I need ASAP to locate a supplier for " mechanical" soft foods.
1. Dysphagic diagnosis requires elimination of some foods and substitution of "mechanically soft" foods.
2. Pork, chicken and beef (unless ground up) are out; tuna fish and other fish are still acceptable. Other foods such as breads are out unless they're soaked in gravy or softened. Raw veggies and fruits are out except for bananas. I've considered baby food but research thus far reflects they don't have the nutrients that adults need.
I've identified alternatives to the raw veggies and fruits, but meats are still problematic.
3. I bought some Thick-It yesterday to thicken fluids; that aspect has been addressed.
4. My immediate need now is to focus on protein and iron (anemia diagnosis involved as well).
5. With up to 6 home care people involved, my home and cooking time is limited and I'm generally in transit to my father's house. Having had a few less than interested home care staff in the past, I want to make sure at the outset that the selected staff are fully on board and that we're in agreement on goals and treatment (some therapists have been less than enthusiastic about therapy for seniors - that can't happen again).
6. I'm trying to find frozen meals that can be microwaved; my father's not able to cook so the meals have to be microwavable, prepared by me or someone else (no someone else is available though). I found a few frozen meals yesterday but they're extremely limited, and most have meats that aren't easily chewable. I could buy them just for the "sides", but that's a waste of money.
7. I'm wondering if there are companies that specifically prepare "mechanically soft" meals, and if so, the names of these companies. I will call Schwan's, as their food has been good in the past, but I'm not sure they cater to dietary specialized meals. Even though I'll try again, I rather doubt I'll find much at the regular grocery stores.
8. The speech therapist hasn't come on board yet; I'll be contacting her, as well as any speech pathology organizations I can locate, and of course doing more online research. I'm also contacting the dietician and speech pathologist at the nursing home Dad was at. I'm hoping they have some recommendations.
9. Between 6 different people from home care coming at various times, I'm not able to spend time cooking until the weekend, and the need for specialized meals exists NOW.
10. We have been getting Meals on Wheels, but they're not able to prepare "mechanically soft" meals. They could provide regular meals, but someone needs to chop or cut up the meats. And generally the meats aren't soft enough that even grinding would make them edible. We've tried thinner meats but some choking still occurs, so that option is out.
If anyone has gone through this before, and found a source for already prepared "mechanically soft" meals, I would sincerely appreciate that information.
Thanks in advance to anyone who responds.
Actually, I've done a bit more research; yogurt and puddings are fine in their purchased state, as long as they're not left out and become warm and begin to liquify. I haven't found anything though that addresses a better way to deal with the frozen delicacies. I've thought of home made popsicles with thickening - that's a possibility but I also want to be careful with experiments if I can't find medical literature addressing those specific foods.
But given that the frozen products are almost a necessity with the heat wave we're having, I'll still keep checking.
I'm thinking that a thickened milk shake might work, drunk only to the point that the ice cream starts to melt. I've frozen them and chipped away at the ice cream periodically, but I'm not sure that's a solution.
I've even thought about frozen Gatorade or Pedialyte, Boost or Ensure.
Given the importance of DQs and ice cream though, I'll keep working ...and experimenting on myself.
NY DIL, thanks to you as well for the suggestions. I had forgotten about mashed foods that are canned. My father is basically a meat and potatoes person and doesn't like anything like hummus or that's not basically a home grown farmer's good food diet - that's how he was raised when he grew up on a farm. But I recall seeing some frozen, mashed vegetables that could be added to his diet. I'll spend more time in the frozen vegetable aisle the next time I go to the store.
The research I did yesterday supported my suspicion that all seeds are out, including seeds in strawberries and raspberries. That's unfortunate; I was looking for some good fresh fruit and thought they would be easy to swallow.
Have you ever pureed flax seeds and added them to foods? That might be an option.
I haven't explored the baby food options yet; the pureed level is a more restricted stage, although applesauce is recommended. Not having even visited the baby food aisle in decades, I suspect I'll be in for a surprise.
Sometimes I feel as though this diet is opening so many new possibilities and I need to gradually examine and either accept or reject them all. I try to keep remembering Job's "The Journey is the Reward" slogan - with the destination being a wider variety of safer foods while working toward and transitioning back to a regular diet. At that point though, the reward for Dad might be a big slab of babyback ribs!
My next step is to explore what organic thickeners might exist. I recall a discussion on an organic gardening forum sometime ago on what the gardeners used to thicken fruit to make jam, something other than Certo or the commercial thickeners.
Thanks again to you both for your suggestions. This is a learning experience, that's for sure, but I'm glad that at least he can still eat solid foods.
Anyhow...I think you're right that hot meals are available in the larger areas, such as our metropolitan area. I'm guessing if I lived in the more peaceful, quiet, more smogfree farming area of Michigan, there wouldn't be any MOW available for my father.
Back to the issue of adapting to a level 2 dysphagia diet...we are managing to find substitutes and ways of dealing with the foods Dad likes. It's not as overwhelming as it seemed initially, but it is limiting. I'm still working on a substitute for Dairy Queens though.
I haven't checked with our speech therapist on these issues, but I'm thinking of some substitutions that might work:
Vitamin C along with iron foods for maximum iron absorption: fresh fruits such as apples and oranges are out, but now there are raspberries, blackberries and strawberries. If the tiny seeds aren't a problem, these would be good accompaniments. I think blueberries wouldn't be acceptable because of the skin.
But, best of all....pumpkin! We both love pumpkin, it's got C and A, and it's delicious. Years ago I switched from pumpkin pies to just pumpkin pudding - same recipe minus the crust.
Now, if only I can get my pumpkins planted...the garden got put on hold when Dad went to the hospital last time. I may try elevating the pumpkins for maximum sun exposure (and maybe away from the raccoons).
I'm also just updating this post as I find other solutions, in the event that someone else might be dealing now or in the future with a similar issue.
Second, pureed foods aren't required at his stage, so that's an easy aspect to eliminate before even having had to consider it.
Third, some of the foods allowed and disallowed are surprising: White bread but not whole wheat or artisan (too much texture, good things we normally would like such as grains, flax, etc.), ice cream (uh, oh, no Dairy Queens either!), milk shakes (another disappointment), oatmeals but not with fruit, and corn and peas. I guess it's the very thin skins on these 2 veggies.
I'm going to inquire about using Thik-It in milk shakes, ice cream or sherbet and cut the portions to about 1/2 cup, which could be eaten before it melts and becomes too liquid.
Fourth, I do have a Level 2 dysphagia diet guideline now, so that's our temporary manual.
Fifth, I did check out the sources of prepared meals suggested, both here and in PMs. There seems to be a good selection, but...see Sixth point.
Sixth, we've figured out a way to reinstitute Meals on Wheels, which is great not only b/c I won't have the added food prep time (other caregiving issues have arisen), but because it provides a social source for Dad. Even if it's just a few minutes "meet and greet", it provides a nice break in his day.
And our local MOW apparently works with some local schools; periodically there are handwritten/drawn cards from youngsters offering support, providing a little bit about their life, but generally overall, very cheering.
Ground meats such as hamburger are permitted; chicken can be cut up; breads will not be eaten, as they're off the current diet. There might be a few meals that won't provide much since the ingredients aren't on the current diet, but that's a small portion of what Dad will be getting.
CWillie, I wasn't aware of being able to purchase frozen MOW; I'm going to inquire about that, or perhaps just order extra meals for the weekend and freeze them.
There will be some loss of food, such as the fresh vegetable salads, but overall the diets can be adapted.
Seventh, the Speech Language Therapist (SLP) has provided a list of exercises to be done daily, a few of which are those which Dad did over a decade ago when he had a more severe form of dysphagia after prolonged intubation and reliance on a trach.
One thing I would caution against if anyone does have a parent or loved one who's given these exercises. DON'T do the exercises yourself. Initially I suggested doing them along with Dad, but the then SLP specifically told me not to. These exercises are not for people with normal swallowing functions and could actually harm the vocal chords.
So, I don't get to grunt and groan like a caveman (apologies to the Neanderthals and early humans) along with my father to provide moral support.
Eighth, thanks to some private messages as well as the posted ones, I was given information on a delivery service for special diet meals. They seems to be varied, and I'm keeping that as backup information in case anything changes.
I still have some research to do, but at least the change isn't as drastic as I anticipated.
Perhaps the hardest part is to remember to tuck the chin when swallowing, and accepting the potential loss of treats as hotter weather becomes more prevalent - I don't think anyone can deny the relief provided by a nice cool dish of ice cream, sherbet, or a trip to the Dairy Queen for some really luscious temptations.
Thanks again to everyone who took the time to respond; your suggestions have all been helpful, and as noted above, I'm saving and studying all of them to see how I can integrate them into the new menu.
And as for now, there are some other nonfood issues that have developed, so it's on to the next challenge (of which I frankly have had enough).
I met the speech therapist on Friday, got yet another list of acceptable and unacceptable foods, and have started making adaptations. I'm trying to get some of these implemented in the next few days to provide a supply of tolerable foods - it will be a change but it's a challenge, and actually not as difficult as I thought - somewhat time consuming, but doable.
Back in a day or so....
A few years ago I had lunch with friends at a senior center. The same center prepared and delivered MOW. Some of which were frozen for recipients to store. Even around MA there is a huge difference , so I am told, between service areas. Senior centers and AAAgencies are places to ask what is available.
For several years since I inherited the job of chief-cook-and-dishwasher I have been preparing meals for my ADW. I now cook using a microwave oven and a counter top electric steamer. The diet is based on fish, sea scollops, chicken, vegies and tofu with a hearty base of Chinese eggplant in garlic sauce.I guess 90% of our meals are steamed. This permits food to be from mush to tender. The best thing is the microwave and steamer shut themselves off and eliminate stove top concerns.
Try throwing the meals-on-wheels into the steamer and cook and cook and cook...and cook
Do you need fully pureed or is minced and moist still possible? I expect you will be able to tweak the diet a little as you go. I wouldn't worry too much about the protein issue, most North Americans are used to consuming way more than we need. As the others have said, cream type soups, smoothies, custards and yogurt are all naturally pureed and can be packed with protein, fruits or veggies. Silken tofu blends up really nicely with fresh or frozen fruits, protein powders can be added to smoothies, and of course there is dairy and the various nutritional supplement drinks.
If he needs a total puree then frankly I would stay away from meat completely unless it is whizzed into a flavourful gravy-like sauce.
It is true that a mechanical soft Dysphagic diet will effect every aspect of a meal. Not every patient can handle that psychologically.
From my limited brain on cooking, I wonder if cream soups would help. Like split pea if the peas were blended down enough. I might even buy baby food, especially the meat, and add mash potatoes to the menu. Bob Evans makes a tasty mash potato and also mash sweet potato, easy to heat up.
If cereal was soggy enough, like corn flakes or rice krispy, would your Dad be able to eat that? Oatmeal, cream of wheat?
If you are worried at all about nutrients an ensure will git a boost.
Dad lost a lot of his taste for anything in the end so I tried to give him stuff that was pretty instead. He didn't want to eat it initially but once he realised that the taste was the same (and you have to pick your battle here - I did it with sausage and onion and mash and a sort of dahl type pureed baked beans he realised he wasn't losing flavour and all was well with the world again.
As for desserts (oddly enough that never seemed a difficulty at all)
He loved eton mess - meringues crushed into cream with ice cream and pureed red fruit (I used strawberries but change to raspberries because dad preferred them)
Banana which I mashed with sugar and poured custard (HOT OR COLD) over
tapioca or semolina or ground rice pudding with a dollop of jelly in it
He adored peaches and I pureed those and gave him them with condensed milk
so easy to do dessert so much more difficult to do mains.
Easiest mains to get every nutrient under the sun in? SOUP
I could give dad a full meal using a soup maker. Just chuck everything in turn it on and 20 minutes later a blended soup. If Mum ever realises what she has when she has soup she wouldn't eat it believe you me. Kale, broccoli all the greens she hates plus some meats she wouldn't otherwise eat
Pea and ham is her favourite for sure but she like lentils too and all soups freeze well.
I think I would take the blender to Dads and use it there rather than do the double journey then bring it home with me. The one thing you are going to need is a lot of those teeny tiny pots with lids that are freezable and microwavable. I literally used to cook of say 1 whole rutabaga and 6 or 7 carrots mash it all up in the blender with butter and pepper and no sodium salt and put about a tablespoon or two into each pot - boy did I run out of pots quickly the first time I did the cook off!
I haven't tried pureeing beef; I'm hoping to get some cooking time this weekend and can try it. Frank question: pureed foods sometimes look, well, like baby food or mush. Did your father have any objection to eating it after it was pureed, i.e., was it unappetizing?
How did you handle breads and rolls? I was thinking of pouring gravy over the rolls, kind of a southern biscuit and gravy style.
Sausages are a good suggestion; they add enough flavor that the meal wouldn't seem bland. I like sausage and so does Dad - good for us both!
It must have taken some time to puree everything individually. Wow! That's a lot of work!
Thanks for taking the time to respond; I really appreciate it. I know that in a day or so when the issue is worked out I'll look back and wonder why it was such a complicated issue, but right now the speech pathologist had told me that literally everything Dad eats has to change. That's a big step.