In the last 3 months I have noticed a change in my mom who was diagnosed with PDD; at first it was just dementia now she has symptoms of Parkinson's. She barely can move her legs or her hands without them being so stiff. She is bedridden and needs a bath but the only option is to do bed baths. It wasn't long ago I was able to get her up with a walker and walk her to the bathroom but now those days are gone. It is frustrating! I know this is the disease and not her refusal to work at getting up and get to a bathtub or shower.
I feel it is time you consider putting your mother into care. She will be well fed, cleaned and bathed and you can visit as often as you wish. The situation is only going to get worse until, due to the stress, you will have a stroke or heart attack yourself. Over 30% of caregivers die before those they care for due to stress related illness. There comes a time when you've done all you can and you must let the professionals take over.
You will find a wealth of information at the Lewy Body Dementia Association website, lbda.org
My husband had Dementia with Lewy Bodies. As far as I know, there aren't a lot of good ways to predict how long any set of symptoms or apparent stage will last. Unlike Alzheimer's, the Lewy Body Dementias do not progress through recognizable stages. You may be able to distinguish mild/moderate/severe, but even that is fuzzy. My husband's symptoms were most severe his first year! My husband was bedbound for only a week or so at the end, and he died at home. My friend had to place her husband in a nursing home when he was no longer able to get out of bed or eat. He lived there for several years. "final stage" can vary a lot in length of time.
I would ask your mother's doctor if she eligible for hospice at this time. Doctors don't have crystal balls, either, but if he or she thinks it is appropriate, hospice care can be extremely helpful in providing services like the bed baths, keeping Mom pain free, and helping you cope with the emotional end of things.
If hospice does not seem appropriate at this time, it may be necessary to consider a care center placement for her, probably a skilled nursing facility. This may be simply too much for you to do on your own. This is NOT abandoning your mother -- it is ensuring the level of care that she needs.
Warm wishes to you, and to your mother.
Meeting with me and the director, once she was satisfied about money (for now) she went on for 2 hours about her old house, her furniture (my fault it was sold and I rushed to do so - it was 6 months before it sold - had to be renovated it was such a dump) complaints about the staff - she wants to sleep in and have breakfast served when she wakes up, there's no-one to talk to (60 other residents) And on and on it went. Me, me, me, I want, I want, I want, wah, wah, wah. Of course she's been a life long narcissist so that was no surprise.
She's had Parkinsons and many strokes over 17 years and dementia for 7 or 8 years. The mother from hell life long who never lifted a manicured finger to help her own parents when they were old and sick - too busy having a good time - I'd love to take her to task but I'm very calm today. Frankly her brain is 75% fried right now and there's no point.
As she's stayed in her room behind a closed door for 18 months and refused to look at activities or mingle and become used to me visiting all the time I'm not going for a while, feeling that I'm enabling her. When I reckon she's out of the apple juice and stuff I'll drop it at the office and ask them to take it to her, telling her I can't visit as I have the flu. She believes fibs.
Now she's convinced she can get in her wheelchair and get to the bathroom unaided, which she can't. It's only a matter of time. One more stroke and her brain will be totally fried, another bad fall may be the end for her and, frankly, good riddance.