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I've looked at all the forum topics for Extended/Long Term Care, but I can't find anything relevant about locating some top notch, quality, Long Term/Extended Care Facilities somewhat locally. I've googled this, but the only thing that comes up are either Independent Living, Assisted Living, or Skilled Nursing Facilities. LO cannot do ADLs but he is cognitive, cooperative, basically just a sweetheart. His health is stable but he requires more than an Assisted Living Facility can offer, but he doesn't need a SNF (at least not in the foreseeable future).
I've found local social workers and Agency of Aging to be unhelpful, and I dread contacting Agencies that would hound me forever.
Any suggestions?? Thanks in advance.

Have you tried an Assisted Living. The only thing on the list my Mom could do was feed herself. She also had Dementia. Your LO is mentally sound. Would he need a two person assist? Can he help the aides just needs a little help? In ALs there are two costs, room and board and care. Its the care that has different levels, in my Moms there were 4 and she was level four. You pay more for 4 then 1. I would ask around, one AL may be willing to take on his care another not so much. If he is an easy person to care for, thats in his favor.

There are private licensed Board and Care. Just a few residents.

Bathing.
Dressing.
Toileting (getting on the toilet, using the toilet, and cleaning themself)
Transferring (moving in and out of bed/chairs)
Continence (controlling bladder and bowel function)
Feeding (does not include meal preparation)
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Reply to JoAnn29
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This, to me is confusing.
Unless you find an independent Care Home or Private Home that is licensed to take care of people you are limited.
If this person needs help with all ADL's that would be Assisted Living. (If there are no medical needs that need to be taken care of, if there are medical needs then you are limited to Skilled Nursing.)
What more help is needed than what will be provided by Assisted Living?
If the person needs equipment to transfer then you are limited to Skilled Nursing since is is SNF or Rehab that would be able to use equipment.
At the bottom of this page is a "Find Senior Care" you could try that or the box to the right where is says "request Info" might be helpful.
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Reply to Grandma1954
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My husband needs a 2 person transfer as a stroke survivor. He cannot feed himself unless food is cut into small pieces, toilet by himself, transfer himself, handle medications by himself, prepare meals for himself, dress himself, shower himself, He's 90% paralyzed on one side of his entire body. He's not overweight and is in stable health and sound mind. He can work on a computer and handle complex conversations. He's had ongoing PT/OT for4 years but has plateaued.
He's too disabled for assisted living, even at their top tier of care, but he's too well for a SNF. A board and care would not be appropriate for him. We have in-home caregivers now, but I'm getting too old and burned out for that and at some point I'll have to find a decent place for him to go.
Our Elder Law Attorney strongly recommended a Long Term Care Facility/Extended Care Facility for him, not a SNF. His PCP, Neurologist, Cardiologist, do not think husband requires SNF.

I guess I'll have to ask the attorney and husband's doctors if they can recommend Extended Care Facilities. They exist, I just don't know how to find them.
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LoniG1 Sep 16, 2024
Who in the HELL told you he is to WELL for a SNF that is the biggest BS I have ever heard and extended care facility is a SNF. not that I would wish a SNF on anyone however not all are bad. We might need more information on why he wouldn't require a Skilled. I'm in California so there maybe other facilities out there that I am not aware of. so before I go off half cocked and say something horrible toward your physician's.
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Grandma, I looked at the Find Senior Care at the bottom of this page, and the only choices are Independent Living, Assisted Living, and SNF....I also read their small print and they want me to agree to receive their unsolicited texts.

They have a phone number to call, and I can try it... (I hope they'll be willing to provide useful info without insisting to get my contact information first.)

I'm starting to wonder whether Extended/Long Term Care Facilities are just a figment of my imagination. But I'll keep looking.
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Reply to LostinPlace
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Not sure the state your in I live in calif. however its not that Agency on aging unhelpful as the information you are requesting they can not give. I would hope that they would give you the number for the Ombudsman Evey county in the united states has that program they advocate for residents in which ever facility your at. its a free service from your State and no one hounds you.
now as far as independent living pleas be very careful as they are not licensed so they can more or less do as they please.
facilities with license you can contact CCL community care licensing they over see the license for each facility. it is also public record to view any issues the licensed facility has had.
most agencies can't or won't go into to much detail about the facilities which is sad as they for lack of a better statement cant tell you how super awful nightmare facilities are. again don't forget its public record to see their issues that might suggest not a good fit.
I hope you are aware its 4k to 10k to be in an assisted living that is out of pocket.
Skilled facility is different as far as $$$ Medi-Cal/Medicaid can help with the cost. Sorry my ramble.
as for your question There is no such thing as TOP NOTCH, QUALITY. If there was places like what your asking for you wouldn't need the government, state licensing, ombudsman or Medicare/medical placing rules on them to keep your loved one as safe as possible. Please understand not all facility are bad every one has their issues and the ones that tell you their flaws and will show you their records from licensing. they are as honest as can be, now the ones that tell you how perfect they are???? Well do your self a favor DONT JUDGE A BOOK BY ITS COVER. Pretty is not perfect no where close.
Not sure why assisted living can't offer? We do have to remember an assisted living is what's called non medical out of home placement (NMOHP). They deal with his ADLs where a skilled deals with ADLs and medical.
As for agency's other than the Ombudsman, yes they have a listing of facilities however they are paid by the facility so hounding could happen. again your ombudsman's office has a free listing of all facilities in and around your area, take care and I wish you the best.
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Reply to LoniG1
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When it came time to place my MIL, we simply went 'boots on the ground'. I know the facilities didn't love our showing up without and appt (which we did a couple places we saw) but we didn't give them any contact info if we toured the place and knew immediately that it wouldn't be a fit.

That way we weren't getting tons of emails and calls!

IF you go online and fill out anything--you will immediately be called and sometimes very aggressively hounded.

We went to the facility that she wound up in and literally booked it after a walk through and tour of the place. It felt 'right' for her.
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Reply to Midkid58
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Thanks for all the helpful info. Loni and MidKid, especially helpful. Thanks.

Also, and this is a coincidence, saramac02 just posted about the Long Term Care Facility her LO is in, and she's reconsidering whether Assisted living might be better for her LO. (I hope she doesn't mean that the "LTC" is actually a SNF, but we'll find out.) I've already replied to her post for more info. Crossing fingers.
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PS. I just re-read saramac02's post and it looks like she is interchangeably using "LTC" with a "SNF".

( sigh).
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Here in Colo and other states (but not Fl) there is an Assisted Living community called Morningstar. They accept residents like your husband, who are too much for regular AL (by having dietary needs and being a 2 person assist) but not ready for a SNF. They have a Tweenie level of care available, for lack of a better word, which is what I believe you are looking for.

You can contact A Place For Mom here and ask for their help in finding you a community similar to Morningstar. Or you can hire another senior care placement service to assist you. If they wind up being pushy, just let them know you'll block their number if they hound you. I contacted a used car company to find out the value of my car recently. The guy was SUCH a pest that i sent him an email saying that I'd told him 5x I was NOT interested in selling my car, and if I do decide to at some point, his horrible hounding made him my LAST choice to go with. I never heard from him again.

Good luck to you.
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LeaLonnie,
Thanks for your helpful post and for making me laugh about the car salesman. Glad you told him to cease and desist in no uncertain terms.

Also, thanks very much for confirming that there is such a thing as Long Term/Extended Care. I'll check out Morningstar right away, and I'll keep trying to find something like them locally.
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