Hi, I am new to this site and hope I'm in the right place. I've been reading articles and posts, and it has been so helpful to read about what other people are going through with their aging parents.
I'm wondering how you all deal with difficult parents when you live very far away. How do you deal with the guilt of being far away and with the stigma of putting mom in a "nursing home"? How do you deal with the manipulative "nobody-loves-me" parent?
My mother lives in FL, my husband and I live in CA. I'm the only child. My mother is in her 60's but acts like she's in her 80's. She has problems with alcohol, blood pressure, arthritis and anxiety. From what I can tell, she rarely leaves her house. I'm concerned about what I will do when she needs assistance. I'm also concerned about how I will cope with her personality--she's becoming withdrawn, but then lashes out at me unexpectedly. Right now she's not speaking to me because her Mother's Day card did not arrive on time even though I explained that I mailed it the week before. Even though I called her early that morning to wish her a happy Mother's Day, she said I had done nothing.
I've offered her suggestions to help with her anxiety and her physical problems, I've recommended everything from yoga to counseling to medication, but she's not interested in any of it. She seems to be angry with me for not doing more for her, but she hasn't been able to articulate what she needs from me. She feels mistreated, but I call her dutifully every week and visit her at Christmas.
I would love to hear from you all. What is your experience with long distance caretaking?
My difficulty has been her odd personality. I do have a brother who lives nearby but he does almost nothing for her. She has left me off her POA, has no living will or medical directive and is very paranoid about letting me get any information about how we will care for her. Forget about her banking, only my brother is privy to that. Both treat me like I am not family.
I too wonder how I will react when she needs help. I live far away too and at the moment if anything happened to my brother, my only option would be to get guardianship. Now that is a can of worms.
I would recommend you ask your mother "what would you have me do"? You can not move or change your life, I am assuming you are still pretty young and working. She must come to you. Either live in an Assisted Living or Nursing Home when the time comes. As you will read, many will tell you the horrors of having these types of parents live with you. It is not good.
Read Nina Brown's book the narcissistic family and google daughtersofnarcissisticmothers.com. I am not saying this is her problem, but this turned on numerous lights for me. Nina Brown's book is written to help you cope with a parent who thinks only of themselves and how to stop the cycle of how we react to parents with these personalities.
Also look at how she has been your entire life and make sure she is not suffering from dementia or alzheimers. The alcohol abuse can be a large part of the problem. Anxiety can also make her difficult, my mom has untreated anxiety and depression.
I hope she will work with you but I have found my mother to be unchanging. I had to change. It is the only way to survive. Good luck to you
Long distance caregiving is a pain in the ass, not to be polite about it. Remind yourself that you can only do what you can do. Try to find someone who is on sceen who will give you a daily, or at least weekly, update. You might even offer to pay one of her old friends to do this. If she doesn't have any because she has outlived them all, try to find someone in her church or other social group willing to do this. I found it immensely helpful when one of my father's long-time neighbors chose to do this for me. It freed me to concentrate on makeing the money that helped pay for his care and to sleep soundly, knowning that I would most likely receive a call from him before an emergency developed.
Remember that, unlike other situations, you come first. You are going to outlive her. You need your sanity to do this successfully. Read all the books that have been reccommended. Find yourself someone to talk to. And take heart from the fact that other's are sending good thoughts your way.
It's not your responsibility to uproot your life or take on the burden of guilt your mom wants to give you. She may very well be upset, on some level, that you have found happiness in your new marriage. As people age, they see opportunities pass them by and it can be hard to adjust to the fact that young love is not in the cards anymore.
What did your mom do when she was working and how long has she been retired. I'm just curious about this. I'm not suggesting that you make it your life's work to find your mom an interest.
Take care and be happy, Cattails.
Cattails--I completely agree that an activity would help my mom, but she seems to be her own worst enemy when it comes to interacting with people. She retired about 2 years ago or so. When she worked, she would complain about work and/or her co-workers and friends. She is a remarkable complainer, actually. She would actually take offense at gifts her friends had given her saying, "Now why would so-and-so think I would like THAT!". I'm thinking, "Mom, she's your friend, and she GAVE you something!" There's a shocking lack of gratitude. Now that she doesn't have work anymore, I think her focus has shifted to me. She has few friends and doesn't like to socialize. She joined a group shortly after she retired but found a reason to stop participating. She doesn't take kindly to suggestions (believe me, I've tried and I still do occasionally).
Ambsmith and JudymW--thank you for the ideas. It's good to know what kind of options are out there for when the time comes that she needs care. I have to work, and can't imagine being able to move back. My question is probably (hopefully!) very premature, but I worry about how I'm going to care for her.
Now, my mother has no illnesses. Takes no drugs. Doesn't need glasses, just readers. Has never had heart disease, cancer, hip replacement, anything ,many 80+ year old people have. No dementia, alzheimers, nothing. Just a narcissistic personality and this she has had her entire life.
Just another wake up call for me as to how glad I live in Florida and she lives in Alabama. Thank you Jesus.
Please do not consider uprooting yourself for your mother. For heavens sake, I'll be 60 this year. She is not old and needs to get herself together. Take care of yourself and keep looking into solutions from afar. Do not, do not, give up your life. Peace.
Your Mom sounds a bit more paranoid than mine. The thing with the scope rifle is a bit strange and the president......My Mom is still in reality but just her paranoid twist on everything. But I see what is coming. I am sure we are just a year or two from where you are. Take care.