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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Dementia is a lose-lose situation for ALL concerned. Everyone suffers when a loved one is lost to the ravages of it. In reality, you lost your "husband", the man you knew and married, a long time ago. You grieved that loss, you cried, you raged, you struggled with the decision to place him and only did so when things became too unmanageable at home. You didn't even know this man anymore.
Now he's in Memory Care Assisted Living where most elders struggle and beg to come home. They cry. They play the guilt card HARD and you dread each visit. You leave drained and feeling like a horrible wife. You have a hard time sleeping and staying asleep. It's a vicious cycle that keeps playing out over and over again until you feel like you're being driven insane.
Iinstead, your husband is calm and relaxed in Memory Care because he found companionship. He forgot he was married as the disease destroyed more of his brain every day. You have to witness him holding another woman's hand, but at least he's content, thank God. At least one of you is not losing their serenity 24/7 trying to figure out what to do to make the other happy. He already is.
Part of the 5 Stages of grief is Acceptance. You are grieving the loss of your husband before he actually passes. You'll feel shock/denial, anger, bargaining, depression and finally, acceptance. You'll waffle between the stages, back and forth for some time, working your way towards acceptance. In this case, you are working towards acceptance that your husband has found a new companion. Because of his dementia. It's a egregious loss nevertheless. The sooner you can arrive at acceptance, the sooner you'll feel forgiveness for something he's not doing purposely. You'll find happiness in your heart that he has some comfort in his very limited life now.
I pray that is the case for you, and that you can then embark on a life of your own. Yes, do continue to visit your husband and be his advocate and voice which he has lost.
God bless you and give you the grace and courage to see this situation as a blessing for both of you. The best of a bad situation, which IS a blessing where dementia is concerned.
Lea, you just summed up everything I’ve read about John Connor and Sandra Day O Connor’s relationship.
Sandra used to bring John to work. Then she quit her job. Then she had to place him. She was delighted that John was finally content instead of her worrying about it. When she visited and he was holding the other lady’s hand, she just held his free one.
I work in hospice. I had a case where the father had divorced the mom like 20 years ago. He had a "special friend" his ex wife's childhood best friend who would visit him like once a month.
He would yank his catheter out for the visits which led to chronic UTI, injuries, pain, potential sepsis, and moved him to late stage dementia so he qualified for hospice. He hated memory care, did not leave his room for anything. One grown daughter who lives 2 hours away dumped him off in MC near the other grown daughter after a very nasty fall that shattered a hip. He does not wander or get violent but a fall, catheter, UTI and sepsis risk.
The nurse at MC had said if we don't get this catheter matter under control we will have to move him to skilled nursing, so it led to a referral to hospice before the SNF, and he qualified.
The other grown daughter around 60 years old, has a husband, 2 adult sons on the property, her mom (and his ex-wife) lives at home with them on a large rural farm property. The daughter set up a wheelchair accessible trailer with the sensory alarms on the property for her mom.
The Dad only in MC for a couple of months. He hated it and so did the family. Some people will judge that but families have rights (and also get held accountable by the state too).
She moved her Dad out of MC to share the trailer with the ex wife. The "special friend" now has to visit the trailer to visit her childhood best friend (ex wife) and the ex husband at the same time.
Per the state laws as long as the bare minimum for care met, most states have right to rot laws. The Hospice benefit follows the person to "home" and treats the whole "family" as long as enough decline shown.
Further the daughter who now has both her parents (who got a divorce) with her at home living together worried about the "special friend" getting upset.
I explained that next of kin in the state we live in have the decision making power, assuming the family chose that commitment as some people don't. Further the 2 daughters have equal POA decision making. He qualified for hospice making him a vulnerable adult per state laws, so the "special friend" does not really have any say in the matter unless she becomes next of kin.
With that said, we disclosed if he starts to take a bunch of falls or gets a bunch of UTI's or sepsis, the state will scrutinize does not matter if it happens in MC or at home, but at same time hospice treats the individual needs in their home.
While it is good to know that love comes even to the elderly, it's sad when this happens and it is very common. My Aunt's friend had this happen. She visited him because SHE herself wished to do so. And because her visits were not in any way "disturbing" to her husband, who simply introduced his new friend as his girlfriend, and his wife as another friend.
So it is entirely up to her. She can comfort himself that he is already for most intent and purpose gone. And she need not visit, but should check in with caregivers to make certain he isn't asking for her. She can move on with her life if that's what she wishes to do. And on the other hand she can visit if she wishes to.
At some point, quite honestly, were I in her place? This would be a GREAT COMFORT to me, odd as that may sound.
You don't give us details here so we are left really to tell you she should do exactly as she wishes to do. She may in fact, wish to divorce at this point and TRULY get on with her life, without having to worry about his division of assets. Tho she should consult an attorney about financial repercussions for him and for her first.
I’m sorry for your hurt in this. Your husband definitely needs regular visits while in care. This serves to insure his care is good, the staff sees him as a person who’s valued and cared for, and his family makes sure he is well, safe, clean, and has what he needs. You can decide how often to do this, if you can have others help you do this, how long to stay, and if some of the visits need to be a quick peek around a corner, check in with the staff, and then go. When you leave, go do something you enjoy, like eat ice cream! During my mother’s years in care, we witnessed the staff taking a more active interest in residents whose families visited regularly. It may not be best side of human nature, but it’s still true, when you care, others care. I wish you healing from hurt and peace
This must be very hard to witness. I'm so sorry. I wouldn't visit as often, maybe one or two times a month. You have new found freedom now that your husband is in memory care. Try to figure out how to rebuild your life. I wish you all the best.
To me, this is a difficult one, I really don't know how I would react day to day.
I guess I would continue to visit weekly for a few hours and leave it at that. He has built a new life, I would start rebuilding mine, spending more time with friends and family.
When one is a caregiver for a long period of time, they lose themselves, might be time for you to start a new chapter in the book of your life.
Sending support your way, I am so sorry about this.
Of course you DON'T stop visiting your husband, as he is still your husband. He can't help that his brain is broken. If you're having a hard time with seeing him with someone else perhaps just go once or twice a week. One of the ladies in my caregiver support group had the same issue as you with her husband. When she would go into his memory care facility, if he was holding the "other" woman's hand, she would just sit on his other side and hold his other hand. She knew that if he was in his right mind that he would never do such a thing and also found some comfort in the fact that he at least seemed happy in his new home. May you take comfort in the fact that your husband still loves you despite his broken brain.
After Sandra Day o Connor’s husband went into a facility, she visited him while he was holding another woman’s hand. And the way she saw it was that at least he wasn’t lonely.
I am feeling jealousy even though I know it’s the disease. I guess he thinks she is me. She wants to be near him all the time. He chooses to spend a great deal of time with her.
I have seen this in memory care. I think, with the memory issues, it can literally be a case of "out of sight, out of mind." I think he is holding on to the comfort and love and security that you shared in your marriage, and is transferring it to someone who is physically present the way you always were. So in that way it is a compliment, that he wants to hold on to that. But yes, the circumstances and brain confusion change who he senses his partner to be. It must be a devastating feeling. I don't have any advice except to realize that it is not anything you or he can control. He isn't deliberately and consciously choosing her over you. But it is an additional layer of grief to have to process for you. I'm very, very sorry.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Now he's in Memory Care Assisted Living where most elders struggle and beg to come home. They cry. They play the guilt card HARD and you dread each visit. You leave drained and feeling like a horrible wife. You have a hard time sleeping and staying asleep. It's a vicious cycle that keeps playing out over and over again until you feel like you're being driven insane.
Iinstead, your husband is calm and relaxed in Memory Care because he found companionship. He forgot he was married as the disease destroyed more of his brain every day. You have to witness him holding another woman's hand, but at least he's content, thank God. At least one of you is not losing their serenity 24/7 trying to figure out what to do to make the other happy. He already is.
Part of the 5 Stages of grief is Acceptance. You are grieving the loss of your husband before he actually passes. You'll feel shock/denial, anger, bargaining, depression and finally, acceptance. You'll waffle between the stages, back and forth for some time, working your way towards acceptance. In this case, you are working towards acceptance that your husband has found a new companion. Because of his dementia. It's a egregious loss nevertheless. The sooner you can arrive at acceptance, the sooner you'll feel forgiveness for something he's not doing purposely. You'll find happiness in your heart that he has some comfort in his very limited life now.
I pray that is the case for you, and that you can then embark on a life of your own. Yes, do continue to visit your husband and be his advocate and voice which he has lost.
God bless you and give you the grace and courage to see this situation as a blessing for both of you. The best of a bad situation, which IS a blessing where dementia is concerned.
Sandra used to bring John to work. Then she quit her job. Then she had to place him. She was delighted that John was finally content instead of her worrying about it. When she visited and he was holding the other lady’s hand, she just held his free one.
Thats acceptance.
I work in hospice. I had a case where the father had divorced the mom like 20 years ago. He had a "special friend" his ex wife's childhood best friend who would visit him like once a month.
He would yank his catheter out for the visits which led to chronic UTI, injuries, pain, potential sepsis, and moved him to late stage dementia so he qualified for hospice. He hated memory care, did not leave his room for anything. One grown daughter who lives 2 hours away dumped him off in MC near the other grown daughter after a very nasty fall that shattered a hip. He does not wander or get violent but a fall, catheter, UTI and sepsis risk.
The nurse at MC had said if we don't get this catheter matter under control we will have to move him to skilled nursing, so it led to a referral to hospice before the SNF, and he qualified.
The other grown daughter around 60 years old, has a husband, 2 adult sons on the property, her mom (and his ex-wife) lives at home with them on a large rural farm property. The daughter set up a wheelchair accessible trailer with the sensory alarms on the property for her mom.
The Dad only in MC for a couple of months. He hated it and so did the family. Some people will judge that but families have rights (and also get held accountable by the state too).
She moved her Dad out of MC to share the trailer with the ex wife. The "special friend" now has to visit the trailer to visit her childhood best friend (ex wife) and the ex husband at the same time.
Per the state laws as long as the bare minimum for care met, most states have right to rot laws. The Hospice benefit follows the person to "home" and treats the whole "family" as long as enough decline shown.
Further the daughter who now has both her parents (who got a divorce) with her at home living together worried about the "special friend" getting upset.
I explained that next of kin in the state we live in have the decision making power, assuming the family chose that commitment as some people don't. Further the 2 daughters have equal POA decision making. He qualified for hospice making him a vulnerable adult per state laws, so the "special friend" does not really have any say in the matter unless she becomes next of kin.
With that said, we disclosed if he starts to take a bunch of falls or gets a bunch of UTI's or sepsis, the state will scrutinize does not matter if it happens in MC or at home, but at same time hospice treats the individual needs in their home.
What happens in MC should stay in MC.
So it is entirely up to her. She can comfort himself that he is already for most intent and purpose gone. And she need not visit, but should check in with caregivers to make certain he isn't asking for her. She can move on with her life if that's what she wishes to do.
And on the other hand she can visit if she wishes to.
At some point, quite honestly, were I in her place? This would be a GREAT COMFORT to me, odd as that may sound.
You don't give us details here so we are left really to tell you she should do exactly as she wishes to do. She may in fact, wish to divorce at this point and TRULY get on with her life, without having to worry about his division of assets. Tho she should consult an attorney about financial repercussions for him and for her first.
I guess I would continue to visit weekly for a few hours and leave it at that. He has built a new life, I would start rebuilding mine, spending more time with friends and family.
When one is a caregiver for a long period of time, they lose themselves, might be time for you to start a new chapter in the book of your life.
Sending support your way, I am so sorry about this.
If you're having a hard time with seeing him with someone else perhaps just go once or twice a week.
One of the ladies in my caregiver support group had the same issue as you with her husband. When she would go into his memory care facility, if he was holding the "other" woman's hand, she would just sit on his other side and hold his other hand.
She knew that if he was in his right mind that he would never do such a thing and also found some comfort in the fact that he at least seemed happy in his new home.
May you take comfort in the fact that your husband still loves you despite his broken brain.