I am really curious to hear from everyone on this forum what the most challenging part of caregiving has been for you when it comes to your relationship with your spouse or significant other. Has your relationship changed a lot -- is it overall stronger or are you barely holding things together? What do you yearn to get back in your relationship?
Always having to watch her every minute so she didn't fall, didn't get into anything she shouldn't, staying up all night, etc.,
It was all too much.
She refused hubby's assistance (to the point of hitting him if he tried to help her), so that left everything to me.
We started snapping at each other. There was NO "free" time and her constant confusion with the same 2 questions asked 50+ times a day made us crazy.
She wouldn't sleep so we hired a night caregiver. We have a small house so I could still hear the commotion of trying to calm her or getting up to the bathroom with the walker. I couldn't sleep well and I needed to go to work. That made me more "snappy".
It wasn't worth loosing our marriage.
Mother is now in a Memory Care facility where she seems happier. God knows we are.
I have to say my hubby has been wonderful through this, and I believe it's made us a little closer in a way (I think we bond right now over griping and complaining about mom on our trips to get groceries or run errands - or that's our excuse to get out of the house anyway lol).
It's just changed the overall routine and norm of our whole household, and been challenging for our kids as well.
We are looking for mom a place to live where she will get good care and where we can visit, but won't have to be caring for her 24/7. I just yearn to get our privacy back. I miss our late night conversations after the kids have gone to bed, or the little flirty things we would do when no one was looking, which would be just awkward now with mom here because she is always in the living room staring at us.
Regarding my own relationship, I'll also answer the question that I posed. The most challenging part for me is that I feel as though I have lost a million degrees of freedom. Freedom to go on vacation. Freedom to go out with my husband without major preparation for his mom. Freedom to have friends over without including her in the plans. Freedom to just be a couple without thinking about her. It feels that MIL is hovering over us all the time and expects us to keep her busy.
My husband is an only child - his mom and dad divorced when he was only 2, and she never remarried. I often feel like the third wheel when they are at dinner and talking about the past and people I cannot relate to nor never met, which they do all the time.
I also miss the freedom to do things that I would like to do both alone or with my husband without considering her needs first. I know that it can't last forever but some days are excruciatingly long.
Realizing that, moving my demanding, narcissistic MIL in with us is not even an option.
Aaaaanyway, Trying to be a daughter, a caregiver, sole benefactor bit me royally. The more I over looked, the worst it got. I put the respect for parenthood before my husband and my family.
The good part was my 2 kids know I went 150% full on daughter and are proud of the daughter I am.
The bad part is the conversations, arguments, unspoken arguments, full on battles, no talking and the night he thru his ring at me and walked out.
We couldnt seem to get to the point where I wasnt taking them (at the time) or her since he passed OVER him, I was trying to find a happy medium, struggling to find a way-no having the tools to do it, there were no open forums like this and it was trying to understand feelings I couldnt put my finger on.
I figured when you get married, your family got bigger. I was an idiot. I didnt know once I married, it became "in-laws and out-laws" as I used to call it. She tells him to his face-" Blood is thicker than water Mister and you can be replaced". We have heard that so many times, its now a saying.
I dont sit quietly btw and take it either. He will not disrespect her, he has successfully avoid her for 8 years now, never being in the same room or answering the phone. He has also not prevented me from medical emergencies and all the time that takes to be there. Nor has he refused her financial help when she got slammed with a huge bill she couldnt handle.
Granted over the years we have both mellowed, but for the first 15-20 years of marriage, there was a ton of un-necessary damage. Every holiday, every DAM HOLIDAY was a battle. I hated them.......I knocked myself stupid, to plan, prevent and intercept possible issues...right down to seating arrangements so they would be face to face or near each other.
And we dont live next door to her either, we are 1500 miles apart ! Yup, all this crap and many miles in between. Flight schedules scare me, lol!
Panic set in....holidays are here, OMG!
Un-inviting didnt work-lying about not having the holidays didnt work either, and I got busted lying about it too. If I said Im going to....., didnt matter. I came home and she was here, 3 or 4 times. Got the ticket, and took a cab from the airport. UN ANNOUNCED!
One or two times, my door bell rang....here is the cab driver with luggage. My mistake was not slamming the door and dead bolting it. You should have heard those fights! There we were, sitting in the car, in the drive way, no keys, freezing to death! He insisted I knew, I was so pissed that he thought I did know! Ever try to get a hotel room 3 days before Christmas w/o reservations?
See what I mean, un necessary damage? He called it a Morgue a lot of times. Thank God, we had kids, they got us thru Christmas Mornings. I remember one year, she would not shut up about having a real tree, it was a fire hazard, with children in the house, what are you thinking. Every phone call, every person that came thru the door had to hear about how stupid we are having a real tree- endangering our kids! The tree was fine, well watered and watched like a hawk! Fond holiday memories! Ugh.
So ya, did my relationship with him change- absolutely! Is it stronger over all, yup, now that we are older- married 40 years in October. BUT, that was our doing and a blessing- we both figured out she wasnt worth the fight, feelings or time that took away from us.
What would I yearn to get back....my younger memories. I wish we had the christmas parties I avoided- I wish I attended the holidays I gave up with others. I wish my kids first communions, confirmations, graduations, and a ton of holidays were less darker memories of the fights in the car, its too hot, its too cold, its to crowed, I cant hear them, this is too long, people drink, people smoke, its too loud, there is no parking, I dont like the food, why did you go here, the silver ware is dirty, waitress is a bitch, wheres the bath room, Im tired..... and everything else that would come out for hours on end.
I wish I had severed the cord, before I married and never looked back.
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