If mom can’t get the help and assessment that she needs at the behavioral health unit she’s currently in and her long-term care facility will not let her return, what is my next option? My mom needs a place to live that can be considered her home, she’s been passed around so much.
It sounds like you’ve been thru this before, right? Well then you know that they will press upon you or family or friends to come and take her into their home. That they will try to guiltify whomever to come and take her and get her moved out so not their responsibility anymore. So stay firm and do not do this, unless of course you can provide the care she needs and do it from here on out. Be sure to let family know as they may unwittingly think it means just picking her up and having her stay with them for a few days till a spot opens up somewhere and not an issue,
I’d suggest that you try to think back & write down to review just what it is /was that has led places as to not have her stay as a resident.
you wrote that she’s in a behavioral unit right now..,. So I’m going to guess that she has had psych issues of some sort? would that be accurate? If it is and she has done threatening behavior to other residents and staff to the extent that they have to call EMS to take her to the ER or placed a 30 day notice and she moved due to this, it’s imho going to be very difficult to have her get is to a traditional NH. She’s going to need a locked ward type of residential care. The behavioral unit she’s at now has had to deal with this very difficult placement before. They can do it..... they know what’s available statewide; but if they get the vibe that you’ll come and get her, then it’s what they will do as their problem (mom) is now totally your problem. So if need be role play your responses for what’s coming so you are ready in letting the discharge SW at the behavioral place know that you cannot pick mom Up and you cannot provide a safe and security home and the level of oversight needed for her. They will find a place. Good luck, this is very hard situation.
I spoke with mom last night and she is confused, tells me if she’s been bad meaning at the nursing home, so she does not know who she is anymore, tearful, and her voice sounds almost like my old mom. Seriously if she goes back to the nursing home and gets put on isolation again for the third time I don’t think she will survive it.
These places are treating her like she’s one big experiment and they don’t know what to do. I’m to the point where I want to bring her home with me, no drugs and my husband is OK with it.
Im lost.
I called the ombudsman yesterday and they said that her LTC cannot legally keep her out that they should have told me on paper that they would hold her bed for 10 days, is this true ? They also said that they have to get her a one on one, is this true ? Even if it was I wouldn’t want her to go back and start harming people again, my mom needs help she’s miserable. For two days she sat in the hospital next to the behavioral unit, the medical side they call it, doing absolutely nothing and nothing was happening. They held off giving her Zoloft, gave her some Ativan for a little aggression they said, her neurologist told them to discontinue Keppra and up the topiramate (sp?) some. It’s like they were just sitting there waiting for her to act out and she never did so now they’re saying she goes back to LTC. I’m really stressed out and probably not making sense but all I want is some help from my mom who’s been passed around like cattle. I absolutely cannot bring her into my home and try to care for her I’ve learned way too much on this site.
When my mom was kicked out of memory care, she was on hospice. They suggested a much smaller facility, a care home. It worked out great for mom, would have been better for her from day one. Each resident at the care home had been kicked out of previous facilities. Can you imagine?
The care there was better, the care ratio was lower, it was a homier atmosphere, not so antiseptic or regimented. AND it was cheaper.
Do not bring mom to your home, let the social workers do their jobs of finding a place for mom.. Don't even mutter a thought of it. Be patient, this Covid thing has slowed everything down.
Did you know that pink eye is a symptom of Covid in some people? Unfortunately a negative test does not mean she is really negative. She is displaying symptoms.
https://www.webmd.com/lung/news/20200401/pink-eye-often-a-symptom-of-covid-19
Hospice does not necessarily mean she is near the end of life. Some people get better and actually discharged from hospice. An evaluation wouldn't harm anything. They help with all sorts of things; there may be suggestions helpful to you. It was hospice that recommended the care home for my mom. Worked out so much better for mom. They know of all options available out there and the best ones.
There are many, many false negatives.
https://www.npr.org/sections/health-shots/2020/04/21/838794281/study-raises-questions-about-false-negatives-from-quick-covid-19-test
Aggression is not something to play around with. You state repeatedly that your mother has dementia. Aggressive behavior can last a decade or more. Is your husband really okay with having her move in for 10+ years?
You have not been able to figure out your mother's triggers, which is usually what causes aggression in patients with dementia. It seems, however, that her needs are so great that any one of them not being met to her satisfaction is a trigger because her brain is broken.
Stand firm with the behavioral health unit. Ask them what care homes specialize in aggressive patients. I'm thinking any facility that handles PTSD or TBI patients may be able to handle your mother.
Anger and acting out in the elderly--combined with a lack of 'boundaries' about whom she's 'attacking'--well, I just read a post earlier about a woman who is pretty much beating up every roommate she gets. It was awful.
I feel for you--but if MY LO was in with someone who was violent--I'd raise Holy heck. You place your LO's in NH's and EXPECT a decent level of safety for them. If I heard my mother had been pushed around by a resident who is clearly out of it--and it was a "known" factor and nobody protected her--well---sorry, that's a huge lawsuit against the facility, and by default, you.
LOOK at the people she's 'abusing'. They have hearts and spirits and lives too. CG for angry elderly people is so depressing.
Your mom is obviously your worry and concern and that is exactly as it should be, but she doesn't get to make other's lives miserable by being, well, mean.
Stay involved in getting her evaluated. But---don't bring her home. Unless that is absolutely the only choice. Psych meds in the elderly are a challenge. What worked for someone in their 50's may not be the best choice for someone in their 90's. AND, they work slowly--up to 6 weeks for a noticeable help. The only thing that really works immediately would be a benzodiazepine and those don't stay in the system long. She'd have to be monitored closely--but sounds like she is being watched now.
Good Luck. This is hard. My own mom (still living with my brother's family) has become quite mean and her filter is pretty much gone. She can say awful, biting, hurtful things--and sit there with a sweet smile on her face while she says it.
I googled and found this article that might be helpful.
https://friendshospital.com/programs-and-services/older-adults/
Could use some encouragement that I can really trust this behavioral unit, I’m just discouraged.
I thank all of you for helping me out here.