My mom had a biopsy in the hospital where she was being treated for something else. She was released and then went into a rehab facility to get better to go home. Her results just came back and a family member ( medical proxy for my mom ) was told the results that she has cancer. My mom does not know yet, She has so many other health issues to deal with currently, heart disease, diabetes and kidney disease. Because of her age and history, she is not a candidate for surgery or chemotherapy. Should my mom be told she has cancer at this point in her life? The family thinks she would be devastated if she found out about the cancer. Not sure what to do. Any advise would be helpful.
If she is mentally alert and competent, she has the right to be told. Then she can plan ahead. For example, if she has things to say to people, written messages she may want to leave behind, bequests for who gets what, etc.
However, if she has dementia then it would be cruel to tell her because she won't remember and will suffer anew each time the cancer is mentioned. In this case, tell everybody else so that they can visit her and say their good-byes.
Blessings to everyone involved in this situation and may all parties be blessed in the outcome.
Good reasons would include:
irrelevance, if the cancer is so slow growing that it will have no effect whatsoever on her. But in that case, why the biopsy? Presumably they were looking for it because it is already causing symptoms;
dementia to the point where she lacks mental capacity;
other forms of mental disability, so that she would be unable to process the information;
her own previously expressed desire to have bad news kept from her.
Insufficient reasons would include:
her age;
the lack of treatment options;
fear of upsetting her.
And, by the way, how is she going to give her informed consent to palliative care treatments if she doesn't know that they're palliative?
She has a right to know the truth of her own situation. She has a right to understand what is happening to her body. She has a right to prepare herself for death, if (God forbid) that is the reality she must face sooner than expected.
Having said that, you know your own mother. As long as you're approaching her as the person you know her to be - as an individual with her own views, beliefs, character, identity and NOT as some poor little old thing who couldn't possibly cope - you are best placed to decide whether she will want to hear the truth or not.
Stop press: I've just consulted my 89 year old mother (severe CHF, stage IV kidney disease, early to moderate multiple dementia but high baseline IQ and lifelong interest in ethics) on this very point, to have it from the horse's mouth, so to speak. This particular horse says firmly - albeit hypothetically, let's not forget - that she would want to know. I quote: "how can you deal with it if you don't know it's there?" Your horse may have a different view, of course. But in any case I am grateful to you for raising this point: now I know what my mother wants should this ever come up for us.
I wish your mother success in her rehab, and hope there will be positive news about how her cancer can be managed.
The important thing is to co-operate with hospice to control her pain and other symptoms. Let Mom take the lead.
If she does not want certain medications don't force her. Many people are very fearful of morphine but it does an excellent job of controlling pain and the distress associated with difficulty breathing.
The DNR is not a major problem just make sure everyone knows she has it. it really comes into play is she has a stroke or heart attack and someone calls 911 which as you know you should not do for a hospice patient. The EMTs can be very aggressive in wanting to treat but if you show the DNR they have to abide by that. Make several copies and post them prominently where everyone can see them but out of Mom's sight. The main thing is to prevent anyone starting CPR or intubating her
Don't be afraid to question hospice every step of the way they are there for you too.
Not having any information on Mom I can't begin to guess how long Mom has left and for the family this really is the hardest time. it sounds as though she is a very put together lady and very ready to let nature take it's course. Make sure you take care of yourself and get plenty of rest and good food. Don't be afraid to go out and have someone sit with her. Of course she may die while you are gone but many people do actually wait till their nearest and dearest are absent to slap away. It would be the way she wanted it not something you missed. Blessings to Mom and your family.
If you're at a loss as to what to say to her about it, I'd suggest asking her if there is anything she wants to talk about, or would like someone to explain.
If you yourself are unhappy with decisions she has made, or want to know more about how her condition is likely to develop, ask her hospice team for help and advice. If they can't answer your questions, they are likely to know who can. I'm sorry you're going through this - don't forget to take care of yourself, too.
See All Answers