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I am wondering why he is doing this. I have been keeping a journal now for over a month before it was weeks apart and now its almost everyday and in that month he has talked on his cellphone to no one about 10 times. He is having vivid conversations of the past, his brothers who have already passed away, seeing people (he doesn't get out of his apartment to see any of these people who he is talking about), someone kicking in his door and him beating them with a stick, having a water gun in his apartment then he has a gun, seeing his nephews but they aren't around him anymore they are in the service. He sometimes talks for hours then sometimes only 5 minutes. He has learned on the house phone that you can turn on the speaker then you don't have to hold it well last night he was doing that same thing with his cellphone he was putting it down on a dresser then holding his cellphone above his head but as I said before no one was on the other end. He does this at 10am in the morning or 8pm at night there is no specific time he talks on his cellphone.


Is his dementia getting worse? His stories are getting worse, he will tell people that he is a prisoner in his own house, he almost got me kicked off the property by telling the manager things. He got turned into DHS someone thought he was losing weight and didn't see him but it came back unfounded.

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How old is he? Dementia is a progressive disease and it only gets worse. Has anyone ever tried to get him to a doctor to confirm this is what he in fact has? Is anyone his PoA? Your profile says you are his representative payee, but who is managing his care? He sounds ready for memory care but do you or anyone have the authority to transition him? If not, you will need to call APS when things get bad enough and they will pursue guardianship for him and they will then take over managing all his affairs and family will no longer have any access or transparency into any of it. They will decide which facility he is moved to, etc.
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Babs2013 Sep 2021
He is on waiting lists because he isn't 65. Right now there are cameras in his house and someone calls every day to get him what he needs. He is on meds for dementia has been for awhile. Right now he can bathe & dress himself, no stove on, microwave only with some appliances. Filled out more paperwork to get him the help from medicaid-DHS. We had people come in look at him they said since he is in a routine they couldn't help us. That magic number 65 then we can get all the help he needs but he isn't there yet so he is on waiting lists. What I know now I would tell people if you have someone that was first diagnosed dementia get all the waivers you can at that time don't wait. So that when it gets bad you have them already set up so when he isn't 65 you can still put him somewhere. I have looked into assisted living then transitioning to memory care we can't afford it without medicaid.
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It sounds like anxiety and there are meds for it. Ur BIL lives alone? I agree, its time to have him placed. I hope someone has POA. You will need a Dr., Neurologist is best, to declare him incompetent and in need of 24/7 care to put the POA, unless immediate, in effect.
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Thanks all.
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Totally normal. My mom had an imaginary husband and would talk to him on the "sweater phone," where she'd pull one corner of her sweater over her nose and talk into it. She had full conversations with him AND did both sides of the conversations.

(Mom's voice) "Dan, are you there?"
(deep voice) "Yeah, I'm here."

And on the conversation would go.

We knew she was fading when dear old Dan stopped answering the phone. :-(
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