Does anyone have any positive experiences with Assisted Living Facilities. Just began looking at them as an option, since Mom (82) and Dad (87) may need a back up plan in the future. I am not in a position to add any more caregiving than I have over the past 4 years (nine years total for other family members) Exhaustion, health issues of my own, a small condo and the need to maintain my employment are the primary reasons. Mom and Dad are doing ok, but both have become less healthy and I can see the possibility of them not being able to live alone in the future due to declining health situations.
Assisted living was suggested to me, and although I thought it was too expensive at first, I found 2 facilities that they could afford and that seem very nice. Also one of the facilities has a 90 percent refund of the buy in price as an option, I imagine that is if the resident does not want to continue to live there.
Any feedback would be appreciated!
Here's what we do to make it better for her: we hired a nice lady to be on call to drive her to her medical appointments, weekly hairdo, or just take her out for a drive. She charges $10 an hour and uses our mother's own, familiar car. She texts us a weekly statement of # of trips, where they went, and hours, but otherwise it's understood that the trips don't have to be urgent or important---if Mother wants to visit her old home, or drive around, that's OK. Mother has subscriptions to the local newspaper and favorite magazines, and she has her own phone. Although we live a long way away, we call several times a week. She has a few friends who visit her and so far some some out-of-town family member or friend has visited every month.
Shop around, visit places, above all watch how the staff interact with the residents. Are they kind? Alert? Does the place smell OK? Is the food tasty and attractive? Are there at least a few other residents at the same level of function, so she has someone to talk to?
And if you live in the same town as your parent, even better. You can get by regularly. As time goes on, Mother is realizing that in many ways she's more independent now than she was at home, with part-time help, or living with me.
It is independent in the sense that you need to be able to be mobile
and that you need to know where you are going,
meaning that you have to have enough memory,
to be able to navigate the facility.
Our 86 year old probably needed more, as she waited to go home everyday, she did not realize she was in an assisted living, she did not know where she was and had to stay by the phone, so she did not miss the call that said she was going home. When she was sick with the flu, no one checked in on her or made her eat a little something, they deposited her food tray in her room, she had gone down to 97 pounds, by the time she was pulled out of the facility(by someone who had managed to get a different power of attorney).
We wish her POA's had found a small one, but her AL resembled a honey comb she really had to navigate, as she was in the second or third cell in and that meant 2 or 3 hallways of rooms on each side(of knowing which hallway to navigate as each floor and section started with five (entrances) hallways) and an elevator trip to get to the roaring fireplace with appetizer snacks, that their adds showed on television.
She could not navigate and was trapped.
That would be an important feature, the size.
Her facility did not post anything, that is sure a plus.
Her facility, had the ability to keep their rooms locked, the people who gave trays had a pass key, the nurses had a pass key, so it could seem to our 86 year old that she were locked in, so she could not happen to see someone, passing in the hall or have company, by chance.
Also our 86 year old was an immigrant although she had been in America for 50 years she ate only ethnic food, the food she cooked, suddenly there were no schnitzels, spaetzle, pannekuchen, sourkraut, etc. offered on the menu, these are somethings to think about...
Had her POA's really thought about not only her safety, but her well being, she actually might have stayed in an assisted living facility because she might have actually felt like she was home. We also do not know what we will be doing, as I am graduating college in a few weeks and will have to get a job, I have been her caregiver, since 2006, her full-time caregiver since 2007 and her court appointed non-paid caregiver for the last year.
Let us know how your search goes as I know it is a process we may have to take on. Our 86 year old has gained her weight back and doing well, but needs 24 hour care.
I go to bed at night knowing that my parents are happy, safe, clean, feed and being watched, taken to the bathroom at night and getting their medicine routinely. When their health issues have changed such as falling and breaking hips, falling out of bed, confusion. I get a call and they have guided me through the process, made suggestions of equipment that would work and then the plans are followed.
In my grandmother's case, I know she loved a longer more productive life because of the people that loved and cared for her. I have seen the same thing with my parents even after one year. I know that as I get older that I would be happy to find a place like my parents have.
Drop in without an appointment and talk to the residents. Match what your parents want with what the ALF offers. My mother is not social so social events would not matter to her. See if and how long they can offer increasing levels of care. If not you may have to add (at the very end, sorry) hospice to the ALF care and if that is not enough, go into a nursing home. I had the best luck with the small private houses that had slightly trained staff for my budget. Speaking of staff, make sure there is enough help. Some of the swanky ALFs that look like Club Med do not have enough staff. If your parents can still take their own meds, they can go to a place where the staff are not highly trained.
A lot of doctors are making house calls to ALFs again but I have found them to be "bottom of the barrel." Last thing I can think of is to consult someone who is an expert that is not trying to sell you. Do NOT reveal all your assets, they have wiggle room in their prices. Best of luck and prayers, Virginia
I have one friend who had a positive relationship with an ALF for her 2 parents. However the move was made for the mother's health concerns and of course she passed about 8 mo after placement and the healthier father is stuck in the facility (he only went into the facility to be with his wife who passed away). He could really still be living independently or with a little bit of home care but it isn't an option now because all their assets have been spent at the ALF.
I would check out veteran homes too. Often an elderly person who was in the service can qualify for an opening and they are far less expensive (will not impoverish your parents). They pay a fee based on their income etc.
The trouble with all placements, you lose control over exactly who they hire to care for the residents. Yes you can complain but I haven't seen that to be very effective. Many of my friends have had problems with the aides taking care of their parents and since the facility hires them--they were stuck.
It is a big decision, if a placement is required do lots and lots of research. Get an ALF which is required to keep them when they get weaker and need nursing home level care. You don't want them to be discharged needing that level of care, without any savings left and you are looking for a quality nursing home and have no reason for them to take your parents. Most nursing homes want
patients with $$ before they lose it and go on Medicaid. These are the sad realities of elder care in our country.
Good luck.
Elizabeth
I have heard of more positive AL experiences than I have of those caregiving at home, or the caregiver's home. My mother is living with us and won't consider AL, but I think everyone here would be happier if she would.
So, don 't give up if the first facility doesn't work out. When you find a place, make a few unannouncerd visits so you can see what is going on.
Also, check on your state's Medicaid program to see if your parent qualifies before spending all of their money on care. You may need to hire an elder law attorney to help you wade through all the legal paperwork.
Be sure to take care of yourself or you won't be of any help to your loved one.
The staff has turned over almost 100% since she moved in. The administrator is new, there about 2 years, the last one retired from there and was wonderful. I have doubts about this administrators abilities.
They seem to look for reasons not to provide care to the residents. For instance, mother needsd a back brace since her fall and it was a battle to get that lined up and the staff has complained they shouldn't put the brace on because it is restraining her.
I suggest you read your states regulations for the assisted living facilities and ask many questions. They will lie to you. But this is one area you need to know your rights for sure since you are caring for a loved one.
I haven't met anyone that has had a pleasant experience with nursing homes or assisted living...........
These places can vary wildly in facilities, rules and regulations, staff (most are underpaid and often underqualified and some just don't care about residents because they don't get paid a lot and have resentment towards employers. I know one who is a suicidal alcoholic who wrapped her car around a tree because a man turned her down for a dance at a bar) and in what payments/insurance they take. Some may offer skilled care for later on and even hospice care while others do not and you might have to move if you need those things.
Check them out to see if there have been complaints. Pop in when least expected and peek around to see what is REALLY going on. Chat with staff. Are they grumbling about residents, work, or their dating lives? Find out the qualifications to work there. Is the place clean? Talk to residents and to ex-residents. Why did people leave? If they have a Facebook page, go see what people are saying there.
Your state should have a licensing bureau for all assisted living communities. Check with them to see if there is a list of reports of any complaints on any facility.
Visit at all times of day and night and talk to residents and other family members. If you drop by after work you can probably catch a few families coming and going.
Most of the people I have met in AL communities have a big heart and really care about the seniors they care for. What you need to ask however is how they like their job and how long have they worked there. I help families find places for their parents and one of the questions I tell them to ask is about staff turnover. If there is constant staff turnover stay away. The management has problems and this will affect the care your parent gives. I too am a big fan of the smaller group homes (we call them personal care homes) especially for those with dementia.
Remember you are or should be most focused on the care received not the outward visual appearance. Of course you want the place to be clean but the newest and fanciest place may not have the best care and care is what you are really paying for.
So many things I never would have even thought of if you all hadn't mentioned them! I'm going to re read all these posts and write a nice long list of things to look for for when I start visiting
these places so I can weed out the list. I was not aware of many of the
negative situations that can occur so thank you all for the heads up on those things..very helpful to look out for them before moving someone in.
I will definately start now before a crises (great idea). Great idea of hiring someone as an on call driver to take
the resident wherever they want to go whenever they want to.
I can see that greatly helping to maintain the emotional/mental state of the parent as well as the physical.
Thank you all so much for taking the time to respond.
The caregivers journey is not an easy one, but thank goodness there
are options that exist today. Great to know that there are places where the
care reciever is content, safe and happy especially for those of us who really
cant manage the 24/7 move in care.
The Asst Living community is pretty place and would be fine for those who have no income worries. If families know that there is a limit on the amount they can spend per month, then they need to read the fine print and shop around.
got so she couldn't stand, even just a transfer to the toilet ,we got a port-a poty. My
disabled son and I would try our best, My husband traveled alot. But we just couldn;t do it. l transfered mom to a "behive House" she almost died. They assured me they could handle her. They knew she couldn't walk at all. It was an
experience I don't want to remember. Then we put Mother in a full care facility and
that has been the best thing in the world for her. It is expensive. We are barely making it. The only problem we've had is Laundry. I have to go get her laundry,
or it disapears,. I have actually seen other patience wearing her things, They blame me saying I didn't put her name one it. Witch if course is stupidl Of course I
did! We are very afraid to bring anything to her room that is in the last bit valuable.
But she gets taken care of very well.
If your loved one can stand on her own. then an assisted living may work for
you. For us it was a disaster. She was drugged the whole time. She doesn't
even remember ever being there. It took weeks at the full care facility to get the
drugs out of her system. After being in intensive care unit and almost dying.
Ask some good questions and a lot of what ifs...
What happens when person is hospitalized, needs assistance following hospitalization, rehab, etc.
How will they handle lonliness, isolation, person's refusal to participate in activities
What do they consider nuicances and cause for dismissal or moving from facility - violent outbursts, crying, hitting, stealing, etc. - who on staff handles these matters? do they redirect the behavior or drug the person? how are they resolved; will they consult with family?
Add on charges
Can you hire outside help to check on the person or care for the person if extra care is warranted for limited time?
Just some things to consider and be sure it is in writing.
Visit weekdays, weekends and spend some time talking and observing the residents, do they like it? how do staff acknowledge the resident, is it clean, cheery? what calendar activities do they have - are these activities well attended? will you parent or loved one enjoy these activities?
not sure why my first post was deleted...i noticed the link for the check list went away the first day /-: what up admin????
Courage in this most important job of your lifetime! Anita
I agree with the idea that in one way or another
we will be spending money on care, and I always assumed that assisted living
would be a safe environment if my parents ever got to the point that they could not maintain their home. Also Mom has mentioned that she would not want to live alone in their home if something happened to Dad first. Dad is just the opposite, does not want to leave the house ever....so we are really looking at all options as back up plans for the future.
Trying to be as prepared as possible for any scenario.
Lots of work to do! Thank you everyone for taking the time out of your busy day
to respond.