I helped take care of my Mom who died two weeks ago. My Dad is an emotional wreck with severe diabetes. I am diagnosed bipolar and my stomach is in such pain that I can hardly walk. I have had every test available and they say I am OK. I am starting to falter. Actually, I am sinking. Help me.
Grief manifests itself physically and stomach pain is one way, also difficulty breathing, fatigue, pain, sleep difficulties, poor appetite or overeating, shakiness or trembling, disorientation, migraines or headaches, dizziness, dry mouth, crying, numbness
Do get some support and come back and let us know how you are. (((((((((((hugs))))))))))
I can tell you what works for me some days, and other days, to a lesser degree.
First - do you have siblings or other relatives toy our father that can be available? I found I had to level with people who felt it "was my role to do this" - while they sat and watched. I am an only kid. They were happy to cheer me on - but what I needed was and is someone to step up and say "I will be there to help you." You know who was my Angel? Shock of all shocks! My "little cousin" - who is not 'little' anymore - he's in his late 40s. I hardly knew him growing up - but after I left for university, he had formed somewhat of a relationship with my father, that I didn't know about. And, my father had been there for his dad, and I didn't know to what extent, and he still knows more than I do. But that is who stepped up. It was a fluke I even reached out to him - it was more like a "hey - want to do coffee next time I am back there?" Still haven't done coffee, but my email and phone we have bonded. You will be really surprised who will no kidding be there for you in your most stressful hours, while the ones you think "should be" stay out of the stress.
2. You have mentioned "ages". You may be facing that time when you need to have "the talk" with you Dad about moving into a living situation with spectrum services support. It starts out as "independent living" then gradually adds more services as the person needs it - all the way through to hospice care. I don't know what your Dad is dealing with Diabetes. I have friends and relatives with severe levels. One has been on kidney dialysis for many years (!) waiting for transplant, and each day when we check in with each other I am asking about: blood pressure, iron and iron saturation levels, anemia, epogen level, thyroid levels, and of course her sugar levels as she fluctuates wildly. It feels like monitoring a "compass". The polarities want to pull against each other. Take this drug, it will help this but hurt that. Like beta blockers were good and bad at the same time. She still lives independently. After dialysis, though, from what I have observed, it isn't a good idea. The slightest curve can really throw her. Like when he complex decided to do some repairs which meant she didn't have easy access to her parking spot. That could have been life-threatening for her!
A relative just went through a diabetes related amputation. Diabetes is really nasty! Your Dad may need more supports than you can offer.
You may need more supports for your own needs. Check in with your doctor, if you haven't already. Your bipolar meds may need adjusting due to additional stress.
3. The local hospitals may be able to refer you to Grief Counseling Support Groups. These may likely be free. These may be very helpful. Support networks can be great at times when you feel least like you want to reach out.
4. "Put the oxygen mask on yourself first." (Think airlines safety warnings). You can't easily help support someone else if you yourself have high needs. I went into helping my father over three years ago coming off of disability. It's been brutal. What was supposed to be a week, has legged on and on and on...I feel guilty that I just want this cycle over. "Financially, emotionally, and physically", this process has maxed me. I don't have kids, but my cat probably knows she comes in second. Heck, my life and well-being has come in distant second way too long. It seems every time I try to turn that around, I just get yanked back into the drama with another call, email, or something that has to be done "now" on this or that. If I had it all to do over again, would I have helped? I don't know. It's complicated. I've learned so much, but the toll has been very very high. If you don't have "other financial or family matters" complicating things, you may want to just tell your Dad that you can love him and visit, but not be his primary caregiver. If your Dad loves you, he probably won't want to see your health decline at his expense. That friend I mentioned earlier? She had to delegate "everything" to two siblings when he father became ill and eventually died. One thing that severe diabetes can teach someone is that you aren't available to help anyone else very much. Your "job" is to take care of yourself, manage wellbeing, just to continue to live.
Bipolar as you probably well know, can bring on sleepless periods. I've known people who have been hospitalized with bipolar because under stress, they can't sleep for weeks. It's nothing to mess with. My heart goes out to you. You have really been given some tough challenges.
4. a. "Set boundaries" - - You have to take care of your physical and mental health FIRST. Get enough sleep and eat properly. Keep in close contact with your doctor and follow doctor's advice.
You can't help "you" or "your dad" if you fall apart. I'm still learning this one. Your solution may not look normal to others. I tried working the first ten hours every day on my father's needs, sleep 2-3 hours, then get up and try to work on my projects from like 6pm - 2am. Sleep then start his project needs again around 6:30am. I don't recommend it. I feel like I am still in university. It's much healthier, for me, to get eight hours in a row. Your doc may tell you as well you "must" get proper rest. What I am doing has its costs. My health has been hit hard doing this. I don't recommend it.
What I do recommend - treat yourself to "days off" - - take a drive, go off the grid (no cell, TV, no computer, go for long walks, get exercise regularly, find a Jacuzzi if you like these, go to a movie, silence can be really healing. Taking 2-3 days in a row can work miracles.
If you are a laptop person - maybe even take a trip and go find a hotel in a nice place where you can just "be" - and feel "who you are" - regroup your energies. If you do anything on such a trip, it is about your needs only. It's very easy to lose your sense of self taking care of someone else.
5. Who can help:
Council on Aging - - Social worker, benefits and support - -all free if qualify by income level.
Otherwise sliding scale for payments. Pretty good I found, but social worker is overloaded.
Hospitals - Can get other social workers involved. Call for their programs.
DaVita Dialysis Centers - - May have a department worth networking with since they deal with so many diabetics.
Adult Daycare Programs - Check with your hospital, or local assisted living places.
You may want to look into independent living places with great social programs, or assisted living places that have social programs. Both can give your Dad outlets for support without leaning on your so much.
6. "What not to do":
No big financial decisions at this time. If there is a life insurance payout that is substantial you might find you get hit on by all sorts of "investment sales people". If that happens, get with a good financial planner - not one who gets a commission for selling products! It may cost you for an appointment, but you likely will get stable advice to "park the funds" until you are ready for how and when the funds should be invested.
Avoid any reverse mortgage processes. Woe, has this been a disappointing game playing nightmare. When you are really on your feet and you can get a lawyer to help you - maybe. The application is LONG and the closing docs, we didn't get to read until AFTER THESE WERE SIGNED (!!!) We had 139 pages of small print legal docs to read in three days to make a decision to go forward or cancel (We cancelled! - lots of scary stuff in there.) Some clauses were downright frightening.
Hope this helps. Most important in my ramblings? Take care of yourself first. It's not being selfish - you aren't much good to anyone else if you aren't physically, emotionally, mentally, or spiritually "available".
Grieving is a process. This is a new normal on the other side of your Mom's passing. The "hurt" I don't think every goes fully away. Small things will trigger you and bring back tears when you least expect it. My Mom crossed over 26 years ago. I still miss her. You will likely find that you have days of "anger, sadness, frustration, despair, laughter (try not to feel guilty), lightness, deep depression, exhaustion, brain fog, happiness, it's a spectrum that has to "re-balance itself".
You are in the right place. This forum is awesome for support. It's 24/ 7/365.
Best wishes!
Caesi Bevis, Founder/ Former President and Director
Tiger's Eye Society. (1998-2008)
If he has a close friend or relative besides you, have him call someone and go out and have breakfast or lunch with them once a week for awhile, it'll give you a break and he'll have someone else to talk to. Not knowing how bad your Dads health is, I'll say don't assume he can't do anything, he very well may be able to do more to care for himself than you realize, of course this depends on his age and overall health.
It's difficult to lose a parent you love, and when the other parent is not emotionally strong enough to cope and their health is bad, it's even worse because you're grieving as well, you as a caregiver truly are not given an opportunity to grieve a loss the way you should in a situation like this, it makes it all overwhelming, but even so it does pass in time. I ended up on this site unfortunately because in my experience I learned that my grieving did not matter to others in my family, they tucked tail and ran when my Mom passed, everyone except my husband, so I've been there. My Dad had a heart attack shortly after she passed. I did not know how dependent he was on my Mom. He was generally healthy, driving, able to walk, cook and was still working. But I found my Dad could barely read. And once he found out I would be there to help him and basically no one else was, he tried to get me to do his laundry, his grocery shopping, cooking, etc... pretty much take care of the entire house, when he was perfectly capable of it, he just didn't want to. At the time I had my own home, a husband and grade school age children to take care of, it was so bad that if I went to a school event and didn't answer my cell, he'd get mad at me, he did not care that I had my own home and family to take care of. My Dad is a very self centered person, always has been. I was not capable of and no one would be, of taking complete care of two large homes and all the people living in both homes and manage it or take care of your own health for long, I'm talking mowing, full housekeeping, laundry, cooking, grocery shopping, the works, even doctors appointments with him to make sure he went, etc.... I did the best I could, but the more I did, the more my Dad wanted me to do, I set my foot down, got screamed at and disowned, threatened and was the bad seed for a few months simply because I wouldn't do his laundry when he was capable of doing it himself. So again not knowing your full situation, make sure you're not taken advantage of, that you provide help that is actually needed because your dad truly can't do some things. If you are the caregiver, all he has, the guideline is pretty basic to follow; A Reasonably Clean Home (bathrooms, bedding, floors, counter tops, dusting), Food in the Fridge That He Eats, Medications Lined Out and You Know and Have Proof That He Takes Them, His Bills Are Paid, He Has Insurance, You have his doctors information, their names, phone numbers and addresses, He Does Not Drive and Cannot Drive If He Is Not Capable (no keys), and If he is you go with him somwhere where once a week to check on how good his driving is. Nothing else I can give you advice on without more information, except eat well, take supplements, get exercise, it does help and plenty of sleep, you can't take care of others if you don't take care of yourself first. And hugs to you.
I value meditation, etc, but I just can't do it. How about singing the saddest songs you know with full voice and full emotion, and then maybe dancing to your favorite rock and roll and other fast music?
The Japanese have a trick to stop crying when in public, which is to force your face into a smile. Just physically smiling drives away some emotion. I'm not saying smile all the time, but try it after a period of grief is starting to ebb. Use your body to help you, and I hope it might hurt less. God bless you.
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