I take care of both my grandparents-in-law my grandmother has vascular dementia and broke her LT hip my grandfather recently came home from breaking his rt hip and has balance issues. I take care of them from Sunday evening to Friday evening straight through. (We live in their basement)
I keep the house clean which isn't too hard to do. And hospice even comes in daily to help give my grandmother baths and change her bedding. But I don't understand why I'm so stressed and never have the motivation to do anything anymore. I've been taking care of them for 7 months now and I don't know how much more I can do. I never feel like I sleep enough nor have any motivation. My aunt in law (who is their POA) and is a RN doesn't understand why the weekend isn't enough time. And I can't seem to get through to anyone about this.
For financial reasons, your FIL can't provide the care.
For financial reasons (health insurance benefits), your aunt in law can't provide the care.
And you are not receiving pay for this work you're doing.
But, what, financial reasoning plays no part in your life? What are you supposed to live on? Who pays for your healthcare? Who's saving for your pension? What's happening to your chances of career development?
I'm sorry to be so blunt, but don't be a fool. This family is making a fool of you. What does your husband have to say about this pretty naked - not to mention ungrateful - exploitation of your goodwill?
I think, anyway, that it's unlikely that she is confined mostly on her own in a single place with two patients from Sunday night to Friday night.
Moreover, she is trained in her vocation.
Moreover, she doesn't live in her workplace.
Moreover, although I'm aware that annual vacation allowances are quite stingy in the USA, I bet she hasn't worked every week for seven months without so much as a day off.
Can't seem to get through to anyone about this...
Try this. If somebody offered you a rent-free house and a salary - are you actually being paid proper money? - in exchange for your wearing a ball and chain round one ankle, would you grow to love the ball and chain and find it not so bad, really?
Intellectually, emotionally, psychically, you're wearing a ball and chain. It's not dreadful. It won't kill you. But of course it is getting you down.
What did you do for a living before you landed here?
"A simple task. A lazy bum who can't do a simple task."
Just to recap: vascular dementia, broken left hip, broken right hip, ongoing falls risk...
Well seems simple enough to me! For a skilled nursing facility, that is.
Umm, just looking back a bit there - do you have training in accounts or bookkeeping or anything like that? Wondering if there is perhaps some home-office or temporary or contract work you might be able to pick up. Getting *any* income of your own could transform both how you feel and how other people behave towards you.
You are doing the work of an entire staff at a nursing home, around the clock, 5 days a week, 24/7. You must be so exhausted by the weekend that you just collapse. In other words, while your GIL are alive, you have no life.
Theres an old saying, “The squeaky wheel gets the grease.” If no one will pay attention to you, you may have to adjust your presentation. Time for niceties is over. Get together whoever you can from the family. Those you can’t, send a registered letter to. Tell them you can no longer do the work of at least a dozen people, day in and day out. You don’t want help. You want OUT. If you are living rent-free, it will take some planning to get enough finances together to get your own place. If you aren’t providing free caregiving, you can’t expect free room and board. This will not be easy for you to do, but if you want your own life back, it’s the only way. When the family sees how serious you are, things may just change.
When the GPs pass, what becomes of you and hubby?
I assume he is working while you are care giving. Who keeps them on your days off?
Are you being paid?
When your husband comes in are you able to take a walk or do anything to reduce the stress?
I think you need to discuss with your husband your alternatives. If you could take a few weeks off, you might be able to recover and be willing to come back but please don’t ignore your feelings.
It doesn’t matter what the POA thinks. This isn’t her. This is you.
Believe me it’s easier for her to find someone for a few weeks rather than replace you altogether.
Come here and vent. We care and we understand. Hugs.
"But I guess I'm too worried about people hating me or causing a tear in my husbands family to speak up more than saying I need help."
Think about this. Your fear of what other people will think is causing you to remain in a situation that could literally kill you. Here's one thing I would suggest: the next time you have an hour or so to yourself, get a piece of paper and just write out your answer to this question: "What would I do, how would I act and what would I say if I DIDN'T CARE IF PEOPLE LIKED ME OR NOT?" And see what your mind comes up with. I used to be a people-pleasing go along to get along person who would never stand up for myself or speak up for my needs. All I got from this was illness, depression, anxiety. We teach people how to treat us. If we are passive and go along and let people treat us like crap and walk all over us, guess what? More and more people treat us that way. It's almost like we are wearing a sign that says 'bully me' on our forehead. From my perspective, the only solution to this is to realize that, as long as you are basically an ethical person (not looking to steal, lie, cheat, or hurt others) what other people think of you IS NONE OF YOUR BUSINESS.
Imagine yourself 5 years from now if nothing changes. If you are feeling this way after 7 months, can you feel what it could be like five years from now, when they haven't died yet but are even more frail, feeble, demented, and sick?
Now imagine yourself 5 years from now after declaring once and for all that, no matter what other people think of you, or how much they don't like you, that YOUR LIFE MATTERS enough for you to STAND UP and SAY NO to EVERYONE who is taking advantage of your good nature. What will your life be like then?
And once you have looked honestly at these two scenarios, and decided which one you want to live out, then just make one choice. Ask yourself what ONE thing you can do today on your own behalf. It might be to have a courageous conversation with your husband. It might be to call a counseling line to talk with somebody. It might be to take a long walk so you can clear your head out. But whatever you choose, do it. And take your life one moment, one thought, one breath, one choice at a time. If you choose courage, you will find a way out of this. But if you choose to hold yourself back because you are afraid you will make somebody mad, you are setting yourself up for a lifetime of misery. I wish you the very best.
Just wondered if you have difficult issues too.
She would rather have her mother looked after at home? Fine. Then she can pull her weight, for a start; and she can get you proper training and pay you a proper wage and you can work a proper shift pattern - with actual time off, not including sleep - and the family can organise additional in-home care outside your working hours.
But thinking to provide top-notch one-to-one care at home by making you feel sorry for a poor little old lady and piling the whole lot on your back - FURget it.
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