viewed as purely custodial care, & she’s wanting to go into a NH, she might need to have her chart beefed up before she files for LTC Medicaid.
if she is currently single room status, pls realize once she goes onto Medicaid more than likely she will have a small closet & will be sharing a room. So keep that in mind as you pack and try to jettison what you can. Often the most they can bring in is a chest of drawers & a chair; maybe a narrow bookshelf. If your mom has a ton of clothes, perhaps convert 1 of your closets into seasonal storage for her clothes & shoes.
OR as a place to find replacement clothing for missing items. I've been trying to sort through everything they boxed up and sent to me when mom passed. We were not allowed in, so this it what they packed. I had already, before the lockdown, noted mom wearing some things I'd never seen before.
I've found about a dozen stretchy undies (she NEVER wore any like that and had been in briefs for several years - we removed all her undies to help the transition.) I've found towels that I KNOW are not hers. She was partial to pink colors, so all hers were pink or had pink. There are some pink ones that I also know aren't hers, but blue and turquoise? There are also clothing items that I know aren't hers. Styles and sizes are way off, and I knew what most of her clothes looked like. I feel bad for those who have "lost" these items, but I have no way to know who they belong to, is the person still alive, is the person still living there?
So, the closet storing the "extras" can be seasonal, but also spare clothes!
I feel the same way you do; I hate having to move my mother at 94+ years old but in a while, there will be no other options as her $$$ is running out for private pay. Extreme old age is nobody's friend, that's my opinion on the matter. With advancing dementia and a good many other issues at play, the quality of my mother's life has diminished tremendously at THIS point. Having a roommate in a SNF surely won't make it any better.
Good luck!
If it's more complicated then I would certainly invest in hiring an elder law attorney to advise you and help fill out the form.
FYI usually a Medicaid bed is in a shared room, but my MIL has been in LTC on Medicaid since 2016. We moved her to a different facility that was closer and better managed. They have been remodeling and improving this older facility and she's been in a private room since last June.
(I minored in that area in NYC long ago - lots of talk, talk, talk...) We shall see. The bottom line is people pay into social security and medicare and it is difficult to get assistance later.