Perhaps since your mom is bedridden she may need to be under hospice care and not palliative care as they are vastly different. When I first looked into hospice care for my late husband(who had vascular dementia)I was told that he didn't yet qualify for hospice, but did qualify for their palliative care which only consisted of a nurse coming to the house once a month to check on him. That wasn't of any help to me so I turned them down. However 4 months later when he almost died of aspiration pneumonia and developed sepsis and septic shock, and came home completely bedridden, he was then put under hospice care. That included a nurse coming out once a week to start, aides to come bathe my husband twice a week, access to their social worker, chaplain, and massage therapist, plus they provided all needed medical equipment, supplies and medications, all covered 100% under my husbands Medicare. So as you can see, there is a HUGE difference between palliative and hospice care. You may want to see if your mom now qualifies to be under hospice care now instead. Best wishes in getting it all sorted out, and know that if you're not pleased with any palliative or hospice agency, you can cancel at any time and request the services of another agency in your area, as they are not all created equal.
I think that you have a much better idea of options in your area for palliative care than we might. I do know in my brother's area of Palm Springs, even with massive hospitals like Desert Regional, they did not even HAVE Palliative services 4 years ago. I hope it has changed. An intern in the hospital told me that she had wished otherwise as she was going to specialize in Palliative care.
First steps are to discuss with the current providers. You can try to negotiate some changes and if you cannot, then you are truly down to either researching yourself online or asking them to recommend others available to you.
We also cannot know what sort of supplemental coverage your mom has, what is provided and by whom, and today that's important.
I am afraid in this very personal decision we can only wish you well and hope if you find out how to negotiate this system (definitely request social service consult) that you will update here, and tell us how you managed it. As this is a Forum of former and current caregivers, all the advice we give is things we either lived through or learned her from others who did. Very best of luck out to you in caring for your Mom.
When I first looked into hospice care for my late husband(who had vascular dementia)I was told that he didn't yet qualify for hospice, but did qualify for their palliative care which only consisted of a nurse coming to the house once a month to check on him.
That wasn't of any help to me so I turned them down. However 4 months later when he almost died of aspiration pneumonia and developed sepsis and septic shock, and came home completely bedridden, he was then put under hospice care.
That included a nurse coming out once a week to start, aides to come bathe my husband twice a week, access to their social worker, chaplain, and massage therapist, plus they provided all needed medical equipment, supplies and medications, all covered 100% under my husbands Medicare.
So as you can see, there is a HUGE difference between palliative and hospice care. You may want to see if your mom now qualifies to be under hospice care now instead.
Best wishes in getting it all sorted out, and know that if you're not pleased with any palliative or hospice agency, you can cancel at any time and request the services of another agency in your area, as they are not all created equal.
I do know in my brother's area of Palm Springs, even with massive hospitals like Desert Regional, they did not even HAVE Palliative services 4 years ago. I hope it has changed. An intern in the hospital told me that she had wished otherwise as she was going to specialize in Palliative care.
First steps are to discuss with the current providers. You can try to negotiate some changes and if you cannot, then you are truly down to either researching yourself online or asking them to recommend others available to you.
We also cannot know what sort of supplemental coverage your mom has, what is provided and by whom, and today that's important.
I am afraid in this very personal decision we can only wish you well and hope if you find out how to negotiate this system (definitely request social service consult) that you will update here, and tell us how you managed it. As this is a Forum of former and current caregivers, all the advice we give is things we either lived through or learned her from others who did. Very best of luck out to you in caring for your Mom.