My own mother is doing quite well, but someone close to me is helping to care for someone who might be in a state of decline. I am wondering if there are serious questions or topics that we will wish we had talked about during the lucid moments. Thanks for your ideas.
If she is lucid enough to state final wishes, and wants to do so - absolutely - I actually pulled out a notebook and took notes as dad spoke.
If you have unresolved issues from childhood - an aged frail parent is in no way able to resolve them - so just let it go - you will be the bigger person.
Dying is tough enough - hope you will receive the same mercy.
Let's all promise to give our own kids a good gift of history while we can!!
I'm grateful that I learned to ignore what was said under the influence, for whether or not there was any truth to it, fact is, they were not changing their behavior, they were doing small things then returning to drink, and then blaming others as a reason to explain their drinking or other failure to grow.
As I age, I also realize that many of us say things off the cuff, which we call "self-expression" - but our cultures don't teach people how and when to express annoyance or disappointment - instead many blurt out words. But the words do not describe their feelings, those are just implied in tone of voice as they criticize others! Instead of saying, "I get nervous when I have to wait and I forget the time", they say, "You're late! You've always been inconsiderate.... "
I'm also grateful that I've worked with elders - for many times they lash out, maybe for the first time in their lives they realize it's important to speak up - but they have not learned how to do so at the right time in ways that help, or their memory loss makes them forget, so they use the blaming language to express feelings too.
It sounds as if you did many as if you did many nice things for your father - good enough. Change the things we can, and let go of thoughts that you were supposed to be responsible, you were responsible to your own child, hard enough with special needs, and you did what you could think of doing at the time, which was enough. Even when everyone manages to show up, things go wrong, arguments start - we are born alone and die alone, that's the nature of life!
I think if your father could look down now, free of alcohol and pain, and see your self-doubt, he'd tell you, no, don't worry. It was his time, and he went, and seeing you relaxed and content, would please him well. There must have been ways he was proud of you, and I hope you remember those.
Good luck with the issues around your mother's care - and maybe there go to AlAnon too - that really helped me put the focus on my happiness and self care, and just do what I could do and work to avoid over-promising. Families don't live in isolation, though drinkers tend to try to hide and thus they can be more isolated from other helpers. But others are out there, and I hope you keep asking and find some who will take the burden of care, and leave you only with the fringes.
So, besides those words in my letter, I also wished I'd known more about his intent with the Will that he'd done. It basically made my mother beneficiary to everything, with me as the Trustee to grant her wishes. That tied me to her life and it's made mine miserable. I do not think that was my dad's intent, but I sure would've liked to have known exactly what his intent was.
So, in retrospect, advice is to make sure you are listed for open communications with your loved one's doctor. If you are not the spouse, don't just assume you'll get calls. Ask that you are permitted all and any info, not just the worst and ending news. Talk about important documents like Wills, and if you notice a frequency in letters or calls from your loved one -- start asking "why" sooner.
What high school did you attend? What was your childhood like? Tell me about my grandparents.
Looking back, those roles took time from me that I should have spent sitting and holding each of my parent's hands. I regret letting the nurse in me think that dad was hallucinating rather than talking with angels and loved ones that already passed. He even asked me once, "Who is that guy standing in the corner?" I should have asked him, "Does he look like a familiar face?", rather than stating, "There is no one there dad."
Because I was grieving before my dad was even dead, I spent my 50th birthday at home, alone, instead of going to their home, because the thought of this birthday being the last with my dad at my side, was too hard to accept. He died 13 days later.
In my dad's last minutes of his life, my kids were all at grandpa's side holding his hand, but I was on the phone talking to a sibling who was asking what was going on because he had gotten a message from Hospice, but continued to be in denial. Since none of my siblings were of any help through this dying process, I should have just hung up the phone after telling him to communicate with Hospice. I didn't get to say,"I'll be okay dad, go be in peace. I love you and will see you again."
I did better with my mom when she was in her last days. I did tell her she was a great mom and told her to "go be with dad, he's waiting for you". They were married for 55 years. Once again, siblings refused to accept her imminent death, were in denial, and caused turmoil.But, I didn't let it shake me this time. I realized it was THEIR feelings of guilt, not mine. I had to daily remind myself that I did the best I could, in the roles that my parent's asked of me. They were awesome parents! I miss them daily but I am so happy my kids, husband and myself spent so much time with them in their last years.
On her 99th birthday, she threw a party for both her Quaker and Methodist congregations, and from her hospital bed she was planning a program to improve care for the elderly—said she didn’t like people’s assumptions and attitudes about old people! And I know all this because .... I read it on a website; very little did I actually get from her, personally, because we didn't take the time. Now we have some trinkets of hers that she picked up in her travels. She always wanted us to come over and spend a day so she could tell us about her "stuff," but we were "too busy." Now I would give almost anything to have her back for just a day to tell her how remarkable she was, what an inspiration, and to ask her about her treasures.
Years ago, my sister made videos of our parents in their 70s, asking them the questions in the "Grandma Remembers" book she'd bought for my mom to fill out (but she never did, so it's wonderful to have the videos). There are all sorts of books out there like that -- buy one and use it; write the answers yourself if your loved one cannot.
I had a totally distant relationship with my mother - fear and mistrust on both sides. Ironically, I also felt I could understand her basic shyness, under her bossy control - the daily drinking was so that she could act relaxed on a regular basis - I actually think that's a reason many people drink or drug - they start performing certain expected contributions and find on some days they are tired, agitated and don't want to do it - but our society in America and Canada at least - was not a village where dropouts would be understood with a grain of salt and humanity, and fill-ins standing nearby - no, we strived towards goals of "glory" and that seemed seek appearances - so the person drinks or drugs to have the ability to show up with joy, even if it is artificial joy.
I always felt my mother underestimated me, ignored and devalued me, for she put her attention on 2 disabled sibs including my older sister, and also on the charismatic brothers. But one day she asked me if I would go shopping for her, to go to a local store and try on suits. "You know my size, and you have such good taste" she said. I took the assignment seriously, and spent 9 hours that day in the store, and finally chose 2 options - might have been 3, and had the sent to her. She loved one of them and wore it - I don't know where, for in her rural home with 2nd husband, she always wore slacks. But when I arrived across the miles, to show up for her funeral a few months later, she was in the casket wearing the suit I bought for her. I felt honored then, and looking back, it still feels like one of the few honors she gave me, valuing my talents in front of the whole family. Amazing, the kind of gifts we can get from people whom we did not know as well as we might. My mother and I could barely talk without putting on false joy and kindness in our voices, while I never felt seen or known - this was a gift of recognition, as she was very fussy about her clothing.
My family appeared from the outside to be normal and happy, but on the inside, we were anything but that. I won't go into the details, but I'm sure you'll get the idea by the time I'm done. I will say that my mother should have left my father when I was 10 and told her what was happening in our house, to all of us kids, under her nose. I was the only one that would tell her - my siblings were afraid to, because they'd been told it would break up the family...and divorce was still a somewhat taboo subject in those days - especially for devout Catholics like our family was supposed to be. She didn't leave. She stayed with him, and because she did, all 4 of us kids were dragged along wtih her. Amazingly, we learned to forgive our father for something he should have gone to prison for, and even to love him again, to some extent - but that doesn't mean we ever forgot, or ever put ourselves or him in a position where the problems could start again. He and Mom stayed together, but I learned many years later that they slept in separate beds for the rest of their marriage, and she never, ever let him forget what he did. She told me once that she stayed with him because she knew if she did, he'd never do anything like that again, because he'd know she was always watching him. But another time, she told me she fought to keep our family together, because it was the right thing to do...which totally confuses me. I sometimes wonder if she stayed because she was afraid to try and make it on her own with 4 kids to support, because she'd always been a housewife, or worked part time jobs like housekeeping or cleaning.
All of us married very young and got out of the house at the first possible opportunity, which ended badly a couple of us. We have become professionals at masking pain, hiding our feelings, and making believe everything is ok, when it's not. Because our mom chose to stay with Dad, we were all forced into this farce of a happy family, pretending that nothing ever happened. We compartmentalized the pain and trauma of the past and went on with our lives. There are dreams, nightmares and flashbacks - but for the most part, we just don't talk "about Dad" - that's our code phrase for the whole mess of our early childhood - "it's about Dad", or "I didn't tell them 'about Dad'".
When Dad died last year, all of us were left with a huge list of unanswered questions - and now we'll never get the answers. I don't know that we would have gotten the answers even when he was alive. We all went through some therapy/counseling years ago, but the questions were never fully answered. We have our theories, but without confirmation, they're just that - theories. We all know that Dad's actions will never be repeated by any of us - that cycle of abuse died with him.
His death hurt more than we ever thought it would, because in spite of what he did to us in our childhood years, there were some very good times - camping, fishing, trips to our grandparents' homes in the summer, holidays...and the knowledge the man had was incredible. He knew every bird by name and could name them just by hearing their calls - and could imitate those calls flawlessly. Squirrels and chipmunks would eat out of his hands. He could build incredible things with those hands - he made building signs and crafts out of wood that were amazing. Each of us girls has a cedar hope chest he made by hand out of scraps of wood he got from local businesses and contractors. The concrete floor of the garage made his back hurt when he stood on it for too long, so he took those same scraps of wood, and pieced them together like a jigsaw puzzle to make a wood floor for the garage. He knew everything about cars, how to make homemade paint, how to build a treehouse....and how to destroy a child's confidence and sense of self. I have good memories of my childhood, but I also have a lot of missing memories, or shaded memories that haunt my thoughts like an old television caught between stations - I can see images and hear words, but not all of them, and it's kind of fuzzy. I can't tell you how many times Mom has said, "You remember when we went to (insert place name here)?" - and I have to tell her I have no recollection at all of being in that place, because for some reason, my mind has blocked that memory out.
Now that I am in charge of the house and caring for Mom, the questions are endless. Where is the deed to the house? Dad was a meticulous record-keeper, but the deed is missing. I had to go to the county clerk to get a copy. Where is their marriage license? I can't find that either - another trip to the county office. Why does the furnace make that noise? Should I buy this van to transport Mom around, or that one? How often should the water softener salt be delivered? And most of all...WHY?? Why did you twist our childhood into something that had to be hidden, pushed under the rug, not talked about? Was this same abuse perpetrated against you as a child, and you didn't know anything different?
Sorry, I know this was long (I warned you ahead of time..lol), but this question just struck a chord for me. Sometimes our relationships with our parents are such complicated things...and their passing only makes things worse. You'd think that the passing of an abuser would be a relief - like a weight lifted - but for us, it's just left so many things unsaid. We forgave Dad long ago, and told him so, but it just doesn't seem to be enough.