I care for my 81 yr old mother (she doesn’t drive, needs help showering, I cook all her meals, manage her meds) who has been in our (w/my amazing husband) home for the last 2 1/2 yrs. We (hubby and I) moved 1100 miles from home (what few friends/family I had are there) to help w/hubby’s medical issues (moving here, FL, he now is now able to work). I have no friends here and now with COVID (what few visiting nurses we HAD) no one has been in my house for months. I get out only to go to the grocery store (mom comes along but if stores are swamped she stays in the car - which is most of the time) and when she has a doctors appt. I don’t want to expose myself to anyone outside my home because I doesn’t want to get sick or pass it onto my mother.
Most days I’m alright but there are times when I just feel so alone (especially when my husband goes out fishing once every six weeks or so). I feel like some days I’m absolutely going stark raving mad. Anyone have any ideas or thoughts on what I could do before I lose it?
I work in a school p/t and before covid, had aides come in to sit with mom while I worked. Now if I cannot go back to my job in Sept due to covid,I'll be very depressed since that's my lifeline to sanity.
Mom likes to be around me & stare at my face and I totally hate that...so I put on YT videos for her and insist that she stay in her room for a bit.
I sometimes wonder why our parents go on living & living & living....,what is the purpose of their life if they get too sick/very dependent on us?
My husband is generally supportive since his parents also live with us 6 mos/year. I feel I'm running my own senior center with meals on the dot, taking them to appointments etc..
Sorry original post-er...I don’t have many answers, but I SURE RELATE and I am here learning, too!
At least I have homehealth still coming to the house, but even my doctor told me to get away an entire day. With Covid, where do I go? I don't trust hotel rooms, certainly not going to camp in this heat. My hubby told me I had to take him too, lol. But where? plus, could I find someone to stay with mom. Normally, our house has everything I need for a vacation except the beach. We joked about telling Mom we would be gone, but then sneaking around the house. I'm sure we'd run into each other.
My mom actually can do a lot more for herself than she wants to and for 90 yo post stroke and broken femur in the last year, she can get around ok with the wheelchair and the walker, although she complains for me all the time. She wants me to do for her, and I refuse. I don't even argue doctor's orders with her anymore and I walk out a lot. Her negativity and depression has cast a shadow over our house like Voldermorts deatheater signal in the sky. I think that's why my empathy has gone.
I escape outside as much as possible and I'm working on a place to go for a day that I would enjoy.
This has truly been a difficult time- I lost my grandfather to COVID19, my grandma and I were sick with it, which caused us both some health issues. But you know what? Those health issues are clearing up. My breathing has gotten much better to the point where I hardly need the inhaler. Grandma is recovering well. My family and I fought because difficult times tend to bring out the worst in people, but we are all still here and trying to patch things up.
My dear, don't worry. Like all storms in life, this too shall pass. Stay strong, take time out for yourself, go do something fun that you enjoy at least once a day. I live for my 12 o'clock Beatles block on the radio everyday! :) I promise you, it's all going to be okay.
To all of my fellow caregivers out there, sending you guys lots of love and support.
Own his own with 2 helpers and me visiting 2 days a week. This forum is a huge help to all of us. I mostly read but thought I would share today.
Dad is 93 with dementia, not worst case but we have to give morning meds and prep meals. He is able to walk and use bathroom.
Sometimes we have to think out of the box of what to do for our parent.
I pick flowers for Dad and he loves them
Brought friends dog over and he enjoyed that and lit him up
Bring a magazine and go through page by page with comments
Bring over a food treat that he likes
Buy scratch off lottery tickets and have them do the scratching with a coin. Last one was a $10 winner- Dad was happy!
Show him paper pictures from the past or pics/video on my phone of something
We do simple exercises together - marching in place holding on to chair and he can lift free weights. I get Dad outside for short walks. He also enjoys just standing outside and watching the birds and planes.
You can use a wheelchair outside and take parent for a walk. If parent can get to the chair outside. It can be kept outside hidden and covered if you don't have a ramp.
If parent can get to the car take for a ride - plan visit to a park - have lunch at a picnic table.
Doing something together such as adult coloring books, puzzles.
What I find is we get so used to doing things for them we forget they may be able to do things also but we don't give them the chance. I witnessed in a rehab they gave a lady towels to fold and she felt an accomplishment.
Nothing says we all should not be exercising even if our parent can't . Many exercises you can do inside and maybe you can leave for 15 min for a walk.
Dad likes to watch the birds - if you have a tree or anywhere you can place bread and attract birds it can hold their attention.
It's easy to get frustrated but put the energy into thinking of something your parent would like. They know more that you think and pick up on our frustration.
Put yourself in their place.
Sometimes we forget to ask what do they want? - what would they like to do?
I took my Dad to the driving range - long time golfer and he can still hit a short shot but he enjoyed just watching the guys hit and then we played a couple holes of miniature golf.
Since the virus I'm thinking many of our homes have less items, is more organized, and if it's not than you can do that on your own to keep busy and you feel better downsizing.
I think we get so frustrated as we are thinking of ourselves and how we are handling the care giving situation. A parent can realize they are stuck and can feel like they are a burden.
Try a different approach. The last thing we want is after our parent has passed is to look back and realize we didn't do more positive activities.
All the best to care givers and do for yourselves best you can and try to make your parent smile today.
Barbara
i would like to add that I am 65 and take care of my 84 yr old sweet H, marred for 27 yrs, he is in stage 6. I have given myself many attitude adjustments along the way and have learned the lesson of acceptance.
have been home since March 14th and don't know if I school will even open in the fall. We are all going stir-crazy and getting on each other's nerves. Mom has a terrible habit of scratching her skin until she has open sores all over, so I constantly have to watch her, apply lotion or antibiotic cream, or just leave the room. She also clears her throat constantly.
Fortunately she has a tv in her room and will "hibernate" there for hours at a time so we can have some peace. I hate to think of the television being used as a babysitter, but it works!
I get my own peaceful times by doing a lot of yard work, selling things on ebay, and reading, but there are many times when I just want to cry, and feel hopeless, and also guilty for sometimes just not wanting her here anymore. I feel for you, and this Covid 19 has turned everything upside down; I wish I could just feel safe going out to eat or be able to escape now and then.
My husband is retired and can stay with her, but has grown resentful and wants no part of her; that makes it even tougher for me and mom.
You are not alone feeling up against a wall; hang in there, and know that there are many of us in the same boat out here....
Most of all, as Tibrew wrote here on this forum in another thread, they will let you "transition from care-giver to caring", which is the most important thing of all, at least IMO.
I can relate—I’ve said those exact words! My 84-year old mother with mild dementia moved in with me in April. I actually reached out to a therapist to help me deal with my burn out and angry and depressed feelings. She encouraged me to put self-care into my daily routine. It has helped me to take advantage of the morning time while my mom sleeps in. A friend in another state invited me to a “daily workout.” We swap “sweaty selfies” with no makeup for support and accountability. She’s been exercising for a while, but I am starting slow with a 30-day Yoga with Adriene routine in the morning. Then I treat myself to a healthy smoothie. I also started journaling my thoughts and made a list of gratitudes, which helped me remember some silver linings. When I journaled my gripes, it helped me see some small creative solutions to ease my stress.
I have joined an online book club that meets in the evenings when my mom is watching tv, and I am intentionally reaching out via Zoom and text to friends near and far. These few activities have helped my mood tremendously. I needed to have some control over my day and some sense of autonomy to be able to sustain this new normal.
Joining this group has made me realize I am not alone—the feeling of being trapped and isolated is the worst!! Praying the COVID-19 vaccine gets approved soon!! <3
You need to set a schedule and stop micromanaging her. Make sure that she has something to drink, snacks handy and access to the bathroom, if she is not mobile then do a bathroom schedule. I am sorry to sound rude, but you are creating a lot of stress for yourself and only you can stop it.
This whole covid thing has everyone not thinking straight. People that have isolated, wear masks and do everything they are supposed to do get sick. Stress weakens your immune system, so stop stressing about something that you have no control over. When it is our time to die, we will die, whether from covid or a heart attack. Does it really matter the cause? Being cautious is the best any of us can do and that means washing your hands, wearing a mask and not gathering in crowds, not becoming a hermit stuck in your home with no outings.
You need a break .
Can you get a caregiver /Nurses Aid
from a local visiting nurses association? Just for a day or a few hours here and there.
Take natural supplements ( as well, ginger and garlic are the best immune strengtheners there is. Every year folks go nuts about the latest flu going around and are stupid enough to get the shots. Every one of our friends that get the shot get deathly sick. Our family does not get the shots and we do not get sick) , spend time outdoors every day and wear a mask when in crowds and you and your family should be okay.
I am blessed with both a flower garden and vegetable garden to take care of so my days are full.
Being an introvert covid does not bother me.
Mom has a network of folks that she calls or they call her every day. Make a list of family and friends to call every day.
Go for a walk in the park, being in nature has a calming effect on you.
And of course, for me, when I get stressed out I just take it to Jesus.
These really work for our friends and us.
May Jehovah Shalome (God of peace) bless you with His gentle, reassuring peace every day
Below is my 'feel better & keep myself sane' stuff i do..i hope it helps in some small way
Eating clean & walking (like another person said) where there is plenty of Nature...trees, flowers, grass. Most days i go early am & after dinner at night when Grandpa goes to sleep (which is really late some nights) It clears my head & gives me a perspective & definately helps me to sleep much better. I'll leave a little list for you of my habits that help me to feel better about myself, my Grandpa & my life. I don't do all of them everyday...just do the best I can. That's all Life expects of us after all.
6 cups epsom salts & a few drops lavender Oil in a warm bath..put my head under the water like when we were kids also. The magnesium in the epsom salts really helps to relax the nerves & give us deep sleep
Plenty of proteins with each meal (we need extra during stress times) chicken & fish, ground nuts & seeds, tempeh (delicious) eggs.
Iron & b12 with breakfast every day.
Raw garlic is the only substance man has that kills viruses...We have drugs that can hold the viruses down by stopping it multiplying (replicating) However, man can't kill it ...with all his fancy meds with stupid names.
Only when garlic is Raw is it antiviral. I bought a good crusher on Amazon & crush about 1 teaspoon of garlic..sit it on the counter for 5 mins...then swish it down like a pill just before meals..At least 1 time a day. Grandpa moans about it, but he takes it also.
All the stories about garlic keeping the evil spirits away from times past is because people believed that evil spirits would 'pour diseases over people'..They didn't realize they stayed well because of the antiviral, antimicrobial & anti fungal properties of the garlic. When you swallow it down you won't taste it or smell it either. Just have the meal right after the garlic & it will settle the tummy.
Then you don't need to be fearful when you take your Mother out.
You can google up medical studies on the raw garlic
Making fresh vegetables juices ..especially the green juices..cucumber, apple, celery
Writing down 3 things i have to be grateful for before i sleep. And anything else that is heavy on my mind.
Praying...reaching up within myself for guidance for the right thing to say & do
Helping someone else. Calling someone just to check up on them. (not complaining about my own problems) Taking something i baked to a neighbor. Giving the first shopping trolley to the other person first. Different small things that get me out of my own head
Finally, remember, Nothing lasts forever.
One day you will look back and be reassured knowing you did the very best for your Mother.
Bless your heart :)
You are most definitely not alone!!! I (along w/my amazing husband too! :)) take care of my 86 year old mom who has dementia. Being a FT caregiver is completely challenging enough but doing it in the midst of Covid has literally been a nightmare. My mom used to go to the senior center once a week and spend the day with friends but once it closed up, her dementia took a huge turn for the worse. She hallucinates all the time, has severe anxiety and cannot be left home alone so either I stay trapped in the house with her or my husband has to stay home so I can run some essential errands. We have had to baby proof every door and slider that opens because she is notorious for trying to leave when she has anxiety, setting off the alarm in the middle of the night on multiple occasions! We, also, have made the decision not to risk bringing a caregiver in when Covid cases are spiking so badly.
I have, by no means, figured out the magic solution but I have found that doing little things have really helped me get through the day the best I can under the circumstances. I have stopped dwelling on all of the things that are preventing us from having a more "normal" life and tried to focus on more positives - SOOO challenging to do at times, I know.
For me, I try and get outside daily. I'll set mom up with her walker on the driveway and I get fresh air, even if it's raining. Often, she will sit on the porch and rest and I can be outside but still keep an eye on her. Stretch, take deep breaths, fresh air does wonders! I work out multiple times a week - this is the single thing that has kept me the most sane and helps keep the physical stress levels down. As for my mental well being - this is by far the biggest challenge. Mainly, I try and keep busy, taking care of things at home or doing small easy projects I've been "meaning to" knock out. Smaller projects are do-able and give me a sense of accomplishment - a positive! I play with our pets and often think they have no idea how much the world has changed around them because their lives are pretty much the same! If I have any down time in the afternoon, I work on puzzles. I find this to be amazingly relaxing because your mind remains active but you're doing a calming activity. I also have a couple of those adult coloring books but I haven't worked on those in ages. Do you do or have you tried yoga? If so, there are so many online options and you can plug your computer into the TV for a better view. I go through phases with yoga and currently, I just don't have the patience for it. Sometimes I will do the stretching classes and that helps a lot or I get on the roller and work on some of my muscles. Anytime you can make your body feel better, the mind gets on board too...for the short time being anyway. Again every little thing counts!
I guess all of my suggestions are things you can do by yourself and doesn't really help that feeling of isolation. I cherish alone time (because it rarely happens) so it's less stressful for me not to be social during the pandemic. I do get some social outlet by keeping in contact with friends around the country. We "check in" every now and then and you always have the option to Skype/Zoom with your friends and relatives back home if you want to see a familiar face!
Again, no magic solutions but try and motivate (again challenging, I know) to try lots of different things and see if any of them help you feel even a little bit better. I think lots of small positives goes a long way and remember, none of this will be forever!
My suggestion for you would be to set aside "me" time for reading, taking walks, gardening or any other hobby you enjoy. I love to make quilts and spend as much time as possible in my studio working on projects. I miss my other friends that are also quilters, but I try to keep in touch with them via Facetime and text messaging. We share photos of projects we are working on and celebrate together when a quilt is completed.
Keep in touch with family -- My family all live out of state so we don't see each other very often. Again I found they are just a text message away and enjoy catching up with them every few days.
Remember that the Lord is always with you. When taking care of my husband really gets me down say a little prayer and thank the Lord for his care for me. He is always there to comfort me and give me peace. I start each day with about an hour of "me" time which includes asking God for another day of his help to continue being a caregiver.
I wish you the best. Remember that other caregivers understand what you are going through. Be strong and remember to take time for yourself everyday.