My Dad is currently bed ridden, unable to care for himself, curled up in a frozen state from Parkinson’s, my Mom takes care of him full time and I am the caregiver for all errands food shopping house issues, doctors, phone calls, mail paying bills etc. I call her every day and see them both Saturday and Sunday. My Dad has declined to the point where he doesn’t recognize me anymore as of a few months ago. I thought it would stop hurting but it doesn’t it feels like new every time I see him, I am accepting of his illness and why he doesn’t recognize me but it’s my Dad and knowing how independent and intelligent he was once to see him like this is heartbreaking. I feel like I am in a fog most of the time, it weighs on me so much and my Mom is getting frail. I hate seeing her so sad about my Dad. I wonder how much more my heart can continue hurting, can someone relate to what I am going through?
As you know, Parkinson’s is a progressive disease with no cure. It is true that as this disease progresses our parents are no longer the active people they once were.
It’s heartbreaking to see a parent decline. I’m so sorry. I don’t think you can help being sad for either of your parents.
Sending you a bazillion hugs.
Does your dad get any in home health care and respite for mom?
She needs to take care of her to ensure that she is as strong as can be for this journey.
How do they feel about assisted living so that she can get some help and have some peer support?