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I'm asking for a woman that has lucid times and then she gets worse as the day goes on. Most days sometimes it's all the time, but at night she sees demons after her, and at first just huddled down in bed and screamed but is starting to get up and take things like her cane and start beating on the caregiver calling him the demon. Do any of you have this and how do you deal with it? I don't know what stage of dementia she's in, she refuses to go to doctor and is very sneaky if she goes, she won't let anyone in, and is miss sweety nice to the Dr, so he has no clue.

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I don’t have any first hand experience with what you are going through but this posts caught my eye because it is so disturbing. It’s terribly sad.

I suppose that I would contact her doctor and let him/her know about the situation. Maybe meds can be prescribed or her current meds changed to something that would help ease her anxiety.

Another thought which may or may not be useful is to have a clergyman visit with her if you feel she would be receptive to it.

Best wishes to you.
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Refusal to go to the MD means no real diagnosis is given, but I can tell you that my brother, who had probably early Lewy's Dementia, had some fascinating hallucinations. He could see, especially at night, an entire garden party out his window, or an immigrant woman huddled in the corner of his bedroom sheltering a baby. He also had the sort of "demon thing" and it could be brought on suddenly, sometimes from weird patterns in floors, rugs, marble lined walls. Any sort of odd patterns. And he said faces would transform to almost demonic. He was good at describing, and knew his diagnosis, was rather fascinated with the different way he saw the world. He would have been such a fascinating subject for study. However, as these things progress there is nothing interesting about them! He passed of a septicemia of the blood before he had to take that long last slide down.
I guess I am saying, without a diagnosis, there is honestly no way to know. Final diagnosis in many dementias is by autopsy, so you may never know. The thing now is to use the symptoms to know you need to make it safe as you are able to her.
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Is she by any chance taking Ambien?   It's caused nightmares and disturbing visions.
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