Many posters on this site seem to think they have an obligation to provide care up close and personal to those who abuse them - why is this? Where do they think this obligation comes from? I recall a deacon at my church who got up during the sermon and addressed this topic - he insisted his mother move into an AL because she did not respect his wife and therefore he did not want to care for her in his home (which she wanted). We do have a basic obligation of care to our parents - but this does NOT mean we have to put up with abuse.
You do not have to age to be helpless.
All you need is an act of a stroke, heart attack,
of course like the one commercial said,
you don't get a post it note telling you
that something bad is going to happen,
it just happens sometimes sooner for others.
Now, because there was this long history about the relationship between mom and auntie, they were too close. No boundaries, which was why the rest of us inherited this history. This lady had no children of her own, so we, nieces & nephews had to do the do. Throughout a 3 year period that my sister has been living w/them, it' became very volatile over there. I do understand in part, when my sister would say, "we can't separate these two for fear what it could do to my mom." But at the end of my aunt's life, she'd sabotaged the caregiving my sister had worked hard to find and who were/and still doing more than a great job w/them. One of them one weekend, notified my sister she could no longer put up w/aunt's abuse, (she threatened to call the police on this one). This lady was constantly trying to make a case that she was one being abused. She did it to the point, that on one occassion, she did call the attention of this to a social worker.
So now on top of everything else, my poor sister and me had to worry basically because our aunt had created a big lie about one of the caregivers. Finally when this occurred, I had to get kind of tough w/my sister and tell her she needed to have that talk w/my aunt about going into a nursing home. I mean that any family member, friend etc., would offer themselves up to do this work is one thing. But I strongly feel that caregivers have to really use some good old common sense, and know when possibly they too are offering themselves up for this, by going along w/other family members who many times haven't been at the other end of offending party's behavior. This is wrong, and duty and responsibility, well o.k.,
but this doesn't mean, getting yelled at, causing possibly people to lose their jobs, nor being reported because an abusive elder is lying in the worst way possible.
We all have our own "shoes" to wear and they don't always fit perfectly.
So when I hear too much kvetching, I often think it is like a marriage that is about to SINK--- and it is already too late for those of us on the outside to help them heal. And just like that marriage, I will get my hand slapped if I tell my friend the obvious.
You are right. Good relationships-- started from a young age -- are the most peaceful and beneficial to a relationship of care-taking in old age.
That said, it also is very complicated because this time around it involves siblings and money--- more than it did growing up. So, we may have created our own good relationship, but there still can be a lot of buffeting from the "peanut" gallery we were raised with.
My sadness and empathy comes when there are no good solutions. Money is tight, support is limited-- within the family and outside the family -- and the caring takes on a life of it's own, because it goes on for way too many years. People are tired and can lose perspective.
My mom did great with my dad until hospice told him his death was soon and he could no longer swallow; then a caregiver started feeding him emfamil with an eyedropper and kept him alive 3 more AGONIZING months. We kids could do nothing right. We were supposed to stay out of the decisions, show up all the time to hold everyone's hands, and then it went on too long for us to remain civil.
We easily could have reduced ourselves to barbaric acts-- especially if we had no help or counsel and had jobs that were considering termination or nutty kids at home.
We do not know the shoes others walk in.
Rovana's question helped me realize that resentment towards one's parents, left unchecked, can fester to the point we seek some form of support or start lashing out at the world just to feel better.
Of course there are caregivers whose love and unwavering commitment for their parents helps them transcend the limits of their own humanity and keep on fighting; even when there's no hope. Some come across as martyrs in need of recognition; others are in search of talk therapy. Some build community and strive to develop a support network; others relish spotting the smallest weakness in someone else's arsenal, whether real or imaginary, and try to dismantle the individual.
It's not surprising, then, that conflicts of personality eventually arise. What still amazes me is how people living in a mental glass house can throw a little stone powerful enough to trigger verbal warfare.
This isn't about whose side we're on; who's right and who's wrong; who's found the magic bullet to the trials and tribulations of caregiving and who isn't quite there yet. It's about loving one another and stopping all this nonsense.
Asking intelligent Family members to think rationally isn't too much to ask, is it?
The words we use in this forum are powerful. Trust me, I've said a few things without checking with my brain first and caught some flak. Jeanne corrected me once; so did a couple other people. Caregivers roll with the punches, mutate adapt, relocate. And we certainly can't afford to alienate anyone in this Family. Just take what you want from what's said and move on. Please Family! ... Please.
DT~ I like the way you think!.
JeanneGibbs ~ Great post…I agree with you. My mother had Alz. and I could not even get her into a day care facility so that I could grocery shop in peace. It was very difficult.
I like to look at things in a positive light but at the same time there is the reality~ Which is--- there are many circumstances where a person might subject themselves to the abuse (with hopes of change) simply because they are taking care of a loved one and want to honor them in this way. People with mental illness are not responsible for their actions. And I say this with kindness.~ In these cases if the caregiver cannot cope they should not be a caregiver. Because here is where you might end up with the most abuse coming from the caregiver rather than the patient. In my philanthropic work I have visited seniors where it was very clear that they were not comfortable with their caregiver...(many times a family member) who appeared to shut them out and talk over them, doing things for them in a perfunctory manner as though the patient wasn’t even there etc. What kind of life is that? I suspect that these were cases of caregiver burn-out! I feel certain that these people (patients)can still pick up on our emotions (as caregivers) whether they be of love or frustration, etc. and they will often react in a very telling way. Very sad!
Physical, mental and emotional abuse can undermine our health and self-esteem. This has been known and documented in health journals, etc. for many years.
NO One… should have to be abused ever! Even by a contankerous elder who is hating life and taking it out on you. In these cases once it is clear that they are not being abused and there are no medical reasons for their behavior, and if nothing can be worked out, they might be better served by being placed in an assisted living or other facility for the elderly…especially if they cannot take care of themselves. Some people even prefer this but the family wont hear of it…I think it is best to allow our elders to keep their dignity and to make decisions about their lives for as long as possible. It makes for a more peaceful environment all around.
Thank you Rovana and all …I have enjoyed reading all your comments and wish you the best. I always learn a little something new ~ Bobbi Henderson
I think my basic sticking point, and it comes up often here, is that dementia is fundamentally different than many other conditions that put people in need of care. We are a community of caregivers in very diverse situations. One size sometimes almost fits all, but almost never does 100%. I think how one deals with a narcisstic person or a person who has been abusive all her life is different than how one deals with a dementia victim. That's my opinion, in any case. I think it is an important message and I share it often. I should have been more direct about it in this case. I apologize.
Many mental health issues are progressive. We sign up when the person is still kinda well and then one day we realize they really are nutz. Then we must re-negotiate all the social contracts we made to get into this situation in order to leave in a "good way".
For example. My marriage dissolved. My mom's house is near a great high school, I am out of work.... Seemed great for the kids and I to move in and care for her. But I have to be forever vigilent for the time when it is beyond me and I need much more help. At that point all kinds of things will have to change. The toughest one will be selling the house to pay for her care and moving the kids to a different school. Because of my obligation to my kids I will probably tolerate more crazy than I would if I was kid-less.
So it is not just that we are door mats. It is that the situation is fluid. They are changing. We are changing. And our siblings are changing. Our employment changes. We just keep trying to stay in that sweet spot of balance.
I think you are mistaking "accepting abuse" for understanding the source of these actions or feeling empathy for someone who has a mental illness...this is not the same thing. It our obligation to find help for our loved ones who suffer from mentally debilitating illnesses - it is not okay for them to use abusive language or physically injure someone...period. If a loved one suffers from Dementia, and therein, does not understand his or her actions, caregivers still have a right to protect themselves and their families from injury to body, mind, and soul. (please read cmagnum's and Eddie's responses.)
Jeanne: it isn't your place to "critique" the responses or experieinces of others in this forum, which you seem to have taken on as your personal responsibility. Interesting that you chose the word "judgmental."
Really....in the future, please address your comments to the original question. It is inappropriate to turn every post into a debate. And btw, I couldn't care less if you agree with me or not.
I can't speak for anyone else's parents, but I do know what it's like to be tormented by them.
In Latino/Hispanic society, mothers are goddesses to be worshiped no matter what. As a little boy growing up in the 60s, child abuse as we know it today was called discipline.The method didn't matter as long as you learned your lesson: a hot iron to the arm, kneeling naked on raw rice strewn on a concrete floor for something you supposedly did. Add to that lashes with an extension cord and, at the age of 5, having your face rubbed on your own feces; then sit on a big rock facing the street where everybody could see the sacrifices your beloved mother had to go through to teach you that crapping on the bed because you couldn't find the mosquito and roach-infested latrine in the darkness is something you just don't do.
Everyone, especially older people, told me I must have done something to deserve it and that it probably hurt her more than me. Others would say someday I'd have children of my own and understand why she did what she did.
So I took the abuse in silence, and conditioned myself to believe she did the best she could with what she had. That if children came with instructions at birth everybody would be a perfect parent. ... Bull. Her idea of good parenting was terrorizing children to ensure their subservience well into adulthood. An investment for her twilight years. ... To this day, we're expected to pay tribute to a woman who brought us into a life of poverty and then charges us for it.
To her I'm an ingrate. The child whose birth, she said, was a regrettable accident. I saw her a couple of months ago at my older sister's apartment. She bragged that if it hadn't been for her brand of "discipline" I'd never be the successful man I am today. I called her aside and, with a goodbye hug and a kiss, told her "If every time I see you all you're going to do is use me, hurt me, humiliate me, and abuse me some more ... then there's no place for you in my life."
My motto? ... Respect yourself.
I agree with the story above that the man's mother needed to go to an ASL for treating her DIL with disrespect was driving a wedge in that marriage. Who knows getting rid of his wife might have been what his mother wanted?
Physical abuse does not have to be tolerated. While we can understand why a mentaly ill person, particularly one not taking their meds or someone with a personality disorder is verbally and emotionally abuse, we do not have to absorb their chaos or become enslaved by their emotional blackmail. Anyhow, a person who verbally abuses someone is trying to wear them down and often will eventually physically abuse them. Putting up with abuse from an adult parent or relative that most people would not put up with in a marriage or want a child to experience is way outside of the box for my boundaries.
I also agree that DT's answer often applies.
I suggest, though, that mental illness changes the picture -- especially illness that has its onset in old age, such as dementia. (The relationship between caregiver and people who have been narcisstic or bi-polar for decades has been developing for a long time.)
I'm not putting this forth as advice or what "should" be, but simply in answer to the question -- why do caregivers put up with abuse? Physical abuse is especially dangerous in combination with dementia. The demented person may not know his own strength and may have lost impulse control. Most caregiver learn they can't simply wince and take it, or are convinced of that by others who love both parties. But a sad fact is that many facilities are unable to deal with violent residents. What is the poor caregiver to do? Trying to get the violent behavior controlled for either continued at-home care or for placement may involve the use of drugs, including anti-psychotics that are normally not adviced for the elderly or those with dementia. I think the use of these kinds of drugs is a little more understandable in the context of violent behavior..
As for non-physical abuse, many dementia caregivers put up with it out of love and compassion, knowing that it is not the loved one who is acting this way -- it is the disease causing this. We put up with it in the belief that if the situation were reversed our loved one would do his best to care for us in spite of what the disease is doing. We do it hoping that our presence and patience eases the terrible burden of the disease in some small or large measures. We do it knowing that our loved one can't learn new behaviors and can't help the present lack of impulse control. And we do it as a way of exploring the outer limits of love, which are remarkable indeed.
I don't mean to be suggesting this as "right" -- just explaining what may seem masochistic or psychotic from the outside. Caregivers of dementia patients may be approaching this whole topic from a somewhat different perspective.
With my Dad, his occasional "attitude" can be hurtful and he'll try to justify as "his opinion". When I ask if he would find our opinions voiced in a snide or ridiculing manner appropriate he starts to see my point.
If you're fortunate to have open communications, please do.
My challenge is primarily with two much younger siblings who think ridicule, back talk, and screaming - often with lies - are appropriate for them to get their way. I question whether at least one is bipolar, but I can only work with what I have.
Setting boundaries where siblings are abusive is a different kind of challenge.
Great guidance here. I think emotional abuse is another point for discussion. I had a professional try to lay a guilt trip on me last night (at 10:20 pm but it was no emergency). Her intent was to guilt me into moving Mom in with my husband and I. Fortunately, I didn't take the guilt trip and was able to end the conversation without loosing my temper.
My husband asked "what was that all about" when I finally got to bed. In the kindest voice he has he said, "Well, if you need to live with your mother, please go to her house. I'll be here for you, But we can't let her come here to destroy our lives."
I treasure his honesty and I'm not broken by his words. He spoke the truth with love. We'll figure this out somehow.
I do not think it is "natural" to combine any two adult households - whether that be bringing an elder family member home or having adult children move (and sometimes their children) back to your home. There is just too much need for both independence and privacy...you lose both when you move into another's home...it is unavoidable. Then resentment sets in...elders feel that they are imposing, caregivers feel trapped.
It takes so many things falling into place for this arrangement to work. I think some caregivers are reluctant to find an alternative placement because they are driven by guilt or misplaced obligation.
What we "owe" are parents are the same things they gave us: a safe, comfortable home, good meals and nutrition, and medical care.
Accepting physical or mental abuse from anyone is unacceptable.