My mother is in an Assisted Living/Memory Care home. The Dr says she has early Dementia. Her legs no longer work so she is in a wheelchair. We can't take care of her at home. Some days, yes, she is confused and tells some tall tales that I can tell are not true. Most days she is very "with it". Once in awhile, on those good days, she will tell me how the staff doesn't respond to her calls during the night, how some days they gather in groups away from the living area where most people are, laughing and not paying attention. She says she has had to call out to them when a fellow resident is trying to get up and is a fall risk. Actually, I have seen this happen a couple of times. When I try to discuss my concerns w/the resident nurse, I am Always told that this is Alzheimer's and she doesn't really experience these things. Makes me angry! I know my Mother. What should I do next? Thanks in advance for any answers! Karen in Texas
The laws have to change regarding minimum staffing. But the lobbyists have far too much influence.
Thanks for telling the truth! We have crappy homes here in Louisiana.
You have to make it be their word against theirs by recording. That said, it's illegal in some places, and rehab facilities I've visited for other relatives have signs that say you cannot take video or pictures or have any recording devices. They claim it's to protect the patients, which may be partly true, but it's also to protect themselves.
Videos can be misinterpreted if they are edited to cut out what led up to an event or what happened at the end, so that's another reason they're frowned upon.
BUT, if it were me, I'd still do it and just use the information for MY purposes, not for police or a courtroom. That way you can make the changes you need to make (like taking her out of there) if you discover it's the staff who're lying, but be careful to do some long visits to ensure it's not that staff is stretched too thin. That can be determined from a few visits where you stay for a couple of hours and walk down the halls to observe, go past the nurses station, and look around to see how many room lights are lit up, as well as how long they stay that way.
Horrible about that lady!!!!! Did y'all report it to anyone? I'm sure you did.
Thanks for writing on this forum! Karen in Texas
I'm not sure what other things your mother said but I have first hand experience with this. My mom and I are really close it's just been her and I since she left dad when I was six months old. I know it's not cool to say this about my mom but she is my best friend. I green up knowing without a doubt that I was loved unconditionally. So when she got sick a couple of years ago and went to a short term nursing rehab for 3 months I staid the night there three or four times a week. Mom was in beginning stages of dementia and I was in denial.
I got a lot of negative replies when I posted about this before. I was asking a question about mom's behavior and offhandedly mentioned I noticed it when I spent the night at the nursing home. She was in a single room and I had permission from the director. Some of the CNA's and nurses thought it was great some were just really annoyed.
Some of the replies I got on here we're that I was probably in the way and I should just let these "professionals" do their job. That's what they're trained for. I know some meant well but there's no way I could leave her alone when she was going through all this scary new stuff. She had a really bad case of hospital delirium when she first went to emergency room. I had never heard of that but found out it was very common in elderly people who go through a sickness. Something like 40% of people over seventy experience it to some degree. So when she went to the rehab and I found out I could stay with her I was relieved.
I've always known that our relationship was different than most parents and their kids. Mom always watched "Snapped" and we would crack up when they would comment that the murdering mother always had an unusually close relationship with her son. But anyway back to you. I soon noticed that the alarms that were activated when someone pushed the nurses button went on all night. They're were all different kinds of cognitively challenged patients. I noticed that it was different with different shifts. The same employees worked together on their three on four off shifts. The shift on the weekends we're on top of things alone more the the week shifters. The noise volume was so drastically different that I commented to one of the weekend workers and he said he heard that from a lot of people. O also found out that the turn over with employees in the care giving industry was very high at least in my particular area. Their were a lot of young people who went into the profession for the wrong reasons (I actually did a lot of research on this later on. I have way too much time on my hands lol). They're is a shortage of qualified nurses and CNA's everywhere. It seems like you almost have to have a calling to do that kind of work and I have high respect for you all who do this kind of work. I know that this can be a thankless job that doesn't offer a very good financial compensation for the amount of work you do. Inevitably there are a lot of people who can't handle the mental challenge that comes with working with older sick people. I know I couldn't do it. So if someone doesn't have the calling to help older sick people they get burned out quick. At this particular home it was so obvious that the employees somehow ended up working in shifts with other employees that we're like minded. The ones who hated their thankless, underappreciated, underpaid jobs and those who love the huge difference they can make in a few appreciative patients and love the challenge that comes with trying to make a difference. I had a couple of really bad experiences that ended with two CNA's losing their jobs but not having charges filed for obvious abuse. Long story short lol what your mom told you is very common.
I have asked my mother many times if she would like to visit other facilities and consider a move. She is adamant that she does NOT want to be moved. She has made a few friends among the residents, caretakers and even the dogs who live there. The location is central to family and friends, close to her doctors and the stores and restaurants she is familiar with (which is HUGE to someone with dementia). It would be very inconvenient for our family to move her, but I would be more than willing if she was receptive to it. My siblings and our children are not in favor of a move either. They live and work in the area and it would be more difficult for them to visit - and she lives for their visits. I do believe that if my mother were fearful of anyone at the facility, she would readily agree to a move - she does have enough lucidity to perceive a threat to her well being. It's such a frustrating situation.
Although my mother did not have Alzheimer's, she experienced (& I saw for myself) the same things happen. You have to have some form of proof in order to get any results.
Of course the Resident Nurse is going to deny anything as such is happening. It's such a crock because your Mom or someone is paying an huge amount of money so your Mom can be where she is supposed to be well taken care of.
I could write a book on all the things that weren't done right by the staff, etc. when it comes to the care or rather the lack of appropriate care Mom experienced.
I’m so sorry you had bad care for your mom. Hugs!